Women's experiences of increasing subjective well-being in CFS/ME through leisure-based arts and crafts activities: a qualitative study.
OBJECTIVE
To understand the meanings of art-making among a group of women living with the occupational constraints and stigma of CFS/ME. The study explored their initial motives for art-making, and then examined how art-making had subsequently influenced their subjective well-being.


METHODS
Ten women with CFS/ME were interviewed; three provided lengthy written accounts to the interview questions.


RESULTS
Illness had resulted in devastating occupational and role loss. Participants took many years to make positive lifestyle changes. Art-making was typically discovered once participants had accepted the long-term nature of CFS/ME, accommodated to illness, and reprioritized occupations. Several factors then attracted participants specifically to art-making. It was perceived as manageable within the constraints of ill-health. Participants also tended to be familiar with craft skills; had family members interested in arts and crafts, and some desired a means to express grief and loss. Once established as a leisure activity, art-making increased subjective well-being mainly through providing increased satisfaction in daily life, positive self-image, hope, and contact with the outside world. Participants recommended provision of occupational/recreational counselling earlier in the illness trajectory.


CONCLUSIONS
Creative art-making occurred as part of a broader acceptance and adjustment process to CFS/ME, and allowed some psychological escape from a circumscribed lifeworld.
Reynolds
Frances
F
School of Health Sciences and Social Care, Brunel University, Middlesex, UK. frances.reynolds@brunel.ac.uk
Vivat
Bella
B
Prior
Sarah
S
D000223:Adaptation, Psychological; D000328:Adult; D001155:Art Therapy; D003405:Creativity; D015673:Fatigue Syndrome, Chronic / Q000503:physiopathology / Q000523:psychology* / Q000534:rehabilitation*; D005260:Female; D006801:Humans; D007406:Interview, Psychological; D008875:Middle Aged; D009788:Occupational Therapy / Q000379:methods*; D011287:Prejudice; D011788:Quality of Life