[Quality-of-life measures in pediatric cardiology].
The need of outcome measures from the patients' aspect emerges reasonably in the field of rapidly developing pediatric cardiac surgery and pediatric cardiology. The professional standards and the possibilities of applicability of quality of life measures are often unknown for medical doctors. This is particularly true in pediatrics due to the numerous difficulties of pediatric measures and--in consequence--to the lower number of correct investigations.


OBJECTIVE
To summarize the basic professional expectations and results of previous quality of life studies performed in pediatric cardiology from a clinical point of view.


METHODS
Survey of the literature of quality of life measures performed on mixed or specified adult and child population with congenital heart disease with a presentation of the main results and the basic characteristics of methodology.


CONCLUSIONS
According to previous results, quality of life measures have a role in pediatric cardiology. Adequate measures can improve the level of care.
Berkes
Andrea
A
Debreceni Egyetem, Orvos- és Egészségtudományi Centrum Gyermekklinika, Debrecen, Nagyerdei krt. 98. 4032. berkesa@dote.hu
Mogyorósy
Gábor
G
D000293:Adolescent; D000328:Adult; D002309:Cardiology / Q000639:trends*; D002648:Child; D002675:Child, Preschool; D006330:Heart Defects, Congenital; D006331:Heart Diseases; D006801:Humans; D010372:Pediatrics / Q000639:trends*; D011788:Quality of Life; D011795:Surveys and Questionnaires