title: ASAS/EULAR recommendations for the management of ankylosing spondylitis: the patient version.
abstract: BACKGROUND
  The ASAS/EULAR (Assessment of SpondyloArthritis International Society/European League Against Rheumatism) recommendations for the management of ankylosing spondylitis (AS) have been developed by rheumatologists for a target population of health professionals.
  
  
  OBJECTIVE
  To extend the cooperation between ASAS and EULAR by translating the recommendations into a language that can be easily understood by patients in order to further disseminate and evaluate the recommendations.
  
  
  METHODS
  In cooperation with patient organisations 18 patients with AS (17 European, one Canadian) were invited to attend a meeting in February 2008. As a starting point the original publication and a version created by Canadian patients with AS were used. To improve the understanding of potential problems, data on the evaluation of a recent German translation were presented. After intensive discussions the wording was adjusted and a vote was held on the new wording of the recommendations aiming for >80% agreement on each sentence. Finally, patients were asked to indicate their level of agreement with the content of the recommendations.
  
  
  RESULTS
  Ten recommendations were successfully translated into a patient-understandable version. The original text was changed in most cases. In all but one case (recommendation No 4) there was broad agreement with the proposed translation. The overall agreement with the content of the recommendations was high: 8.7 (0.6).
  
  
  CONCLUSIONS
  For the first time, EULAR recommendations were successfully converted into a patient-understandable language version by a large international group of patients in collaboration with rheumatologists. The evaluation showed broad agreement. Translations into different languages and further dissemination in individual countries will be performed.
authors.affiliation: Rheumazentrum Ruhrgebiet, St Josefs-Krankenhaus, Herne 44652, Germany.
authors.forename: U
authors.initials: U
authors.lastname: Kiltz
authors.forename: D
authors.initials: D
authors.lastname: van der Heijde
authors.forename: H
authors.initials: H
authors.lastname: Mielants
authors.forename: E
authors.initials: E
authors.lastname: Feldtkeller
authors.forename: J
authors.initials: J
authors.lastname: Braun
mesh_terms: D000328:Adult; D000368:Aged; D032882:Comprehension; D005260:Female; D006801:Humans; D007391:International Cooperation; D007802:Language; D008297:Male; D008875:Middle Aged; D010353:Patient Education as Topic / Q000379:methods*; D010358:Patient Participation / Q000379:methods; D017410:Practice Guidelines as Topic; D013167:Spondylitis, Ankylosing / Q000628:therapy*