title: A new tool to assess family caregivers' burden during end-of-life care.
abstract: A significant challenge in virtually all caregiving studies is the measurement of burden, particularly within the specific context of palliative care. Existing tools in the caregiving field are not specifically designed for palliative care. A new tool, which specifically assesses family caregivers' (FC) burden within the palliative care context, was systematically developed and validated. This paper describes the steps taken to develop this tool and to examine its psychometric properties. The Caregiver's Burden Scale in End-of-Life Care (CBS-EOLC) is a 16-item self-report questionnaire. Internal consistency reliability: Cronbach's alpha = 0.95. Construct validity: Most inter-item associations were consistent with the conceptual framework that emerged from qualitative data analyses. Convergent validity: Interscale correlations: a) Zarit's Burden Interview (BI) = 0.72 (p < 0.01); b) POMS (fatigue) = 0.69 (p < 0.01); d) POMS (vigour) = -0.27 (p < 0.05). Social desirability was tested with the Crowne & Marlowe questionnaire (r = -0.24). Sensitivity: Associations were consistent with patients' functional status (ECOG) and FCs' unmet needs. The CBS-EOLC is a reliable and valid measure available in French and English.
authors.affiliation: Ecole de service social, Université Laval, I Québec, Canada.
authors.forename: Serge
authors.initials: S
authors.lastname: Dumont
authors.forename: Lise
authors.initials: L
authors.lastname: Fillion
authors.forename: Pierre
authors.initials: P
authors.lastname: Gagnon
authors.forename: Nadine
authors.initials: N
authors.lastname: Bernier
mesh_terms: D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D001294:Attitude to Health; D017028:Caregivers / Q000458:organization & administration / Q000523:psychology*; D017281:Cost of Illness; D005190:Family / Q000523:psychology*; D005260:Female; D006701:Home Nursing / Q000458:organization & administration / Q000523:psychology; D006801:Humans; D008297:Male; D008875:Middle Aged; D008960:Models, Psychological; D020380:Needs Assessment / Q000458:organization & administration*; D009730:Nursing Assessment / Q000458:organization & administration; D010166:Palliative Care / Q000458:organization & administration / Q000523:psychology*; D025341:Principal Component Analysis; D011594:Psychometrics; D036301:Qualitative Research; D011792:Quebec; D020377:Self Efficacy; D012680:Sensitivity and Specificity; D012944:Social Support; D011795:Surveys and Questionnaires / Q000592:standards*