The pathway to dementia diagnosis.
OBJECTIVE
To describe the steps taken by health professionals to diagnose dementia and the timeframes for these steps, as reported by carers.


METHODS
A cross-sectional, anonymous survey was mailed or distributed by Alzheimer's Australia New South Wales, six Sydney residential aged care facilities and 13 Sydney general practitioners to 415 carers or family members of patients with dementia between May and August 2007.


METHODS
First symptoms noticed and actions taken; time to first health professional consultation and diagnosis; reported actions of first health professional; satisfaction with first consultation; and use of dementia and chronic illness resources.


RESULTS
209 surveys were returned. Family members noticed the first symptoms of dementia at a mean of 1.9 years before the first health professional consultation about dementia, and 3.1 years before a firm diagnosis. Resource use first occurred 2.8 years after the first symptoms. Most carers (72%) were satisfied with the first consultation, which was usually with a GP (84%). Two-thirds of carers (64%) reported that the first health professional had performed a memory test.


CONCLUSIONS
Delays in presentation, diagnosis and resource use may have clinical and social implications for people with dementia and their families, in addition to the challenges of the process of obtaining a firm diagnosis.
Speechly
Catherine M
CM
Projects, Research and Development Unit, NSW and ACT Faculty, Royal Australian College of General Practitioners, Sydney, NSW.
Bridges-Webb
Charles
C
Passmore
Erin
E
D000368:Aged; D001315:Australia; D017028:Caregivers; D019091:Critical Pathways / Q000706:statistics & numerical data; D003430:Cross-Sectional Studies; D003704:Dementia / Q000175:diagnosis*; D003954:Diagnostic Services / Q000706:statistics & numerical data*; D005260:Female; D019538:Health Care Surveys; D006707:Homes for the Aged; D006801:Humans; D008297:Male; D008875:Middle Aged; D017060:Patient Satisfaction; D010821:Physicians, Family; D010818:Practice Patterns, Physicians'; D012017:Referral and Consultation