title: Conducting a qualitative culture study of pediatric palliative care.
abstract: While conducting a grounded theory study of Chinese American and Mexican American families' experiences in pediatric palliative care, we encountered a number of unanticipated challenges regarding project development, Institutional Review Boards, recruitment, data collection, and data analysis. In this article, we describe our experiences, strategies, and insights for the benefit of other researchers and clinicians in the field.
authors.affiliation: Department of Family Health Care Nursing, University of California-San Francisco, San Francisco, California 94143-0606, USA. betty.davies@nursing.ucsf.edu
authors.forename: Betty
authors.initials: B
authors.lastname: Davies
authors.forename: Judith
authors.initials: J
authors.lastname: Larson
authors.forename: Nancy
authors.initials: N
authors.lastname: Contro
authors.forename: Carlos
authors.initials: C
authors.lastname: Reyes-Hailey
authors.forename: Arthur R
authors.initials: AR
authors.lastname: Ablin
authors.forename: Catherine A
authors.initials: CA
authors.lastname: Chesla
authors.forename: Barbara
authors.initials: B
authors.lastname: Sourkes
authors.forename: Harvey
authors.initials: H
authors.lastname: Cohen
mesh_terms: D001213:Asian; D002648:Child; D003431:Cross-Cultural Comparison; D054521:Cultural Competency; D006801:Humans; D017058:Mexican Americans; D010166:Palliative Care / Q000379:methods*; D010372:Pediatrics / Q000379:methods*; D036301:Qualitative Research