Transition to adulthood: validation of the Rotterdam Transition Profile for young adults with cerebral palsy and normal intelligence.
The aim of this study was to investigate the validity of the Rotterdam Transition Profile (RTP) to describe the transition process from childhood to adulthood in young adults with cerebral palsy (CP). Participants were recruited from rehabilitation centres and hospital departments of rehabilitation. In total, 81 young adults (47 males, 34 females) with CP and normal intelligence participated (mean age 20y 5mo [SD 1y 4mo] range 18-22y; 95% spastic CP, 48% hemiplegia, 38% diplegia, 14% quadriplegia; 78% Gross Motor Function Classification System Level I, 83% Manual Ability Classification System Level I). The RTP and the Assessment of Life Habits questionnaire are used to measure transition and functioning in daily activities and participation. Almost all participants were in the transition process or had reached an independent adult lifestyle (ranging from 60-100%, housing 42%). Compared with able-bodied peers, young adults with CP lagged behind in their development in housing (25 vs 36%; p<0.05), employment (33 vs 49%; p<0.05), and intimate relationships (37 vs 76%; p<0.01). Associations were found between the phase of transition and age, parents' level of education, gross motor functioning, manual ability, level of education, and level of functioning in daily activities and participation. The RTP is a valid tool to gain more insight into the transition process, at the individual as well as at group level.
Donkervoort
Mireille
M
Department of Rehabilitation Medicine, Erasmus MC, University Medical Centre, Rotterdam, The Netherlands.
Wiegerink
Diana J H G
DJ
van Meeteren
Jetty
J
Stam
Henk J
HJ
Roebroeck
Marij E
ME
D000203:Activities of Daily Living / Q000523:psychology*; D000293:Adolescent; D002547:Cerebral Palsy / Q000175:diagnosis* / Q000523:psychology / Q000534:rehabilitation*; D004185:Disability Evaluation; D006301:Health Services Needs and Demand; D006798:Housing; D006801:Humans; D007360:Intelligence; D007398:Interpersonal Relations; D008019:Life Style; D008137:Longitudinal Studies; D051346:Mobility Limitation; D009426:Netherlands; D012016:Reference Values; D012050:Rehabilitation, Vocational; D012917:Social Adjustment; D011795:Surveys and Questionnaires; D055815:Young Adult