title: Partners in care: together for kids: Florida's model of pediatric palliative care.
abstract: BACKGROUND
  Many children with life-limiting illnesses in the United States could benefit from pediatric palliative care. However, national, state, and local barriers exist that hinder provision. One national barrier is the Medicare hospice reimbursement regulation that limits the provision of government subsidized hospice care to the final 6 months of life. In response to the critical need to provide palliative care earlier in children's illnesses, Florida became the first state to develop and implement an innovative model of care that provides services from the point of diagnosis onward, thereby waiving the 6-month reimbursement rule. In July 2005, the Partners in Care: Together for Kids program began. The program relies on partnerships between state-employed care coordinators who identify the children for possible enrollment and hospice staff who provide home and community-based services.
  
  
  OBJECTIVE
  Our objective was to describe Florida's experiences in designing, implementing, and operating the program.
  
  
  METHODS
  Surveys were conducted with parents, hospices, and state agencies. Enrollment trends were identified using administrative data.
  
  
  RESULTS
  As of January 2008, 468 children have been enrolled in the program. Approximately 85% of parents report they are satisfied with the program and 95% of parents would recommend the program.
  
  
  CONCLUSIONS
  Florida's program is the first in the nation to provide government-subsidized pediatric palliative care from the point of diagnosis onwards. Lessons learned from Florida's experiences will help guide other states and health plans that desire to implement a similar model of care.
authors.affiliation: Department of Epidemiology, University of Florida, Gainesville, Florida 32610, USA. cak@ichp.ufl.edu
authors.forename: Caprice A
authors.initials: CA
authors.lastname: Knapp
authors.forename: Vanessa L
authors.initials: VL
authors.lastname: Madden
authors.forename: Charlotte M
authors.initials: CM
authors.lastname: Curtis
authors.forename: Phyllis J
authors.initials: PJ
authors.lastname: Sloyer
authors.forename: I-Chan
authors.initials: IC
authors.lastname: Huang
authors.forename: Lindsay A
authors.initials: LA
authors.lastname: Thompson
authors.forename: Elizabeth A
authors.initials: EA
authors.lastname: Shenkman
mesh_terms: D002648:Child; D003299:Cooperative Behavior; D005380:Financing, Government; D005431:Florida; D019538:Health Care Surveys; D006738:Hospices; D006776:Hospitals, Pediatric; D006801:Humans; D019982:Organizational Case Studies; D010166:Palliative Care / Q000458:organization & administration*; D010372:Pediatrics; D016730:Program Development