title: Quality of life in young people with cystic fibrosis: effects of hospitalization, age and gender, and differences in parent/child perceptions.
abstract: BACKGROUND
  The Cystic Fibrosis Questionnaire-Revised version (CFQ-R) was used to evaluate age/gender effects on quality of life (QOL) in Australian young people with cystic fibrosis (CF) who were inpatients/outpatients aged 6-18 years. Parent/child agreement was also examined.
  
  
  METHODS
  The CFQ-R was completed by 18 outpatients, and 15 inpatients at admission for an acute pulmonary exacerbation to a tertiary hospital, Brisbane, Australia, as well as by parents of those aged 6-13 years.
  
  
  RESULTS
  Inpatients scored significantly lower than outpatients for the CFQ-R domains 'emotional state', 'social', 'body image' and 'respiratory symptoms'. Young people aged 6-13 years scored significantly better than those aged 14-18 years for 'emotional state', 'body image' and 'treatment burden'. Women perceived less 'treatment burden' than did men. Young people aged 6-13 years perceived less 'treatment burden' than did their parents. A significant interaction occurred between child/parent report and gender for 'emotional state' and 'eating disturbances'.
  
  
  CONCLUSIONS
  The CFQ-R found differences between inpatients and outpatients and between younger and older paediatric patients with CF, and between parent and child perceptions of QOL.
authors.affiliation: School of Health and Rehabilitation Sciences, The University of Queensland, Queensland 4072, Australia.
authors.forename: M
authors.initials: M
authors.lastname: Hegarty
authors.forename: J
authors.initials: J
authors.lastname: Macdonald
authors.forename: P
authors.initials: P
authors.lastname: Watter
authors.forename: C
authors.initials: C
authors.lastname: Wilson
mesh_terms: D000293:Adolescent; D000367:Age Factors; D001294:Attitude to Health; D001828:Body Image; D002648:Child; D002673:Child, Hospitalized / Q000523:psychology*; D017281:Cost of Illness; D003550:Cystic Fibrosis / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D009752:Nutritional Status; D010290:Parents / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology*; D011793:Queensland; D012737:Sex Factors; D011795:Surveys and Questionnaires