title: The impact of paediatric tracheostomy on both patient and parent.
abstract: OBJECTIVE
  We set out to assess the impact of paediatric tracheostomy, performed in a central London hospital, on patients and their families.
  
  
  METHODS
  We conducted structured interviews with caregivers of tracheostomised children using the Pediatric Tracheotomy Health Status Instrument during all in-patient admissions for airway endoscopy over a 6-month period.
  
  
  RESULTS
  Completed questionnaires were received from 26 caregivers, 7 (27%) of whose children had been successfully decannulated. Carers reported adverse effects on all aspects of their quality of life, including sleep, relationships, social life and ability to work. The families included in the study had gross household incomes below the mean for SE London. There is a shortfall in the provision of home nursing when compared with the needs of the caregivers.
  
  
  CONCLUSIONS
  Tracheostomy has wide ranging effects on the quality of life of both the patient and their caregivers. We identified the need for better pre-operative preparation where possible, and greater support for such families in the community.
authors.affiliation: Evelina Children's Hosptial, London SE1 7EH, UK. clairehopkins@yahoo.com
authors.forename: C
authors.initials: C
authors.lastname: Hopkins
authors.forename: S
authors.initials: S
authors.lastname: Whetstone
authors.forename: T
authors.initials: T
authors.lastname: Foster
authors.forename: S
authors.initials: S
authors.lastname: Blaney
authors.forename: G
authors.initials: G
authors.lastname: Morrison
mesh_terms: D002648:Child; D002675:Child, Preschool; D015331:Cohort Studies; D017281:Cost of Illness; D005195:Family Relations; D005260:Female; D006304:Health Status; D006701:Home Nursing; D006801:Humans; D007223:Infant; D008297:Male; D020380:Needs Assessment; D010290:Parents / Q000523:psychology*; D011788:Quality of Life; D012959:Socioeconomic Factors; D014139:Tracheostomy / Q000009:adverse effects / Q000523:psychology; D006113:United Kingdom