title: Socio-ethical analysis of equity in access to nutrigenomics interventions for obesity prevention: a focus group study.
abstract: The goal of nutrigenomics is to develop nutritional interventions targeted to individual genetic make-up. Obesity is a prime candidate for nutrigenomics research. Personalized approaches to prevention of diseases associated with obesity may be available in the near future. Nevertheless, in the context of limited resources, access to a nutrigenomics personalized health service raises questions around equity. Using focus groups, the present qualitative research study provides empirical data on ethical concerns and values surrounding the nutrigenomics-guided personalized nutrition for obesity prevention. Eight focus groups were convened including 27 healthy individuals and 21 individuals who self-identified as obese or at risk of obesity. The transcripts of the focus group were analyzed according to the qualitative method of grounded theory. Responsibility, reciprocity, and solidarity emerged as the key ethical criteria perceived by the respondents to be significant in terms of how health professionals should determine access to personalized nutrition services. Still, exclusion of individuals from specific nutrigenomic services is likely to conflict with the imperatives of medical deontology and contemporary social consensus. The representation of equity in this paper is novel: it considers the intersection of nutrigenomics and personalized nutritional interventions specifically in the context of limited public resources for health services.
authors.affiliation: CARTaGENE, Université de Montréal, Montréal, Québec, Canada.
authors.forename: Lise
authors.initials: L
authors.lastname: Lévesque
authors.forename: Vural
authors.initials: V
authors.lastname: Ozdemir
authors.forename: Béatrice
authors.initials: B
authors.lastname: Godard
mesh_terms: D017144:Focus Groups; D006297:Health Services Accessibility / Q000941:ethics*; D006801:Humans; D054647:Nutrigenomics / Q000941:ethics*; D009765:Obesity / Q000517:prevention & control*; D012307:Risk Factors; D012959:Socioeconomic Factors