Ethics and biobanks.
Biobank research has been the focus of great interest of scholars and regulatory bodies who have addressed different ethical issues. On the basis of a review of the literature it may be concluded that, regarding some major themes in this discussion, a consensus seems to emerge on the international scene after the regular exchange of arguments in scientific journals. Broad or general consent is emerging as the generally preferred solution for biobank studies and straightforward instructions for coding will optimise privacy while facilitating research that may result in new methods for the prevention of disease and for medical treatment. The difficult question regarding the return of information to research subjects is the focus of the current research, but a helpful analysis of some of the issues at stake and concrete recommendations have recently been suggested.
Hansson
M G
MG
1Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics, Uppsala University, Uppsala Science Park, Uppsala SE-751 85, Sweden. Mats.Hansson@crb.uu.se
D018070:Biological Specimen Banks / Q000941:ethics* / Q000458:organization & administration; D003219:Confidentiality; D028744:Ethics Committees, Research; D006801:Humans; D007258:Informed Consent; D012106:Research