title: 'A life on hold': adolescents' experiences of stem cell transplantation in a long-term perspective.
abstract: Stem cell transplantation is one of the treatment methods for cancer in children and adolescents which has resulted in a positive outcome. Unfortunately this method of treatment brings with it a number of late effects such as short stature, cognitive effects and infertility. However, a majority of children and adolescents experience a good quality of life. By examining their medical records this study has gained a deeper understanding of the situation for the minority of young people who describe themselves as suffering severe mental distress which they relate to their illness and treatment. The population comprised seven adolescents who sought psychotherapeutic support several years after treatment. They describe how they are affected by the feeling of being different, the loss of contact with friends and their dependence on parents. The study points to the need for long-term psychosocial support for children and adolescents who have undergone stem cell transplantation.
authors.affiliation: Department of Health Social Work, Karolinska University Hospital, Stockholm University, Stockholm, Sweden. Ulla.Forinder@socarb.su.se
authors.forename: Ulla
authors.initials: U
authors.lastname: Forinder
authors.forename: Ebba
authors.initials: E
authors.lastname: Posse
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000367:Age Factors; D001294:Attitude to Health; D017281:Cost of Illness; D005260:Female; D033062:Friends / Q000523:psychology; D006301:Health Services Needs and Demand; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D009369:Neoplasms / Q000523:psychology / Q000628:therapy; D015404:Nursing Methodology Research; D010290:Parents / Q000523:psychology; D000297:Psychology, Adolescent; D011613:Psychotherapy; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology; D012189:Retrospective Studies; D012944:Social Support; D033581:Stem Cell Transplantation / Q000009:adverse effects / Q000523:psychology*; D013315:Stress, Psychological / Q000209:etiology / Q000517:prevention & control / Q000523:psychology; D013548:Sweden