title: Advocacy and hope for the patient with pityriasis rubra pilaris.
abstract: Pityriasis rubra pilaris (PRP) is a rare skin disease that can cause severe physical and psychological manifestations. A short case study of an adult with PRP who was denied access to medications and his journey towards improved health is discussed. Through advocacy and support, health care providers can make a difference in the care of patients with PRP and improve their quality of life.
authors.affiliation: St. Luke's Hospital & Health Network, Bethlehem, PA, USA.
authors.forename: Kathy J
authors.initials: KJ
authors.lastname: Nunemacher
mesh_terms: D000911:Antibodies, Monoclonal / Q000191:economics / Q000627:therapeutic use; D061067:Antibodies, Monoclonal, Humanized; D001294:Attitude to Health; D016527:Drug Costs / Q000706:statistics & numerical data; D004348:Drug Labeling; D017850:Economics, Pharmaceutical; D006297:Health Services Accessibility / Q000191:economics*; D006801:Humans; D019458:Insurance Coverage / Q000191:economics*; D008297:Male; D008329:Managed Care Programs / Q000191:economics*; D008875:Middle Aged; D017059:Models, Econometric; D009013:Morale; D010344:Patient Advocacy; D010361:Patients; D010916:Pityriasis Rubra Pilaris / Q000188:drug therapy / Q000523:psychology; D011788:Quality of Life / Q000523:psychology; D035583:Rare Diseases; D012944:Social Support
chemical_list: D000911:Antibodies, Monoclonal; D061067:Antibodies, Monoclonal, Humanized; C472181:efalizumab