title: Patient perspective: what do palliative care patients think about their care?
abstract: Developing accountable and appropriate care services depends on listening to the views of service users. This nurse-led, qualitative study explored 10 palliative care patients' views of their care in hospital and at home using non-standard interviews. A total of 10 categories emerged, some of which are not reflected well in extant literature. However, some smaller studies show comparable results, which confirms the validity of these findings. These findings can inform the planning of services and are repeatable and generalizable. Implications for nursing and planning for palliative care are discussed.
authors.affiliation: Newcastle upon Tyne Hospitals Foundation Trust, United Kingdom. aconner@hartle-poolhospice.co.uk
authors.forename: Alison
authors.initials: A
authors.lastname: Conner
authors.forename: Sarah
authors.initials: S
authors.lastname: Allport
authors.forename: Julie
authors.initials: J
authors.lastname: Dixon
authors.forename: Ann-Marie
authors.initials: AM
authors.lastname: Somerville
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology; D002983:Clinical Competence / Q000592:standards; D003142:Communication; D003266:Continuity of Patient Care; D004645:Empathy; D004739:England; D006301:Health Services Needs and Demand; D006699:Home Care Services / Q000458:organization & administration; D006760:Hospitalization; D006801:Humans; D009013:Morale; D033262:Narration; D009720:Nurse Clinicians / Q000458:organization & administration; D015404:Nursing Methodology Research; D010166:Palliative Care / Q000458:organization & administration / Q000523:psychology*; D017060:Patient Satisfaction; D024382:Professional Role / Q000523:psychology; D011369:Professional-Patient Relations; D036301:Qualitative Research; D011787:Quality of Health Care; D011795:Surveys and Questionnaires