title: Advancing patient-centered pediatric care through health information exchange: update from the American Health Information Community Personalized Health Care Workgroup.
abstract: The Personalized Health Care Workgroup of the American Health Information Community was formed to foster a broad, community-based approach to facilitate the incorporation of interoperable, clinically useful, genetic/genomic information and analytical tools into electronic health records, to support clinical decision-making. The Personalized Health Care Workgroup has developed a series of use cases that outline the informational needs of multiple stakeholders (eg, patients, clinicians, organizations, and systems) and describe the information systems necessary to connect these stakeholders at multiple levels. These use case scenarios offer a guide for standardized data elements and architecture that enable interoperability (content sharing) among different formats of patient electronic health records.
authors.affiliation: Department of Health and Human Services, Hubert H. Humphrey Building, Suite 445F, 200 Independence Ave, SW, Washington, DC 20201, USA.
authors.forename: Kristin A
authors.initials: KA
authors.lastname: Brinner
authors.forename: Gregory J
authors.initials: GJ
authors.lastname: Downing
mesh_terms: D002648:Child; D002662:Child Health Services / Q000331:legislation & jurisprudence* / Q000458:organization & administration; D003153:Community Health Services / Q000331:legislation & jurisprudence* / Q000458:organization & administration; D054626:Consumer Health Information / Q000331:legislation & jurisprudence*; D003299:Cooperative Behavior; D004582:Electronics, Medical / Q000295:instrumentation*; D006801:Humans; D007400:Interprofessional Relations; D018802:Patient-Centered Care / Q000331:legislation & jurisprudence* / Q000458:organization & administration; D010372:Pediatrics / Q000331:legislation & jurisprudence*; D014481:United States