title: When the patient and family are the experts, will the nurses listen?
authors.forename: Phyllis G
authors.initials: PG
authors.lastname: Cooper
mesh_terms: D000223:Adaptation, Psychological; D003142:Communication; D003266:Continuity of Patient Care / Q000458:organization & administration*; D006801:Humans; D009223:Myotonic Dystrophy / Q000235:genetics / Q000517:prevention & control / Q000523:psychology*; D024802:Nurse's Role / Q000523:psychology*; D009723:Nurse-Patient Relations; D010358:Patient Participation / Q000379:methods / Q000523:psychology*