title: Parental experiences of the newborn hearing screening programme in Wales: a postal questionnaire survey.
abstract: OBJECTIVE
  To evaluate parental experiences and satisfaction with Newborn Hearing Screening Wales, which was set up over 18 months in 2003-04 to provide an all-Wales neonatal hearing screening programme.
  
  
  METHODS
  A postal questionnaire was developed and piloted, then distributed to mothers of babies who had recently been screened.
  
  
  RESULTS
  General satisfaction levels were high. Women were less satisfied with the information provided than with staff or the test itself. Women whose babies had had no clear responses on initial screening were significantly more likely to feel that the test upset their baby (P<0.05) and that there were things they were unhappy with about the screening programme (P<0.01). These women also reported significantly more anxiety after screening than women whose babies had clear initial responses (P<0.01).
  
  
  CONCLUSIONS
  The survey results provide a baseline against which future user satisfaction surveys of neonatal hearing screening programmes can be evaluated. They highlight significant differences in user satisfaction between those whose babies had clear responses on initial screening and those who did not, and point to areas where improvement may be possible.
authors.affiliation: Screening Services Wales, Cardiff, UK. rosemary.fox@velindre-tr.wales.nhs.uk
authors.forename: Rosemary
authors.initials: R
authors.lastname: Fox
authors.forename: Sally
authors.initials: S
authors.lastname: Minchom
mesh_terms: D001007:Anxiety / Q000453:epidemiology / Q000209:etiology; D005260:Female; D019538:Health Care Surveys; D006297:Health Services Accessibility; D006320:Hearing Tests / Q000379:methods / Q000523:psychology / Q000592:standards* / Q000706:statistics & numerical data; D006801:Humans; D007231:Infant, Newborn; D009035:Mothers / Q000523:psychology*; D015997:Neonatal Screening / Q000523:psychology / Q000592:standards* / Q000706:statistics & numerical data; D009775:Obstetrics and Gynecology Department, Hospital / Q000592:standards; D010043:Outcome and Process Assessment, Health Care; D010353:Patient Education as Topic / Q000592:standards; D017060:Patient Satisfaction / Q000706:statistics & numerical data*; D011369:Professional-Patient Relations; D016730:Program Development; D015397:Program Evaluation; D012017:Referral and Consultation / Q000706:statistics & numerical data; D013222:State Medicine / Q000592:standards; D011795:Surveys and Questionnaires; D019472:Universal Health Insurance; D014852:Wales