title: Why might people donate tissue for cancer research? Insights from organ/tissue/blood donation and clinical research.
abstract: Little is known about why patients with cancer do or do not donate their biopsied/cancerous tissue to research. A review of the literature on motivations to participate in clinical research and to donate tissues/organs for therapeutic use may provide some insights relevant to tumour banking research. While more research is necessary, a better understanding of the factors that motivate patients to give or refuse consent to tumour banking may ultimately improve consent practices, public trust and donation rates.
authors.affiliation: Centre for Values, Ethics and the Law in Medicine, University of Sydney, Sydney, Australia. renata_axler@hotmail.com
authors.forename: Renata E
authors.initials: RE
authors.lastname: Axler
authors.forename: Rob
authors.initials: R
authors.lastname: Irvine
authors.forename: Wendy
authors.initials: W
authors.lastname: Lipworth
authors.forename: Bronwen
authors.initials: B
authors.lastname: Morrell
authors.forename: Ian H
authors.initials: IH
authors.lastname: Kerridge
mesh_terms: D035843:Biomedical Research; D006801:Humans; D009042:Motivation; D009369:Neoplasms / Q000473:pathology*; D010361:Patients / Q000523:psychology*; D014015:Tissue Banks; D009927:Tissue and Organ Procurement