title: Lifeworld-led healthcare is more than patient-led care: an existential view of well-being.
abstract: In this paper we offer an appreciation and critique of patient-led care as expressed in current policy and practice. We argue that current patient-led approaches hinder a focus on a deeper understanding of what patient-led care could be. Our critique focuses on how the consumerist/citizenship emphasis in current patient-led care obscures attention from a more fundamental challenge to conceptualise an alternative philosophically informed framework from where care can be led. We thus present an alternative interpretation of patient-led care that we call 'lifeworld-led care', and argue that such lifeworld-led care is more than the general understanding of patient-led care. Although the philosophical roots of our alternative conceptualisation are not new, we believe that it is timely to re-consider some of the implications of these perspectives within current discourses of patient-centred policies and practice. The conceptualisation of lifeworld-led care that we develop includes an articulation of three dimensions: a philosophy of the person, a view of well-being and not just illness, and a philosophy of care that is consistent with this. We conclude that the existential view of well-being that we offer is pivotal to lifeworld-led care in that it provides a direction for care and practice that is intrinsically and positively health focused in its broadest and most substantial sense.
authors.affiliation: Växjö University, Vaxjo, Sweden. karin.dahlberg@vxu.se
authors.forename: Karin
authors.initials: K
authors.lastname: Dahlberg
authors.forename: Les
authors.initials: L
authors.lastname: Todres
authors.forename: Kathleen
authors.initials: K
authors.lastname: Galvin
mesh_terms: D001294:Attitude to Health; D005086:Existentialism; D014943:Global Health; D006808:Humanism; D006801:Humans; D010358:Patient Participation; D018802:Patient-Centered Care; D010686:Philosophy, Medical; D012945:Social Values