title: Patient participation in emergency care - a phenomenographic study based on patients' lived experience.
abstract: International guidelines promote patient participation in health care. When patients participate in their care they experience greater satisfaction. Studies have shown that patients in emergency departments express dissatisfaction with their care, and it was therefore important to study how patients understand and conceptualize their participation. The aim of this study was to describe patients' qualitatively different conceptions of patient participation in their care in an emergency department. Based on a lifeworld perspective, nine interviews were performed with patients in an emergency department. The phenomenographic analysis shows that participation by patients means contact with the emergency department staff in three categories of conceptions: being acknowledged; struggling to become involved; and having a clear space. The different conceptions of patient participation give us a deeper understanding of how patients may experience their care, and this result may provide a foundation for developing nursing practice and the quality of health care in line with international guidelines.
authors.affiliation: School of Health Sciences and Social Work, Växjö University, Växjö, Sweden. Catharina.Frank@mdh.se
authors.forename: Catharina
authors.initials: C
authors.lastname: Frank
authors.forename: Margareta
authors.initials: M
authors.lastname: Asp
authors.forename: Karin
authors.initials: K
authors.lastname: Dahlberg
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D003299:Cooperative Behavior; D004636:Emergency Service, Hospital; D004638:Emergency Treatment / Q000379:methods / Q000523:psychology; D005260:Female; D006786:Hospitals, Urban; D006801:Humans; D008297:Male; D008875:Middle Aged; D015404:Nursing Methodology Research; D010358:Patient Participation / Q000379:methods / Q000523:psychology; D028701:Patient Rights; D017410:Practice Guidelines as Topic; D011369:Professional-Patient Relations; D036301:Qualitative Research; D011795:Surveys and Questionnaires; D013548:Sweden