title: [When should we refer patients with cystic fibrosis to a lung transplantation program].
abstract: Since most patients with cystic fibrosis (CF) die from respiratory failure, lung transplantation remains for many of them the ultimate treatment. The decision to put a patient on the transplantation waiting list is based on a list of criteria from international guidelines. We aimed to determine if a survival score could help determine when a CF patient has to be referred to a transplantation program. We applied this score to a small number of consecutive patients from our adult CF clinic, but found that it was of limited value for individual decision. Awareness of international guidelines and clinical judgement are essential to refer CF patients at proper time for lung transplantation.
authors.affiliation: Service de médecine interne génerale, HUG, 1211 Genève 14. priscille.geiser@hcuge.ch
authors.forename: Priscille
authors.initials: P
authors.lastname: Geiser-Vrtek
authors.forename: Paola Marina
authors.initials: PM
authors.lastname: Soccal
authors.forename: Thierry
authors.initials: T
authors.lastname: Rochat
mesh_terms: D003550:Cystic Fibrosis / Q000150:complications / Q000401:mortality / Q000601:surgery*; D005541:Forced Expiratory Volume; D006469:Hemoptysis / Q000209:etiology; D006801:Humans; D006935:Hypercapnia / Q000209:etiology; D006976:Hypertension, Pulmonary / Q000209:etiology; D016040:Lung Transplantation; D018579:Patient Selection; D011030:Pneumothorax / Q000209:etiology; D017410:Practice Guidelines as Topic; D011379:Prognosis; D012017:Referral and Consultation; D012131:Respiratory Insufficiency / Q000209:etiology; D012307:Risk Factors; D016019:Survival Analysis; D014850:Waiting Lists