title: Review article: Use of renal registry data for research, health-care planning and quality improvement: what can we learn from registry data in the Asia-Pacific region?
abstract: We review renal registry data from the Asia-Pacific region with an emphasis on their uses in health care and in dialysis care in particular. The review aims to demonstrate the information value of registry data. While renal registry provides a useful data resource for epidemiological research, there are severe methodological limitations in its application for analytical or therapeutic research. However, it is the use of renal registry data for public health and health-care management purposes that registry really comes into its own, and it is primarily for these that governments have invested in national patient and disease registries. We apply data from several renal registries in the Asia-Pacific region to illustrate its wide application for planning dialysis services, for evaluating dialysis practices and health outcomes, with a view to improving the quality of dialysis care. In the course of preparing the review, we have found that the quality and accessibility of renal registry data were highly variable across the region. Given the value of renal registry, every country in the Asia-Pacific region should establish one or should ensure that their current registries are better resourced and developed. Greater data sharing and collaboration among registries in the region could help advance the nephrology to serve our patients better.
authors.affiliation: Clinical Research Centre, Kuala Lumpur Hospital, Kuala Lumpur, Malaysia. limto@crc.gov.my
authors.forename: Teck-Onn
authors.initials: TO
authors.lastname: Lim
authors.forename: Adrian
authors.initials: A
authors.lastname: Goh
authors.forename: Yam-Ngo
authors.initials: YN
authors.lastname: Lim
authors.forename: Zaki
authors.initials: Z
authors.lastname: Morad
mesh_terms: D000328:Adult; D000367:Age Factors; D001208:Asia / Q000453:epidemiology; D044362:Australasia; D019985:Benchmarking; D003299:Cooperative Behavior; D003362:Cost-Benefit Analysis; D005260:Female; D017048:Health Care Costs; D006285:Health Planning / Q000592:standards / Q000706:statistics & numerical data; D006302:Health Services Research / Q000592:standards / Q000706:statistics & numerical data; D006801:Humans; D007391:International Cooperation; D007674:Kidney Diseases / Q000191:economics / Q000208:ethnology / Q000401:mortality / Q000628:therapy*; D008297:Male; D008875:Middle Aged; D010043:Outcome and Process Assessment, Health Care / Q000592:standards / Q000706:statistics & numerical data; D017410:Practice Guidelines as Topic; D011787:Quality of Health Care / Q000592:standards / Q000706:statistics & numerical data; D012042:Registries / Q000592:standards / Q000706:statistics & numerical data; D006435:Renal Dialysis / Q000009:adverse effects / Q000191:economics / Q000401:mortality / Q000592:standards; D012107:Research Design; D012111:Residence Characteristics; D012737:Sex Factors; D013997:Time Factors; D016896:Treatment Outcome