Re-entering life: paediatric acute myeloid leukaemia at one year post treatment.
To date, there is scant psychosocial research on the experience of childhood AML. This article presents findings from the perspective of the child patients, their parents and siblings at one year post-treatment. The findings highlight challenges associated with re-entering life post-treatment with an emphasis on the ongoing sense of uncertainty, the changed sense of normalcy, and the difficulty of returning to the hospital for check-ups. A number of recommendations are made including the desirability of providing hospital space for check-ups away from the treatment area and the need for ongoing reassurance and support.
McGrath
Pam
P
School of Nursing and Health, Central Queensland University, Rockhampton.
Suppiah
Ram
R
Patton
Mary Anne
MA
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000739:Anecdotes as Topic; D001294:Attitude to Health; D001315:Australia; D005260:Female; D006694:Holistic Health; D006801:Humans; D015479:Leukemia, Myelomonocytic, Acute / Q000451:nursing / Q000523:psychology*; D008137:Longitudinal Studies; D008297:Male; D015404:Nursing Methodology Research; D010287:Parent-Child Relations; D016487:Parenting / Q000523:psychology*; D012801:Sibling Relations; D012944:Social Support; D013315:Stress, Psychological / Q000517:prevention & control; D011795:Surveys and Questionnaires