Towards more patient centred healthcare: A new Consumer Quality Index instrument to assess patients' experiences with breast care.
OBJECTIVE
To develop a Consumer Quality Index (CQ-index) Breast Care instrument that measures quality of care from the perspective of patients with (suspicion of) breast cancer.


METHODS
To develop a pilot questionnaire, three focus group discussions with breast cancer patients were performed. The questionnaire was sent to 1197 patients. We performed psychometric and descriptive analyses to optimise the new instrument.


RESULTS
Focus group discussions revealed nine main themes related to breast care quality. Psychometric analyses resulted in 15 reliable scales. The final instrument consisted of 152 items, of which 118 items regarded patients' experiences. The aspect with the highest need for quality improvement was informing patients about a second opinion.


CONCLUSIONS
The CQ-index Breast Care (CQI-BC) instrument provides a good starting point for further research on the quality of breast care seen from the perspective of patients. The newly developed instrument can be used by different stakeholders for future quality monitoring.
Damman
Olga C
OC
NIVEL (Netherlands Institute for Health Services Research), Department of Demand-Driven Healthcare, P.O. Box 1568, Utrecht 3500 BN, The Netherlands. o.damman@nivel.nl
Hendriks
Michelle
M
Sixma
Herman J
HJ
D000328:Adult; D000368:Aged; D001943:Breast Neoplasms / Q000175:diagnosis / Q000628:therapy*; D005260:Female; D017144:Focus Groups; D006801:Humans; D008875:Middle Aged; D009426:Netherlands; D017060:Patient Satisfaction; D018802:Patient-Centered Care / Q000592:standards*; D011594:Psychometrics; D011785:Quality Assurance, Health Care / Q000379:methods; D019984:Quality Indicators, Health Care; D011787:Quality of Health Care; D011795:Surveys and Questionnaires; D055815:Young Adult