title: Information needs of adult patients 50 or older with newly diagnosed acute myeloid leukemia.
abstract: When faced with a life-threatening illness such as acute myeloid leukemia (AML), patients may feel overwhelmed with making treatment decisions. We recruited 31 consecutive English-speaking patients aged > or = 50 with newly diagnosed AML. We explored patient information needs, decision-making roles, and perceptions about prognosis. Most patients felt that they had enough information about the diagnosis and treatment options and that the doctor spent the right amount of time with them. The majority of patients preferred a passive or collaborative decision-making role. Almost half the patients did not know their estimated 6-month prognosis, and 17% felt it was 90% or better.
authors.affiliation: Department of Medicine, Baycrest Centre for Geriatric Care, University Health Network, University of Toronto, Toronto, Canada.
authors.forename: T
authors.initials: T
authors.lastname: Yogaparan
authors.forename: A
authors.initials: A
authors.lastname: Panju
authors.forename: M
authors.initials: M
authors.lastname: Minden
authors.forename: J
authors.initials: J
authors.lastname: Brandwein
authors.forename: H Z
authors.initials: HZ
authors.lastname: Mohamedali
authors.forename: S M H
authors.initials: SM
authors.lastname: Alibhai
mesh_terms: D006801:Humans; D007255:Information Services; D015470:Leukemia, Myeloid, Acute / Q000175:diagnosis*; D008875:Middle Aged; D010353:Patient Education as Topic; D011795:Surveys and Questionnaires