title: [Patient participation in defining and assigning importance to treatment outcomes--status quo and potential developments].
abstract: In health care, patient participation takes place on different levels. This article gives two examples of possible patient involvement on the micro level (evidence-based patient information and shared decision making) and, as examples for the macro level, a description of the opportunities for patient participation in decision making processes of the Federal Joint Committee (G-BA) and the Institute for Quality and Efficiency in Health Care in Germany (IQWiG). Future possibilities to enhance patient participation on the micro level include more rigorous evaluation of patient information and decision aids. The involvement of professional caregivers in the development of these tools might improve their use in health care. On the macro level, participation of patients in decision making should be further established (e.g., by increasing their resources). The involvement of patients in the weighting of patient-important outcomes before health technology assessment takes place could be a further enhancement.
authors.affiliation: Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen (IQWiG), Köln. fueloep.scheibler@iqwig.de
authors.forename: Fülöp
authors.initials: F
authors.lastname: Scheibler
authors.forename: Inger M
authors.initials: IM
authors.lastname: Scheike
authors.forename: Charalabos-Markos
authors.initials: CM
authors.lastname: Dintsios
mesh_terms: D000047:Academies and Institutes / Q000458:organization & administration; D003657:Decision Making; D019317:Evidence-Based Medicine; D005858:Germany; D006801:Humans; D007391:International Cooperation; D010358:Patient Participation / Q000379:methods* / Q000639:trends; D011369:Professional-Patient Relations; D016896:Treatment Outcome