title: Development and evaluation of an instrument to measure parental satisfaction with quality of care in neonatal follow-up.
abstract: OBJECTIVE
  The goal of this study was to develop and subsequently evaluate the psychometric properties of a new discriminative instrument to measure parental satisfaction with the quality of care provided in neonatal follow-up (NFU) programs.
  
  
  METHODS
  The methodological framework for developing and evaluating measurement scales described by Streiner and Norman (Health Measurement Scales: A Practical Guide to Their Development and Use. 3rd ed. New York: Oxford University Press; 2003) was used for the study. Informing the phases of the research was a sample of 24 health care professionals and 381 parents who use NFU services.
  
  
  RESULTS
  A comprehensive list of items representing the construct, parental satisfaction with quality of care, was generated from published reliable and valid instruments, research studies, focus groups with health care experts, and focus groups with parents. Using a clinimetric approach, the 62 items generated were reduced to 39 items based on parents' ratings of importance and refinement of the items by the research team. After content validation and pretesting, the instrument was tested with parents and underwent item-analysis. The resulting 16-item instrument was composed of 2 subscales, Process and Outcomes. Evaluation of the instrument's psychometric properties indicated adequate test-retest reliability (intraclass correlation coefficient = 0.72) and internal consistency (Process subscale, alpha = 0.77; Outcomes subscale, alpha = 0.90; overall instrument, alpha = 0.90), as well as good content and construct validity. A confirmatory factor analysis supported the multidimensionality of the construct.
  
  
  CONCLUSIONS
  This new instrument provides clinicians and policy-makers with a tool to assess parental satisfaction with the quality of care in NFU, so areas of dissatisfaction can be identified and changes implemented to optimize service provision.
authors.affiliation: School of Nursing, McMaster University, Hamilton, Canada. buttml@mcmaster.ca
authors.forename: Michelle L
authors.initials: ML
authors.lastname: Butt
authors.forename: Janet
authors.initials: J
authors.lastname: Pinelli
authors.forename: Michael H
authors.initials: MH
authors.lastname: Boyle
authors.forename: Helen
authors.initials: H
authors.lastname: Thomas
authors.forename: Mabel
authors.initials: M
authors.lastname: Hunsberger
authors.forename: Saroj
authors.initials: S
authors.lastname: Saigal
authors.forename: David S
authors.initials: DS
authors.lastname: Lee
authors.forename: Jamie K
authors.initials: JK
authors.lastname: Fanning
authors.forename: Patricia
authors.initials: P
authors.lastname: Austin
mesh_terms: D002675:Child, Preschool; D003695:Delivery of Health Care / Q000379:methods; D005069:Evaluation Studies as Topic; D005163:Factor Analysis, Statistical; D005260:Female; D017144:Focus Groups / Q000379:methods; D005500:Follow-Up Studies; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D017063:Outcome Assessment, Health Care / Q000379:methods*; D010290:Parents; D010549:Personal Satisfaction; D011594:Psychometrics / Q000295:instrumentation* / Q000379:methods; D011787:Quality of Health Care / Q000592:standards / Q000706:statistics & numerical data*; D011795:Surveys and Questionnaires