title: A national database on children and adolescent with diabetes (e-DiCARE): results from April 2006 to June 2007.
abstract: In Malaysia, Diabetes in Children and Adolescents Registry (DiCARE) was launched nationwide in August 2006 to determine and monitor the number, the time trend of diabetes mellitus (DM) patients, their socio-demographic profiles, outcome of intervention and facilitate research using this registry. This is an on going real time register of diabetic patients < or = 20 years old via the e-DiCARE, an online registration system. To date were 240 patients notified from various states in Malaysia. The mean age was 12.51 years (1.08-19.75) and 46.4% were boys. The mean age at diagnosis was 8.31 +/- 4.13 years old with an estimated duration of diabetes of 4.32 +/- 3.55 years. A total of 166/240 (69.2%) have T1DM, 42/240 (17.5%) have T2DM and 18/240 (7.5%) have other types of DM. Basis of diagnosis was known in 162 patients with T1DM and 41 patients with T2DM. In T1DM patients, 6.0% of the girls and 19.1% boys were overweight or obese. As for T2DM, 64.3% had their BMI reported: 66.7% girls and 91.6% boys were overweight or obese. Most patients (80.4%) practiced home blood glucose monitoring. Patients were seen by dietitian (66.7%), diabetes educator (50.0%), and optometrist or ophthalmologist (45.0%). Only 10.8% attended diabetic camps. In the annual census of 117 patients, the mean HbAlc level was 10.0% + 2.2 (range 5.2 to 17.0%). The early results of DiCARE served as a starting point to improve the standard of care of DM among the young in the country.
authors.affiliation: Paediatric Department, Hospital Putrajaya, Precint 7, 62250 Putrajaya, Malaysia.
authors.forename: M Z
authors.initials: MZ
authors.lastname: Fuziah
authors.forename: Janet Y H
authors.initials: JY
authors.lastname: Hong
authors.forename: H
authors.initials: H
authors.lastname: Zanariah
authors.forename: F
authors.initials: F
authors.lastname: Harun
authors.forename: S P
authors.initials: SP
authors.lastname: Chan
authors.forename: P
authors.initials: P
authors.lastname: Rokiah
authors.forename: L L
authors.initials: LL
authors.lastname: Wu
authors.forename: R
authors.initials: R
authors.lastname: Rahmah
authors.forename: H
authors.initials: H
authors.lastname: Jamaiyah
authors.forename: A
authors.initials: A
authors.lastname: Geeta
authors.forename: W S
authors.initials: WS
authors.lastname: Chen
authors.forename: B
authors.initials: B
authors.lastname: Adam
mesh_terms: D000293:Adolescent; D000367:Age Factors; D002648:Child; D002669:Child Welfare; D016208:Databases, Factual; D003922:Diabetes Mellitus, Type 1 / Q000453:epidemiology* / Q000503:physiopathology; D003924:Diabetes Mellitus, Type 2 / Q000453:epidemiology* / Q000503:physiopathology; D005260:Female; D006801:Humans; D008296:Malaysia / Q000453:epidemiology; D008297:Male; D011159:Population Surveillance / Q000379:methods; D012042:Registries / Q000706:statistics & numerical data*