title: Parents as their infant's primary caregivers in a neonatal intensive care unit.
abstract: The aim was to explore parents' and professionals' opinions about parental performance of care in a neonatal intensive care unit. Forty-three parents and 85 nurses completed questionnaires composed of a list of 95 caregiving activities; 14 nurses and 4 neonatologists participated in four focus group interviews. Considerable differences appeared in parents' and nurses' responses about parents' participation in their infants' care. All listed activities were marked as optional by at least a few parents. Agreement was reached about parents as their infants' primary caregivers, based on individual assessment of parents' willingness and ability, with nurses acting as educators and supporters instead of caregivers.
authors.affiliation: Pediatric Nursing, Uppsala University, Uppsala, University Children's Hospital, Uppsala, Sweden. kerstin.hedberg_nyqvist@kbh.uu.se
authors.forename: Kerstin Hedberg
authors.initials: KH
authors.lastname: Nyqvist
authors.forename: Gunn
authors.initials: G
authors.lastname: Engvall
mesh_terms: D000328:Adult; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D017028:Caregivers / Q000193:education / Q000523:psychology*; D005260:Female; D017144:Focus Groups; D006801:Humans; D007224:Infant Care / Q000458:organization & administration* / Q000523:psychology; D007231:Infant, Newborn; D007363:Intensive Care Units, Neonatal / Q000458:organization & administration*; D015931:Intensive Care, Neonatal / Q000458:organization & administration; D008297:Male; D008875:Middle Aged; D017283:Neonatal Nursing / Q000458:organization & administration; D015404:Nursing Methodology Research; D009741:Nursing Staff, Hospital / Q000458:organization & administration / Q000523:psychology; D010290:Parents / Q000193:education / Q000523:psychology*; D011368:Professional-Family Relations; D012380:Role; D011795:Surveys and Questionnaires; D013548:Sweden