["Father would have never wanted this". Substituted judgement from family members about the treatment of Wilson disease patients].
Westendorp
G Wouter
GW
Universitair Medisch Centrum Utrecht, Julius Centrum voor Gezondheidswetenschappen en Eerstelijns Geneeskunde, Utrecht.
van Delden
J J M
JJ
D003657:Decision Making; D005190:Family; D006527:Hepatolenticular Degeneration / Q000150:complications* / Q000523:psychology*; D006801:Humans; D016224:Living Wills; D010166:Palliative Care / Q000941:ethics* / Q000331:legislation & jurisprudence*; D026684:Personal Autonomy