title: Privacy as an enabler, not an impediment: building trust into health information exchange.
abstract: Building privacy and security protections into health information technology systems will bolster trust in such systems and promote their adoption. The privacy issue, too long seen as a barrier to electronic health information exchange, can be resolved through a comprehensive framework that implements core privacy principles, adopts trusted network design characteristics, and establishes oversight and accountability mechanisms. The public policy challenges of implementing this framework in a complex and evolving environment will require improvements to existing law, new rules for entities outside the traditional health care sector, a more nuanced approach to the role of consent, and stronger enforcement mechanisms.
authors.affiliation: Center for Democracy and Technology (CDT) in Washington, DC, USA.
authors.forename: Deven
authors.initials: D
authors.lastname: McGraw
authors.forename: James X
authors.initials: JX
authors.lastname: Dempsey
authors.forename: Leslie
authors.initials: L
authors.lastname: Harris
authors.forename: Janlori
authors.initials: J
authors.lastname: Goldman
mesh_terms: D003219:Confidentiality / Q000331:legislation & jurisprudence*; D057286:Electronic Health Records / Q000331:legislation & jurisprudence*; D020408:Health Insurance Portability and Accountability Act; D055991:Health Records, Personal; D006801:Humans; D033181:Information Dissemination / Q000331:legislation & jurisprudence; D018907:Privacy / Q000331:legislation & jurisprudence; D014481:United States