title: Engaging patients for health information exchange.
abstract: Health information exchange (HIE) offers tremendous potential for the future, but its widespread adoption and sustainability depend upon engaging patients and earning their trust. Patients' willingness to allow their data to be shared will drive the usefulness of HIE and therefore the sustainability of regional health information organizations (RHIOs). The Massachusetts eHealth Collaborative (MAeHC) is one of a few organizations that have developed a successful community-based collaborative model, with more than a 90 percent opt-in rate among patients to participate in widespread electronic data sharing. Lessons learned from MAeHC's three pilot programs could be instructive for other HIE projects around the country.
authors.affiliation: Massachusetts eHealth Collaborative (MAeHC) in Waltham, USA. mtripathi@maehc.org
authors.forename: Micky
authors.initials: M
authors.lastname: Tripathi
authors.forename: David
authors.initials: D
authors.lastname: Delano
authors.forename: Barbara
authors.initials: B
authors.lastname: Lund
authors.forename: Lynda
authors.initials: L
authors.lastname: Rudolph
mesh_terms: D017598:Efficiency, Organizational; D055991:Health Records, Personal; D006801:Humans; D017064:Process Assessment, Health Care