title: Advocating for a parent with dementia in a long-term care facility: the process experienced by daughters.
abstract: Daughter caregivers of elders with dementia become their parents' advocates over time. This role takes on even greater importance when one or both parents are placed in a long-term care facility. This article presents the results of a qualitative study aimed at explaining how this advocacy role evolves following institutionalization. In-depth interviews were conducted with daughters (N = 14) of an institutionalized parent with dementia and selected using a theoretical sampling procedure. Data analysis using grounded theory revealed three interrelated processes that explain role transformation of the daughters: integration in the care setting, evaluation of quality of care, and development of trust. Implications for involving daughters as care partners in long-term care settings are offered.
authors.affiliation: Université de Montréal, Canada. alain.legault@umontreal.ca
authors.forename: Alain
authors.initials: A
authors.lastname: Legault
authors.forename: Francine
authors.initials: F
authors.lastname: Ducharme
mesh_terms: D000368:Aged; D017028:Caregivers / Q000523:psychology*; D003704:Dementia / Q000451:nursing*; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008134:Long-Term Care; D008297:Male; D008875:Middle Aged; D009679:Nuclear Family / Q000523:psychology*; D010290:Parents; D010344:Patient Advocacy; D011787:Quality of Health Care