title: Psychometric testing of the Caregiver Quality of Life Index-Cancer on a Taiwanese family caregiver sample.
abstract: Family caregivers' quality of life (QOL) is an important indicator for end-of-life care, but appropriate assessment tools are unavailable in Taiwan. This correlational study therefore tested the psychometric properties of the Caregiver Quality of Life Index-Cancer Mandarin version (CQOLC-M) in 359 dyads of cancer patients with terminal illness and their family caregivers from 5 teaching hospitals throughout Taiwan. Caregivers' QOL, spiritual well-being, social support, pain intensity, and economic situation were assessed using the CQOLC-M and 4 established scales. The CQOLC-M had internal consistency reliability of .87. Construct validity was supported by factor analysis, hypothesis testing, and known-group comparison. Exploratory factor analysis showed 7 underlying factors explaining 48.15% of the variance. Caregiver Quality of Life Index-Cancer Mandarin version scores correlated moderately with caregivers' social support (P < .01) and spiritual well-being (P < .01). Caregivers' QOL was inversely related to both patients' (F = 4.90; P = .008) and caregivers' average pain (t = -4.22; P < .001) in the past 24 hours. We suggest removing 4 items with factor loading of less than 0.4. Since caregivers' QOL depends on patients' and caregivers' physical dimensions, we recommend adding physical-related items to the CQOLC-M. Clinicians can improve caregivers' QOL not only by maintaining their health, social support, and spirituality but also by better managing the pain of patients with terminal illness.
authors.affiliation: Graduate Institute of Nursing, Chang Gung University, 259 Wen-Hwa 1st Road, Kwei-Shan, Tao-Yuan, Taiwan, ROC. wtang@mail.cgu.edu.tw
authors.forename: Woung-Ru
authors.initials: WR
authors.lastname: Tang
authors.forename: Siew-Tzuh
authors.initials: ST
authors.lastname: Tang
authors.forename: Chen-Yi
authors.initials: CY
authors.lastname: Kao
mesh_terms: D000328:Adult; D000704:Analysis of Variance; D001294:Attitude to Health / Q000208:ethnology; D017028:Caregivers / Q000523:psychology; D003430:Cross-Sectional Studies; D005163:Factor Analysis, Statistical; D005190:Family / Q000208:ethnology; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D019303:Multilingualism; D009369:Neoplasms / Q000208:ethnology; D009730:Nursing Assessment / Q000379:methods* / Q000592:standards; D015403:Nursing Evaluation Research; D011594:Psychometrics; D011788:Quality of Life / Q000523:psychology*; D012944:Social Support; D012959:Socioeconomic Factors; D029181:Spirituality; D011795:Surveys and Questionnaires / Q000592:standards*; D013624:Taiwan; D013727:Terminal Care / Q000523:psychology; D014175:Translating