title: Family quality of life among families with a member who has an intellectual disability: an exploratory examination of key domains and dimensions of the revised FQOL Survey.
abstract: BACKGROUND
  The Family Quality of Life Survey (FQOLS-2006) was developed as the result of increased interest in family quality of life (FQOL) among families with a member who has an intellectual disability (ID). The instrument includes nine life domains and six dimensions reflecting the main areas and characteristics of FQOL. The aim of the current study was to provide a descriptive analysis of the domains and dimensions of the survey and to explore their relationship to one another and to global satisfaction.
  
  
  METHODS
  A convenience sample of 35 participants with a family member who had ID completed the FQOLS-2006 in a large urban centre in Canada. The data were analysed using descriptive analyses.
  
  
  RESULTS
  The findings showed that although participants differentiated between different domains and dimensions, as reflected in their variability, stability was also found. For example, support from others was rated lowest across most dimensions, while family relationships and health of the family were generally rated higher.
  
  
  CONCLUSIONS
  The findings strengthen the importance of examining both the overall perception of FQOL as well as the perceptions in individual life domains. Moreover, they highlight the need to examine each life domain according to its various dimensions. In sum, the results call for further examination of the FQOLS-2006 as a useful tool for assessing FQOL and for implementing services based on it.
authors.affiliation: The Paul Baerwald School of Social Work and Social Welfare, The Hebrew University of Jerusalem, Israel.
authors.forename: S
authors.initials: S
authors.lastname: Werner
authors.forename: M
authors.initials: M
authors.lastname: Edwards
authors.forename: N
authors.initials: N
authors.lastname: Baum
authors.forename: I
authors.initials: I
authors.lastname: Brown
authors.forename: R I
authors.initials: RI
authors.lastname: Brown
authors.forename: B J
authors.initials: BJ
authors.lastname: Isaacs
mesh_terms: D000293:Adolescent; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D017281:Cost of Illness; D054541:Family Conflict / Q000523:psychology*; D005260:Female; D016352:Group Homes; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology*; D008134:Long-Term Care / Q000523:psychology; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D009864:Ontario; D011594:Psychometrics / Q000706:statistics & numerical data; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D012944:Social Support; D011795:Surveys and Questionnaires; D055815:Young Adult