title: Research priorities in urinary incontinence: results from citizens' juries.
abstract: OBJECTIVE
  The objective of this study was to elicit research ideas, priorities and outcome measures from women who suffer from urinary incontinence.
  
  
  METHODS
  Citizens' juries gather participants together for a combination of education and deliberation on a specific topic. The juries were held in November 2007.
  
  
  METHODS
  Women living in the community with urinary incontinence.
  
  
  METHODS
  Purposively selected responders to public advertisements in Dunedin, New Zealand, were grouped into two juries dependent on whether stress urinary incontinence or urge urinary incontinence was the predominant problem.
  
  
  METHODS
  The juries had a day of education in incontinence and research-related issues, with a half day for deliberation and reporting.
  
  
  METHODS
  Ideas for areas where research may help the lives of women with incontinence in priority order and how best to measure the outcome of that research.
  
  
  RESULTS
  The juries identified five main areas for incontinence research with only minor differences depending on which jury. These are, in priority order, making seeking help easier, making day-to-day life more manageable, finding out total costs, more knowledge about causes and the effects of lifestyle. Quality of life was considered by far the most important outcome.
  
  
  CONCLUSIONS
  Citizens' juries are able to come up with ideas for research and prioritise these. Research in the areas suggested would be likely to improve the lives of women with urinary incontinence and may lead to a different mix of research projects than is currently the case.
authors.affiliation: Department of Preventive and Social Medicine, Dunedin School of Medicine, University of Otago, Dunedin, New Zealand. peter.herbison@otago.ac.nz
authors.forename: P
authors.initials: P
authors.lastname: Herbison
authors.forename: J
authors.initials: J
authors.lastname: Hay-Smith
authors.forename: H
authors.initials: H
authors.lastname: Paterson
authors.forename: G
authors.initials: G
authors.lastname: Ellis
authors.forename: D
authors.initials: D
authors.lastname: Wilson
mesh_terms: D000328:Adult; D005260:Female; D017144:Focus Groups; D006801:Humans; D008875:Middle Aged; D009520:New Zealand; D010358:Patient Participation; D012107:Research Design; D014549:Urinary Incontinence / Q000209:etiology / Q000628:therapy*