Public trust and research a decade later: what have we learned since Jesse Gelsinger's death?
Almost a decade has passed since the untimely death of Jesse Gelsinger. The reflections of Dr. Wilson and efforts made on a national scale to address various ethical issues in biomedical research provide an opportunity to consider what progress has been made in efforts to build and restore the public's trust in biomedical research. The restoration of public trust is especially critical in the aftermath of tragic events like Mr. Gelsinger's death and the authors note the need for greater emphasis on building public trust than has occurred to date in the broader biomedical research community.
Yarborough
Mark
M
Center for Bioethics and Humanities, University of Colorado Denver, Mail Stop B 137, 13120 E. 19th Avenue, Aurora, CO 80045, USA. Mark.Yarborough@ucdenver.edu
Sharp
Richard R
RR
D035843:Biomedical Research / Q000941:ethics*; D002986:Clinical Trials as Topic; D005260:Female; D015316:Genetic Therapy / Q000941:ethics; D006801:Humans; D007258:Informed Consent; D008297:Male; D020163:Ornithine Carbamoyltransferase Deficiency Disease / Q000235:genetics / Q000628:therapy; D011639:Public Opinion; D035842:Research Subjects; D035502:Trust / Q000523:psychology