The psychosocial impact of epilepsy in childhood.
In addition to its medical impact with respect to loss of control, drug effects, and comorbidity, epilepsy has a marked impact on a child's life. Population-based studies show that 70-76% of children with epilepsy have some type of disability or handicap affecting their daily life and choices for the future. Comorbidity and, specifically, learning disability (sometimes referred to as mental retardation) modify the life of a child and the family. To improve these children's position in society, they should have the same opportunities and be allowed to make choices on the basis of their abilities, not their diagnosis of epilepsy. Supporting the development of acceptance, self-reliance, self-respect, and self-empowerment of children with epilepsy is crucial to their achieving a place in the community equal to their abilities. This is a challenging task for their families, relatives, schoolteachers, employers, and legislators.
Sillanpää
Matti
M
Department of Child Neurology, University of Turku, 20014 Turku, Finland. matti.sillanpaa@utu.fi
Helen Cross
J
J
D000293:Adolescent; D002648:Child; D002657:Child Development; D003072:Cognition Disorders / Q000209:etiology; D015331:Cohort Studies; D018672:Community Health Planning; D002658:Developmental Disabilities / Q000209:etiology / Q000523:psychology; D004522:Educational Status; D004827:Epilepsy / Q000150:complications / Q000523:psychology*; D005260:Female; D005387:Finland; D006801:Humans; D007859:Learning Disabilities / Q000209:etiology; D008297:Male; D012189:Retrospective Studies; D012922:Social Change; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires