Information needs of parents of children admitted to a neonatal intensive care unit: a review of the literature (1990-2008).
OBJECTIVE
This literature review focuses on information and communication needs of parents of children admitted to the NICU and on their use of information sources in the illness trajectories at NICU.


METHODS
Literature search in 4 electronic databases (Ovid Medline, PsycINFO, CINAHL and Sociological Abstracts), covering 1990-March 2008.


RESULTS
The seventy-eight included articles revealed that NICU parents have high information needs. The illness trajectory mediates parental information needs and induces a changing pattern in information use and information needs. Most attention is paid to the prenatal and acute phases, while information behaviour in sudden events and later phases receives limited attention.


CONCLUSIONS
In-depth studies on information needs and corresponding use of information sources are lacking. More longitudinal studies are needed, taking the illness trajectory into account and investigating the determinants and outcomes of the information and communication needs of NICU parents.


CONCLUSIONS
Healthcare professionals should adapt their information provision along the illness trajectory. The development of guidelines of information provision during the illness trajectory at NICU would support all professionals.
De Rouck
Sofie
S
Vrije Universiteit Brussel, Department of Medical Sociology and Health Sciences (MESO), Brussels, Belgium. sofie.de.rouck@vub.ac.be
Leys
Mark
M