title: How do cancer registries in europe estimate completeness of registration?
abstract: OBJECTIVE
  Several methods for estimating completeness in cancer registries have been proposed. Little is known about their relative merits. Before embarking on a systematic comparison of methods we wanted to know which indicators were currently in use and whether there had been comparative investigations of estimation methods.
  
  
  METHODS
  We performed a survey among European cancer registries asking which methods for estimating completeness they used and whether they had performed comparisons of methods.
  
  
  RESULTS
  One hundred and ninety-five European cancer registries were contacted after identification using membership directories of the European Network of Cancer Registries (ENCR) and of the International Association of Cancer Registries (IACR). Fifty-six (29%; 22%-36%) of the 195 cancer registries replied. Forty-eight (86%; 74%-94%) of these stated that they estimated completeness. Thirty-five (73%; 58%-85%) used historic comparisons, 31 (65%; 49%-78%) compared their data with a reference registry, 28 (58%; 43%-72%) registries used mortality incidence ratio. Capture-recapture methods were applied in only 12 (25%; 14%-40%) registries. The flow method was used by ten (21%; 10%-35%) registries. There were regional differences in the use of methods. Comparisons of methods were rare and usually restricted to real data at hand. A systematic comparison including all indicators actually in use in cancer registries was not reported.
  
  
  CONCLUSIONS
  A comparison of methods under well defined realistic conditions seems to be indicated. Unifying the methods for estimating completeness would improve validity of comparisons between cancer registries.
authors.affiliation: Institute of Medical Biostatistics, Epidemiology and Informatics, University of Mainz, Mainz, Germany. schmidtmann@imbei.uni-mainz.de
authors.forename: Irene
authors.initials: I
authors.lastname: Schmidtmann
authors.forename: Maria
authors.initials: M
authors.lastname: Blettner
mesh_terms: D003625:Data Collection; D005060:Europe; D006801:Humans; D009369:Neoplasms; D019984:Quality Indicators, Health Care; D012042:Registries / Q000592:standards*