title: Involving health professionals in the development of an advanced symptom management system for young people: the ASyMS-YG study.
abstract: OBJECTIVE
  ASyMS is an advanced symptom management system utilising mobile phone technology for patients to report cancer chemotherapy-related symptoms. The aim of this paper is to present health professionals involvement in the development of ASyMS for use with young people (YG) and evaluate their perceptions of the system. STAGE 1: Health professionals reviewed the symptoms chosen by young people to be included on the personal digital assistant questionnaire to confirm they would have universal relevance. These included: mouth sores, nausea, diarrhoea, vomiting and weight loss. STAGE 2: Health professionals completed a questionnaire prior to the study commencing, which suggested they felt ASyMS-YG would give young people control and facilitate timely interventions when symptoms occur. Post-study perceptions were sought through semi-structured interviews and consultation sessions with 23 health professionals. These showed two over-arching themes: young people's symptoms and perceptions of ASyMS-YG; and six sub-themes: increased control for young people; enhances communication between young people and health professionals; and helps with professional early intervention; increased support for young people; improve knowledge and understanding; technology appealing to young people.
  
  
  CONCLUSIONS
  This early development work indicates that ASyMS-YG is acceptable to health professionals and their perceptions of the system were overall very positive. Health professionals will continue to be involved in the study through developing self-care guidelines and alert system, which will be tested in an exploratory trial (stage 3) and randomised controlled trial (stage 4) in the future.
authors.affiliation: Patient Care Research and Innovation Centre, UCL Institute of Child Health and Great Ormond Street Hospital for Children NHS Trust, Great Ormond Street, London WC1N 3JH, UK. gibsof@gosh.nhs.uk
authors.forename: F
authors.initials: F
authors.lastname: Gibson
authors.forename: S
authors.initials: S
authors.lastname: Aldiss
authors.forename: R M
authors.initials: RM
authors.lastname: Taylor
authors.forename: R
authors.initials: R
authors.lastname: Maguire
authors.forename: N
authors.initials: N
authors.lastname: Kearney
mesh_terms: D000293:Adolescent; D000970:Antineoplastic Agents / Q000009:adverse effects* / Q000627:therapeutic use; D001291:Attitude of Health Personnel; D015331:Cohort Studies; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D008991:Monitoring, Physiologic / Q000379:methods*; D009361:Neoplasm Invasiveness / Q000473:pathology; D009367:Neoplasm Staging; D009369:Neoplasms / Q000188:drug therapy* / Q000451:nursing / Q000473:pathology*; D009723:Nurse-Patient Relations; D010358:Patient Participation; D017060:Patient Satisfaction; D011369:Professional-Patient Relations; D011787:Quality of Health Care; D011795:Surveys and Questionnaires; D055817:Telenursing / Q000379:methods*; D006113:United Kingdom; D055815:Young Adult
chemical_list: D000970:Antineoplastic Agents