Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology.
Heart failure is a serious condition and equivalent to malignant disease in terms of symptom burden and mortality. At this moment only a comparatively small number of heart failure patients receive specialist palliative care. Heart failure patients may have generic palliative care needs, such as refractory multifaceted symptoms, communication and decision making issues and the requirement for family support. The Advanced Heart Failure Study Group of the Heart Failure Association of the European Society of Cardiology organized a workshop to address the issue of palliative care in heart failure to increase awareness of the need for palliative care. Additional objectives included improving the accessibility and quality of palliative care for heart failure patients and promoting the development of heart failure-orientated palliative care services across Europe. This document represents a synthesis of the presentations and discussion during the workshop and describes recommendations in the area of delivery of quality care to patients and families, education, treatment coordination, research and policy.
Jaarsma
Tiny
T
Department of Cardiology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands. t.jaarsma@thorax.umcg.nl
Beattie
James M
JM
Ryder
Mary
M
Rutten
Frans H
FH
McDonagh
Theresa
T
Mohacsi
Paul
P
Murray
Scott A
SA
Grodzicki
Thomas
T
Bergh
Ingrid
I
Metra
Marco
M
Ekman
Inger
I
Angermann
Christiane
C
Leventhal
Marcia
M
Pitsis
Antonis
A
Anker
Stefan D
SD
Gavazzi
Antonello
A
Ponikowski
Piotr
P
Dickstein
Kenneth
K
Delacretaz
Etienne
E
Blue
Lynda
L
Strasser
Florian
F
McMurray
John
J
D002309:Cardiology / Q000193:education*; D004502:Education, Medical, Continuing / Q000379:methods*; D006333:Heart Failure / Q000628:therapy*; D006801:Humans; D010166:Palliative Care / Q000458:organization & administration*; D012955:Societies, Medical