title: [Ethical decision making for newborns with congenital abnormalities: the 'do not resuscitate' dilemma].
abstract: Neonatal intensive care units face increasing ethical dilemmas as advancing medical techniques prolong the dying process of newborns with life-threatening congenital abnormalities. This article explores the ethical dilemma posed with regard to a newborn suffering from Edwards syndrome. The issue whether or not to resuscitate was approached using Jensen's four topics method. Under conditions of medical futility, the presupposition of a poor quality of life for the child and respect for parental autonomy, a decision was made against resuscitation. Medical professionals have a responsibility to help parents deal with the dying process through palliative care that provides a good death for newborns suffering from severe congenital abnormalities.
authors.affiliation: College of Medicine, National Cheng Kung University, ROC.
authors.forename: Li-Chuan
authors.initials: LC
authors.lastname: Chang
authors.forename: Mei-Chih
authors.initials: MC
authors.lastname: Huang
mesh_terms: D000328:Adult; D000013:Congenital Abnormalities / Q000628:therapy*; D003657:Decision Making / Q000941:ethics*; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D008297:Male; D016414:Resuscitation Orders / Q000941:ethics*