title: A gender perspective on the extent to which mothers and fathers each take responsibility for care of a child with high and intermediate imperforate anus.
abstract: Imperforate anus is a malformation of the child's anus. Parents' experiences of responsibility for care of the child may differ. The aim of this study was to evaluate a gender perspective on the extent to which mothers and fathers each take responsibility for the care of a child with high and intermediate imperforate anus. Parents of children with imperforate anus and two control groups of children and parents participated. Data collection with questionnaires focusing on responsibility was performed. In conclusion, our study revealed additional evidence of unevenly divided parental responsibility for care of a child with a chronic condition. The mothers in this study were shown to be the primary caregiver.
authors.affiliation: Pediatric Surgery Unit, Department of Woman and Child Health, Karolinska Institutet, Astrid Lindgren Children's Hospital, Stockholm, Sweden. maria.ojmyr-joelsson@karolinska.se
authors.forename: Maria
authors.initials: M
authors.lastname: Ojmyr-Joelsson
authors.forename: Margret
authors.initials: M
authors.lastname: Nisell
authors.forename: Björn
authors.initials: B
authors.lastname: Frenckner
authors.forename: Per-Anders
authors.initials: PA
authors.lastname: Rydelius
authors.forename: Kyllike
authors.initials: K
authors.lastname: Christensson
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D001006:Anus, Imperforate / Q000517:prevention & control* / Q000601:surgery; D001171:Arthritis, Juvenile / Q000517:prevention & control; D001294:Attitude to Health; D002648:Child; D002654:Child Care / Q000523:psychology; D002908:Chronic Disease; D005220:Fathers / Q000523:psychology*; D005260:Female; D005783:Gender Identity; D006701:Home Nursing / Q000523:psychology*; D006776:Hospitals, Pediatric; D006801:Humans; D016015:Logistic Models; D008297:Male; D009035:Mothers / Q000523:psychology*; D015404:Nursing Methodology Research; D012189:Retrospective Studies; D012941:Social Responsibility; D018709:Statistics, Nonparametric; D011795:Surveys and Questionnaires; D013548:Sweden