Community-based dialogue: engaging communities of color in the United states' genetics policy conversation.
Engaging communities of color in the genetics public policy conversation is important for the translation of genetics research into strategies aimed at improving the health of all. Implementing model public participation and consultation processes can be informed by the Communities of Color Genetics Policy Project, which engaged individuals from African American and Latino communities of diverse socioeconomic levels in the process of "rational democratic deliberation" on ethical and policy issues stretching from genome research to privacy and discrimination concerns to public education. The results of the study included the development of a participatory framework based on a combination of the theory of democratic deliberation and the community-based public health model which we describe as "community-based dialogue."
Bonham
Vence L
VL
National Human Genome Research Institute.
Citrin
Toby
T
Modell
Stephen M
SM
Franklin
Tené Hamilton
TH
Bleicher
Esther W B
EW
Fleck
Leonard M
LM
D055812:Community-Based Participatory Research / Q000458:organization & administration*; D036281:Genetic Research; D014644:Genetic Variation; D023281:Genomics; D006291:Health Policy; D054625:Healthcare Disparities; D006801:Humans; D008913:Minority Groups; D014481:United States