title: The Spanish translation and adaptation of the Uniform Data Set of the National Institute on Aging Alzheimer's Disease Centers.
abstract: Researchers from Alzheimer's Disease Centers (ADCs) across the United States with expertise in the assessment of Spanish-speaking elderly collaborated to create the official Spanish version of measures in the Uniform Data Set of the National Institute on Aging Alzheimer's Disease Center Program. The present article describes this project, whose primary goal was to create Spanish instruments with cultural and linguistic equivalence to the English versions. The resulting Spanish versions make provisions for variations among Spanish-speaking groups in the United States of different nationalities, socio-cultural, linguistic, and educational backgrounds. A consensus-based translation and adaptation approach was used, and guiding principles and specific components of this process are summarized. The Spanish translation and adaptation of the Uniform Data Set measures became available online to ADCs in April 2007. Its creation is important, as the resulting effort provides standardized measures for the collection of cross-sectional and longitudinal data on a large cohort of Spanish-speaking elders across the country and facilitates collaborative research among ADCs.
authors.affiliation: Department of Psychiatry and Behavioral Sciences, University of Miami Miller School of Medicine, MRI Building, 2nd Floor, 4300 Alton Road, Miami Beach, FL 33140, USA. aacevedo3@med.miami.edu
authors.forename: Amarilis
authors.initials: A
authors.lastname: Acevedo
authors.forename: Kristin R
authors.initials: KR
authors.lastname: Krueger
authors.forename: Ellen
authors.initials: E
authors.lastname: Navarro
authors.forename: Freddy
authors.initials: F
authors.lastname: Ortiz
authors.forename: Jennifer J
authors.initials: JJ
authors.lastname: Manly
authors.forename: Margarita M
authors.initials: MM
authors.lastname: Padilla-Vélez
authors.forename: Sandra
authors.initials: S
authors.lastname: Weintraub
authors.forename: Oscar L
authors.initials: OL
authors.lastname: López
authors.forename: Dan
authors.initials: D
authors.lastname: Mungas
mesh_terms: D000368:Aged; D000375:Aging / Q000523:psychology*; D000544:Alzheimer Disease / Q000145:classification / Q000175:diagnosis*; D003072:Cognition Disorders / Q000175:diagnosis; D003299:Cooperative Behavior; D003431:Cross-Cultural Comparison; D003625:Data Collection / Q000379:methods; D016208:Databases, Factual / Q000706:statistics & numerical data*; D015577:Geriatric Assessment; D006630:Hispanic or Latino / Q000523:psychology*; D006801:Humans; D007802:Language; D054561:National Institute on Aging (U.S.); D009483:Neuropsychological Tests / Q000592:standards* / Q000706:statistics & numerical data*; D011569:Psychiatric Status Rating Scales; D011594:Psychometrics; D012107:Research Design; D012720:Severity of Illness Index; D013030:Spain / Q000208:ethnology; D014175:Translating; D014481:United States