title: Ethics and governance of a longitudinal birth cohort.
abstract: All longitudinal birth cohorts should be undertaken with a detailed ethical strategy and policy on governance. Here we outline the various factors that should be taken into consideration and describe ways in which these issues may be addressed.
authors.affiliation: Department of Social Medicine, University of Bristol, Bristol, UK. karen.birmingham@bristol.ac.uk
authors.forename: Karen
authors.initials: K
authors.lastname: Birmingham
authors.forename: Alan
authors.initials: A
authors.lastname: Doyle
mesh_terms: D026683:Advisory Committees / Q000941:ethics / Q000458:organization & administration*; D001719:Birth Certificates / Q000331:legislation & jurisprudence; D054976:Clinical Governance; D015331:Cohort Studies; D003219:Confidentiality / Q000331:legislation & jurisprudence; D026724:Ethical Review; D032984:Ethics, Research; D005260:Female; D006805:Human Experimentation / Q000941:ethics; D006801:Humans; D007231:Infant, Newborn; D007258:Informed Consent / Q000941:ethics / Q000331:legislation & jurisprudence; D008137:Longitudinal Studies; D008297:Male; D009937:Organizational Objectives; D017410:Practice Guidelines as Topic; D011247:Pregnancy