title: Written information that relatives of adult intensive care unit patients would like to receive--a comparison to published recommendations and opinion of staff members.
abstract: OBJECTIVE
  Information booklets have not been assessed by the families of intensive care unit (ICU) patients. This study explored the information that the relatives of adult ICU patients wanted to find in the information booklets.
  
  
  METHODS
  Multicenter survey.
  
  
  METHODS
  Twenty-three French ICUs.
  
  
  METHODS
  One close relative of each of 250 consecutive adult patients.
  
  
  METHODS
  Relatives were asked about the desirability of finding information on each of the 24 topics identified by ICU physicians and listed in guidelines as deserving inclusion in information booklets.
  
  
  METHODS
  None.
  
  
  RESULTS
  The 250 patients (61% men) had a mean age of 60 +/- 18 years and a mean Simplified Acute Physiology Score II of 48 +/- 19; 57% had chronic comorbidities and 41% were surgical patients. At least 72% of the relatives felt that booklets should discuss nosocomial infections, treatment-limitation decisions, access to medical information on the patient, access to medical records, and the meaning of medical terms. Overall, relatives wanted more information than that anticipated by ICU physicians, suggested in guidelines, or found in booklets. However, for at least one of the 24 topics, 38% of relatives indicated that fear or poor comprehension made them unwilling to receive written information. These relatives were younger and had fewer years of formal education than did the other relatives, and they were more likely to be visiting conscious unrestrained patients.
  
  
  CONCLUSIONS
  Opinions of relatives should be taken into account when designing ICU information booklets. Relatives want more information than that anticipated by physicians or suggested in guidelines, but the youngest or the less-educated ones may respond less favorably to written information.
authors.affiliation: CHU d'Angers, Pôle d'Anesthésie Réanimation, 4933 Angers Cedex 9, France.
authors.forename: Christophe
authors.initials: C
authors.lastname: Soltner
authors.forename: Vincent
authors.initials: V
authors.lastname: Lassalle
authors.forename: Sophie
authors.initials: S
authors.lastname: Galienne-Bouygues
authors.forename: Julien
authors.initials: J
authors.lastname: Pottecher
authors.forename: Bernard
authors.initials: B
authors.lastname: Floccard
authors.forename: Laurence
authors.initials: L
authors.lastname: Delapierre
authors.forename: Francoise
authors.initials: F
authors.lastname: Jungfer
authors.forename: Cyril
authors.initials: C
authors.lastname: Sargentini
authors.forename: Corrine
authors.initials: C
authors.lastname: Alberti
authors.forename: Laurent
authors.initials: L
authors.lastname: Beydon
mesh_terms: D000328:Adult; D000368:Aged; D001291:Attitude of Health Personnel; D003422:Critical Care; D004522:Educational Status; D005190:Family / Q000523:psychology*; D005260:Female; D005602:France; D019538:Health Care Surveys; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D010174:Pamphlets; D010353:Patient Education as Topic / Q000458:organization & administration*; D011446:Prospective Studies