title: Shortfalls in international, multidisciplinary outcome data collection following head and neck cancer: does the ICF Core Set for HNC provide a common solution?
abstract: This article summarizes different experiences from research groups working in the field of outcome research in head and neck cancer (HNC). It presents information that has been gathered over a number of years, and emphasizes areas where further research is needed. In this context, the importance of interdisciplinary and multi-institutional collaboration is emphasized. There is a substantial need for a standardized description tool to provide a common basic language for outcome research in HNC. The International Classification of Functioning, Disability and Health (ICF), as adopted by the World Health Organization (WHO), and disease-specific ICF Core Sets for HNC are introduced to describe functioning in HNC. Applications of the ICF Core Set for HNC for further research are discussed.
authors.affiliation: Department of Otorhinolaryngology - Head and Neck Surgery, University of Munich, Marchioninistr. 16, Munich 81377, Germany. Uta.Tschiesner@med.uni-muenchen.de
authors.forename: U M
authors.initials: UM
authors.lastname: Tschiesner
authors.forename: A
authors.initials: A
authors.lastname: Chen
authors.forename: G
authors.initials: G
authors.lastname: Funk
authors.forename: B
authors.initials: B
authors.lastname: Yueh
authors.forename: S N
authors.initials: SN
authors.lastname: Rogers
mesh_terms: D003625:Data Collection / Q000592:standards*; D014943:Global Health; D006258:Head and Neck Neoplasms / Q000534:rehabilitation*; D006304:Health Status; D006801:Humans; D007391:International Cooperation; D020127:Recovery of Function; D012106:Research; D009626:Terminology as Topic; D016896:Treatment Outcome; D014944:World Health Organization