Study protocol for the development of a European measure of best practice for people with long term mental health problems in institutional care (DEMoBinc).
BACKGROUND
This study aims to build a measure for assessing and reviewing the living conditions, care and human rights of people with longer term mental health problems in psychiatric and social care institutions. Protection of their human rights is imperative since impaired mental capacity secondary to mental illness can make them vulnerable to abuse and exploitation from others. They also constitute a major resource pressure for mental health services, social services, informal carers and society as a whole.


METHODS
This study uses an iterative methodology to develop a toolkit to assess internationally agreed domains of care that are considered most important for recovery. These domains are identified by collating results from: i) a systematic review of the literature on institutional care for this service user group; ii) a review of the relevant care standards in each participating country; iii) Delphi exercises in partner countries with mental health professionals, service users, carers and advocates. Common domains and cross-cutting themes are agreed by the principal researchers and an international expert panel. Items are developed to assess these domains and incorporated into the toolkit which is designed to be administered through a face to face interview with the institution's manager. The toolkit is refined in response to inter-rater reliability testing, feedback from interviewers and interviewees regarding its utility, and feedback from key stakeholders in each country about its ability to deliver information that can be used within each country's established systems for quality assessment and review. Cross-validation of the toolkit ratings against service users' quality of life, autonomy and markers of recovery tests whether it can deliver a proxy-measure of the service users' experiences of care and the institution's promotion of their human rights and recovery. The ability of the toolkit to assess the "value for money" delivered by institutions is investigated by comparing toolkit ratings and service costs.


CONCLUSIONS
The study will deliver the first international tool for the assessment of the quality of institutional care for people with longer term mental health problems that is accurate, reliable, informative, useful and easy to use.
Killaspy
Helen
H
Department of Mental Health Sciences, University College London, Royal Free Hospital, London, UK. h.killaspy@medsch.ucl.ac.uk
King
Michael
M
Wright
Christine
C
White
Sarah
S
McCrone
Paul
P
Kallert
Thomas
T
Cervilla
Jorge
J
Raboch
Jiri
J
Onchev
Georgi
G
Mezzina
Roberto
R
Wiersma
Durk
D
Kiejna
Andrzej
A
Ploumpidis
Dimitris
D
Caldas de Almeida
Jose Miguel
JM
D003156:Community Mental Health Services / Q000458:organization & administration; D005060:Europe; D019538:Health Care Surveys; D006806:Human Rights; D006801:Humans; D007326:Institutionalization / Q000592:standards*; D008134:Long-Term Care / Q000458:organization & administration; D001523:Mental Disorders / Q000534:rehabilitation / Q000628:therapy*; D015201:Meta-Analysis as Topic; D010347:Patient Care Planning / Q000458:organization & administration; D028701:Patient Rights; D016730:Program Development / Q000379:methods*; D011785:Quality Assurance, Health Care / Q000379:methods*; D011788:Quality of Life; D012949:Social Work, Psychiatric; D011795:Surveys and Questionnaires; D013813:Therapy, Computer-Assisted / Q000379:methods; D006113:United Kingdom