title: Will developing countries benefit from their participation in genetics research?
abstract: There is an increase in the amount of genetics research being conducted in both developed and limited resource countries. Most of this research is sponsored by developed countries. There are concerns in limited resource countries on how the benefits from this research are currently being shared or will be shared in the future. There is need for caution, to ensure that populations from limited resource countries are not exploited by being used as subjects in genetics research which is meant to benefit populations from developed countries. This paper addresses the issue of fairness in benefits sharing and argues for justice in the sharing of both burdens and benefits of genetics research. The paper responds to some of the issues and arguments in recent literature on the meaning and limits of the concept of benefit sharing in human genetics research.
authors.affiliation: Centre for Bioethics in Eastern and Southern Africa, Department of Community Health, College of Medicine, Private Bag 360, Chichiri, Blantyre 3, Malawi. pndebele@medcol.mw
authors.forename: Paul
authors.initials: P
authors.lastname: Ndebele
authors.forename: Rosemary
authors.initials: R
authors.lastname: Musesengwa
mesh_terms: D019049:Developed Countries; D003906:Developing Countries; D028744:Ethics Committees, Research / Q000941:ethics; D036281:Genetic Research / Q000941:ethics*; D005828:Genetics, Population / Q000941:ethics*; D006806:Human Rights; D006801:Humans; D007391:International Cooperation; D010597:Pharmacogenetics; D012935:Social Justice / Q000941:ethics