title: Problematic aspects of faecal incontinence according to the experience of adults with spina bifida.
abstract: OBJECTIVE
  To describe problematic aspects of faecal incontinence according to the experience of adults with spina bifida.
  
  
  METHODS
  Qualitative interview study.
  
  
  METHODS
  Eleven adults with spina bifida and bowel problems.
  
  
  METHODS
  Semi-structured open-ended interviews and qualitative analysis.
  
  
  RESULTS
  Problematic aspects were related to participation in terms of time consumption, communication, social isolation, love and sexuality, and accessibility. Also, to a sense of helplessness in terms of panic and worry, to a sense of shame in terms of impurity, social acceptance and self-image, and to bowel function in terms of decisions about colostomy, voluntary constipation, and changing patterns.
  
  
  CONCLUSIONS
  The results reveal aspects relevant to supporting clinical practice and suggesting issues for questionnaire studies.
authors: TRS National Resource Center for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesoddtangen, Norway.
authors: Vigdis
authors: V
authors: Johnsen
authors: Eli
authors: E
authors: Skattebu
authors: Astri
authors: A
authors: Aamot-Andersen
authors: Mikael
authors: M
authors: Thyberg
mesh_terms: D000328:Adult; D003125:Colostomy; D003672:Defecation / Q000502:physiology; D005242:Fecal Incontinence / Q000209:etiology* / Q000523:psychology / Q000534:rehabilitation; D006801:Humans; D007398:Interpersonal Relations; D012649:Self Concept; D012934:Social Isolation; D016135:Spinal Dysraphism / Q000150:complications* / Q000523:psychology / Q000534:rehabilitation; D011795:Surveys and Questionnaires