Experiences of professional support during pregnancy and childbirth - a qualitative study of women with type 1 diabetes.
BACKGROUND
Women with type 1 diabetes are at high risk of complications during both pregnancy and childbirth. Stringent monitoring of blood sugar is required in order to improve the chance of giving birth to a healthy child; however, this increases the incidence of severe hypoglycaemia. The aim of this study was to explore the need for and experience of professional support during pregnancy and childbirth among women with type 1 diabetes.


METHODS
The study has a lifeworld research approach. Six focus groups and four individual interviews were conducted with 23 women, 6-24 months after delivery. The participants were encouraged to narrate their experiences of pregnancy and childbirth in relation to glycaemic control, well-being and provided care. Data analysis was directed towards discovering qualitative meanings by identifying and clustering meaning units in the text. Further analysis identified eight themes of meaning, classified under pregnancy or childbirth, forming a basis for a final whole interpretation of the explored phenomenon.


RESULTS
The women felt worry about jeopardizing the baby's health and this was sometimes made worse by care providers' manner and lack of competence and support. The increased attention from care providers during pregnancy was experienced as related to the health of the unborn child; not the mothers. Women who during pregnancy received care in a disconnected diabetes organisation were forced to act as messengers between different care providers.


CONCLUSIONS
Clarity in terms of defining responsibilities is necessary during pregnancy and childbirth, both among care providers and between the woman and the care provider. Furthermore, a decision must be made concerning how to delegate, transfer or share diabetes responsibility during labour between the care providers and the parents-to-be.
Berg
Marie
M
The Institute of Health and Care Sciences, the Sahlgrenska Academy at Gothenburg University Box 457, SE-405 30, Göteborg, Sweden. marie.berg@gu.se
Sparud-Lundin
Carina
C
D000328:Adult; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D001786:Blood Glucose; D036861:Delivery, Obstetric; D003922:Diabetes Mellitus, Type 1 / Q000097:blood / Q000628:therapy*; D005260:Female; D017144:Focus Groups; D005500:Follow-Up Studies; D006301:Health Services Needs and Demand; D006801:Humans; D011247:Pregnancy; D011254:Pregnancy in Diabetics / Q000097:blood / Q000628:therapy*; D011295:Prenatal Care; D011369:Professional-Patient Relations; D036301:Qualitative Research; D012944:Social Support; D055815:Young Adult
D001786:Blood Glucose