Renewing everyday hope: the hope experience of family caregivers of persons with dementia.
The purpose of this grounded theory study was to explore the experience of hope for family members caring for a person with dementia. Seventeen family members caring for persons with dementia were interviewed. The participants described their hope as the possibility of a positive future within their daily lives and in the social context of grief and loss, stress, fatigue, and constantly dealing with challenging behaviours of the person with dementia. The main concern of the study participants was "fading hope," which they dealt with by "renewing every day hope" through (a) coming to terms, (b) finding positives, and (c) seeing possibilities.
Duggleby
Wendy
W
College of Nursing, University of Saskatchewan, Saskatoon, Saskatchewan, Canada. wendy.duggleby@usask.ca
Williams
Allison
A
Wright
Karen
K
Bollinger
Sue
S
D000223:Adaptation, Psychological; D000368:Aged; D000369:Aged, 80 and over; D001294:Attitude to Health; D002170:Canada; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D003704:Dementia / Q000451:nursing*; D004645:Empathy; D005190:Family / Q000523:psychology*; D005221:Fatigue / Q000523:psychology; D005260:Female; D006117:Grief; D006701:Home Nursing / Q000523:psychology; D006801:Humans; D008297:Male; D008875:Middle Aged; D008960:Models, Psychological; D009013:Morale; D015404:Nursing Methodology Research; D013315:Stress, Psychological / Q000523:psychology; D011795:Surveys and Questionnaires