title: Perceptions of user involvement: a user-led study.
abstract: BACKGROUND
  User involvement in health services has been a priority for government since 1990. In mental health, concern has been expressed that involved service users (activists) are not representative of 'ordinary' patients.
  
  
  OBJECTIVE
  (i) To investigate service users' perceptions of the outcomes of user involvement in two London boroughs. (ii) To determine whether the perceptions of outcomes differ between activists and non-activists.
  
  
  METHODS
  The study was user-led. The user-researchers compiled a semi-structured interview schedule which they then administered to a sample of 40 people; 20 were defined as activists and 20 as non-activists. There were also 20 participants in each borough.
  
  
  RESULTS
  Activists were aware of more user groups and forms of user involvement than non-activists. However, in terms of perceptions of the outcomes of user involvement, there was little difference between the activists and non-activists.
  
  
  CONCLUSIONS
  There is very little extant work on the outcomes of user involvement in mental health services. This study examined this and, contrary to reservations often expressed, there was little difference between activists and non-activists.
  
  
  CONCLUSIONS
  This is a pilot study. Further work should examine perceptions of the outcomes of user involvement by other stakeholders, for example, front-line workers, managers, carers and commissioners.
authors.affiliation: Service User Research Enterprise, PO34 Institute of Psychiatry, King's College London, UK. d.rose@iop.kcl.ac.uk
authors.forename: Diana
authors.initials: D
authors.lastname: Rose
authors.forename: Pete
authors.initials: P
authors.lastname: Fleischmann
authors.forename: Peter
authors.initials: P
authors.lastname: Schofield
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D001714:Bipolar Disorder / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation; D003695:Delivery of Health Care; D003866:Depressive Disorder / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation; D004739:England; D005260:Female; D006291:Health Policy; D006297:Health Services Accessibility; D006302:Health Services Research; D006801:Humans; D007406:Interview, Psychological; D008297:Male; D001523:Mental Disorders / Q000523:psychology / Q000534:rehabilitation*; D008605:Mental Health Services; D008875:Middle Aged; D010344:Patient Advocacy; D010358:Patient Participation; D010817:Physician-Patient Relations; D011787:Quality of Health Care; D012559:Schizophrenia / Q000175:diagnosis / Q000534:rehabilitation; D012565:Schizophrenic Psychology; D013222:State Medicine; D055815:Young Adult