title: Pregnant women are satisfied with the information they receive about prenatal diagnosis, but are their decisions well informed?
abstract: OBJECTIVE. To survey the information about prenatal diagnosis that midwives give to pregnant women and to find out how the women experience the information. Furthermore, to evaluate the midwives' opinion about their knowledge and personal need for education. DESIGN. Descriptive cross-sectional study. SETTING. The southeast healthcare region of Sweden. METHODS. One hundred and fifty-seven midwives and 150 pregnant women were invited to reply to a confidential questionnaire in 2008. RESULTS. The reply rate was 78% for the midwives and 53% for the women. Ninety-six percentage of the midwives used < or =10 minutes to inform women about prenatal diagnosis. Seventy-two percentage always informed about the advantages and 41% about the choice to continue or terminate the pregnancy if a serious abnormality was detected. In addition, 41% considered that they had sufficient knowledge to inform about prenatal diagnosis, while 84% wanted additional education. Seventy-six percentage of the women took the decision to have prenatal diagnosis as soon as they found out that they were pregnant. A majority considered that they had been given enough time for questions and reflections. CONCLUSIONS. There was discrepancy between the amount of information, which midwives gave to pregnant women about prenatal diagnosis compared to what would be needed for a complete understanding of the relevant medical facts and the risks involved, but even so the women were satisfied with the information.
authors.affiliation: Department of Pathology and Genetics, Division of Genetics, University Hospital, Linköping, Sweden. kjerstin.ferm-widlund@karolinska.se
authors.forename: Kjerstin
authors.initials: K
authors.lastname: Ferm Widlund
authors.forename: Cecilia
authors.initials: C
authors.lastname: Gunnarsson
authors.forename: Karin
authors.initials: K
authors.lastname: Nordin
authors.forename: Mats G
authors.initials: MG
authors.lastname: Hansson
mesh_terms: D003142:Communication; D003430:Cross-Sectional Studies; D003657:Decision Making; D005260:Female; D006801:Humans; D007258:Informed Consent; D008880:Midwifery; D009723:Nurse-Patient Relations; D011247:Pregnancy; D011296:Prenatal Diagnosis; D013548:Sweden