title: The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents.
abstract: Health-related quality of life (HRQOL) has been recognized as an important outcome, some contend the most important outcome for children's health care interventions. The PedsQL Measurement Model was designed as a modular approach to measuring pediatric health-related quality of life, developed to integrate the relative merits of generic and disease-specific approaches. We suggest that part of the process of improving the quality of health care includes measuring HRQOL outcomes from the perspective of children and their parents on a routine basis, consistent with a consumer-based health care system approach.
authors: Department of Pediatrics, College of Medicine, Texas A&M University, College Station, TX 77843, USA. jvarni@archmail.tamu.edu
authors: James W
authors: JW
authors: Varni
authors: Christine A
authors: CA
authors: Limbers
mesh_terms: D001168:Arthritis; D001249:Asthma; D001932:Brain Neoplasms; D002547:Cerebral Palsy; D002648:Child; D003922:Diabetes Mellitus, Type 1; D005221:Fatigue; D006304:Health Status; D006331:Heart Diseases; D006801:Humans; D009369:Neoplasms; D017063:Outcome Assessment, Health Care / Q000379:methods*; D010290:Parents; D010372:Pediatrics / Q000592:standards; D011788:Quality of Life; D012216:Rheumatic Diseases; D018570:Risk Assessment; D012680:Sensitivity and Specificity; D011795:Surveys and Questionnaires / Q000592:standards*; D014177:Translations; D014481:United States