title: Are guidelines for genetic testing of children necessary?
abstract: There is now a plethora of guidance on the genetic testing of children. This paper explores the recommendation that childhood testing for adult on-set conditions should be delayed until the child can make up their own mind. It analyses the underpinning arguments used to support this position and asks whether, given some of the problems with these, the guidelines are really necessary.
authors.affiliation: School of Medicine, University of Southampton, Boldrewood Campus, Bassett Crescent East, Southampton, SO16 7PX, Hampshire. ajf3@soton.ac.uk
authors.forename: Angela
authors.initials: A
authors.lastname: Fenwick
mesh_terms: D000367:Age Factors; D002648:Child; D002657:Child Development; D003071:Cognition / Q000941:ethics; D003219:Confidentiality / Q000941:ethics; D016208:Databases, Factual; D003657:Decision Making / Q000941:ethics; D026689:Ethical Analysis; D004992:Ethics, Medical; D005192:Family Health; D005817:Genetic Counseling / Q000941:ethics*; D020022:Genetic Predisposition to Disease / Q000453:epidemiology* / Q000235:genetics; D030661:Genetic Privacy / Q000331:legislation & jurisprudence*; D005820:Genetic Testing / Q000379:methods*; D017408:Guidelines as Topic; D006801:Humans; D007258:Informed Consent / Q000941:ethics; D037141:Mandatory Programs; D010819:Physician's Role; D017410:Practice Guidelines as Topic / Q000592:standards*; D018570:Risk Assessment / Q000941:ethics; D012649:Self Concept; D012955:Societies, Medical
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