[Congenital adrenal hyperplasia and growth hormone deficiency. Special care in transition to adulthood].
Children with chronically endocrine diseases should be treated as young adults by adult endocrinologists. To optimize the transfer from the pediatric to adult endocrinologist, the model of a common transition clinic has been developed. Within this setting it should be possible to exchange experiences, extend the knowledge and understanding of the disease with the other side, and to provide for the patient an optimal outpatient care. This model, however, has only been sporadically realized to date. To set an example for the problems of the transition into adult endocrinology, we used two different endocrine diseases, the classical congenital adrenal hyperplasia due to 21-hydroxylase deficiency, and the childhood-onset growth hormone deficiency. Specific problems for this transfer to adult care are the fixation of the patients to their pediatricians and the lack of comprehension in the need of a long term and continuous therapy. The consequence is a dramatic impairment in the quality of the therapy.
Dörr
H G
HG
Pädiatrische Endokrinologie, Kinder- und Jugendklinik, Universität Erlangen, Loschgestrasse 15, 91054, Erlangen. helmuth-guenther.doerr@uk-erlangen.de
Schöfl
C
C
D000293:Adolescent; D016497:Adolescent Health Services / Q000639:trends*; D000312:Adrenal Hyperplasia, Congenital / Q000175:diagnosis* / Q000628:therapy*; D000328:Adult; D003695:Delivery of Health Care / Q000639:trends*; D005858:Germany; D006301:Health Services Needs and Demand / Q000639:trends; D019456:Health Transition; D006801:Humans; D007388:Internal Medicine / Q000639:trends*; D046150:Laron Syndrome / Q000175:diagnosis* / Q000628:therapy*; D010372:Pediatrics / Q000639:trends; D055815:Young Adult
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