title: Service and support needs of Australian carers supporting a family member with disability at home.
abstract: BACKGROUND
  As part of an international, multicentre project, the service and support needs of Australian family carers were investigated.
  
  
  METHODS
  A sample of 1,390, 448 family carers completed a self-report survey, including an adaptation of the Family Needs Survey (FNS) and several open-ended questions. A mixed method design was used, employing quantitative and qualitative analyses.
  
  
  RESULTS
  On the FNS the most frequently endorsed items were those relating to the need for information about services and, in particular, future, out-of-home accommodation. Similarly, the need for respite services was endorsed by over 80% of respondents. Comments indicated that access to and the quality of respite, day support, and therapy programs were a priority.
  
  
  CONCLUSIONS
  Participants expressed the need for greater access to information. Access to appropriate respite options, together with quality day support and therapy services, remain a priority for family carers.
authors.affiliation: University of Tasmania, Hobart, Australia.
authors.forename: Rosanne
authors.initials: R
authors.lastname: Burton-Smith
authors.forename: Keith R
authors.initials: KR
authors.lastname: McVilly
authors.forename: Marie
authors.initials: M
authors.lastname: Yazbeck
authors.forename: Trevor R
authors.initials: TR
authors.lastname: Parmenter
authors.forename: Takako
authors.initials: T
authors.lastname: Tsutsui
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001315:Australia; D017028:Caregivers; D019090:Case Management; D003631:Day Care, Medical; D005190:Family; D005260:Female; D005378:Financial Support; D016352:Group Homes; D006296:Health Services; D006297:Health Services Accessibility; D006801:Humans; D007255:Information Services; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D009735:Nursing Homes; D010344:Patient Advocacy; D011787:Quality of Health Care; D012144:Respite Care; D012944:Social Support; D011795:Surveys and Questionnaires; D014187:Transportation of Patients; D055815:Young Adult