title: Mapping the information resources available to patients with colorectal cancer.
abstract: The objectives of this study were to identify gaps in information provision along the colorectal cancer (CRC) treatment pathway as provided by health services within the North Eastern Metropolitan Integrated Cancer Service in Victoria Australia; to evaluate the information and recommend consistent, high quality health information resources; and to recommend strategies to improve delivery of patient information. A random sample of health professionals (n= 47) from various disciplines at eight health service sites participated in semi-structured interviews regarding the types of information they provided to CRC patients. Information items were mapped against a published CRC patient management framework and evaluated. A total of 193 information items were collected with 24 items specific to CRC. Gaps in information provision were evident in the community, at diagnosis, in clinics, when treatment was determined and when completed. The quality of information delivery to CRC patients across the public health sites was variable. Resources were often unavailable, out of date and inaccessible in other languages. Results indicate a need to improve health information availability and resource delivery to all CRC patients across different health services particularly at diagnosis and after treatment. Further research is required to determine patient preferences for information about CRC.
authors.affiliation: Faculty of Health, Medicine, Nursing and Behavioural Sciences, Deakin University, Melbourne, Vic., Australia.
authors.forename: S J
authors.initials: SJ
authors.lastname: King
authors.forename: P M
authors.initials: PM
authors.lastname: Livingston
authors.forename: L
authors.initials: L
authors.lastname: Turner
authors.forename: K
authors.initials: K
authors.lastname: Byrne
authors.forename: M
authors.initials: M
authors.lastname: John
authors.forename: J
authors.initials: J
authors.lastname: Sidwell
authors.forename: C
authors.initials: C
authors.lastname: Scott
mesh_terms: D015179:Colorectal Neoplasms; D006282:Health Personnel; D006301:Health Services Needs and Demand / Q000458:organization & administration / Q000592:standards*; D006801:Humans; D010353:Patient Education as Topic / Q000458:organization & administration / Q000592:standards*; D014739:Victoria