Experience and perspectives of caregivers of spouse with mild cognitive impairment.
The purpose of this paper is to describe commonalities of the lived experience of being a spouse caregiver of a person with mild cognitive impairment (MCI). The Colaizzi method of empirical phenomenology was used for inter-viewing and analyzing data obtained from 10 spouse caregivers of persons with MCI. Four major themes were found and labeled: (a) Putting the Puzzle Pieces Together-There Really is Something Wrong; (b) A Downward Spiral into a World of Silence; (c) Consequences to Caregivers of Living in a World of Silence; (d) Taking Charge of Care. The findings of this study provided rich data to guide interventions to help caregivers to improve their awareness of MCI, gain new information and skills to deal more effectively with and adjust to the caregiving of their spouse with MCI over the long-term.
Lu
Yueh-Feng Yvonne
YF
Adult Health Nursing, Indiana University School of Nursing, 1111 Middle Drive, NU450B, Indiana University School of Nursing, Indianapolis, IN 46202, USA. yuelu@iupui.edu
Haase
Joan E
JE
D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D003072:Cognition Disorders / Q000523:psychology*; D017281:Cost of Illness; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011788:Quality of Life; D012944:Social Support; D018454:Spouses / Q000523:psychology*; D013315:Stress, Psychological / Q000523:psychology
Gerontologist. 2004 Jun;44(3):318-27
15197286
Neurology. 2002 Mar 12;58(5):758-64
11889240
Gerontologist. 1996 Oct;36(5):614-26
8942105
Int J Geriatr Psychiatry. 2005 Jun;20(6):512-22
15920711
Gerontologist. 1995 Dec;35(6):771-91
8557205
Arch Neurol. 2001 Mar;58(3):397-405
11255443
Int J Geriatr Psychiatry. 2001 Nov;16(11):1092-7
11746656
Int J Geriatr Psychiatry. 1998 Apr;13(4):248-56
9646153
Am J Alzheimers Dis Other Demen. 2007 Aug-Sep;22(4):273-85
17712158
West J Nurs Res. 2007 Dec;29(8):976-92
17984481
Lancet. 2006 Apr 15;367(9518):1262-70
16631882
Aging Ment Health. 2005 May;9(3):272-80
16019281
Int J Aging Hum Dev. 1996;43(1):35-92
8886875
Gerontologist. 2002 Jun;42(3):356-72
12040138
West J Nurs Res. 2007 Dec;29(8):944-60
17596639
Gerontologist. 1986 Jun;26(3):253-9
3721232
Lancet Neurol. 2003 Jan;2(1):15-21
12849297
J Geriatr Psychiatry Neurol. 2007 Dec;20(4):215-26
18004008
West J Nurs Res. 2007 Dec;29(8):993-1014
17630389
Arch Neurol. 1999 Mar;56(3):303-8
10190820
Health Soc Work. 1996 Nov;21(4):247-54
8911956
Res Nurs Health. 2002 Aug;25(4):307-16
12124724
J Clin Epidemiol. 1992 Jan;45(1):61-70
1738013
Alzheimers Dement. 2006 Jul;2(3):220-33
19595891
J Adv Nurs. 2001 Jun;34(6):804-12
11422551
JAMA. 2002 Sep 25;288(12):1475-83
12243634
Geriatrics. 1997 Sep;52 Suppl 2:S33-6
9307584
Gerontologist. 2000 Oct;40(5):540-8
11037932
Arch Psychiatr Nurs. 2003 Jun;17(3):135-43
12840806
Gerontologist. 2002 Oct;42(5):589-602
12351794
Arch Neurol. 2004 Aug;61(8):1290-3
15313849
Neurology. 2001 Nov 13;57(9):1655-62
11706107
Psychol Med. 2003 Aug;33(6):1029-38
12946087
Alzheimer Dis Assoc Disord. 2004 Jan-Mar;18(1):1-2
15195456
J Gerontol B Psychol Sci Soc Sci. 2007 Mar;62(2):P126-37
17379673
Res Nurs Health. 2001 Oct;24(5):349-60
11746065
Neurology. 2004 Apr 13;62(7):1199-201
15079026
Lancet. 1997 Jun 21;349(9068):1793-6
9269213
Neuroimage. 2004 Sep;23(1):35-45
15325350
Gerontologist. 2002 Dec;42(6):772-80
12451158
Rehabil Nurs. 2005 Sep-Oct;30(5):189-96; discussion 197
16175924
Neurology. 2003 Aug 26;61(4):438-44
12939414
Psychol Aging. 1998 Mar;13(1):150-8
9533197
Gerontologist. 1994 Feb;34(1):95-102
8150316
Gerontologist. 1986 Jun;26(3):260-6
3721233