title: Feasibility and preliminary outcomes from a pilot study of coping skills training for adolescent--young adult survivors of childhood cancer and their parents.
abstract: Uncertainty is a central feature of long-term childhood cancer survivorship during which time it principally has to do with late effects. Therefore, the purposes of this article are (a) to assess feasibility of a randomized clinical trial of a telephone-delivered coping skills training (CST) intervention in terms of recruitment, retention, and timeline, as well as the performance of the study measures; and (b) to demonstrate trends in change on outcomes within the context of a small pilot study. The results of this pilot study suggest that HEROS PLUS CST has clinical relevance and that in-person long-term follow-up plus telephone-delivered psychosocial care is a practical way to deliver integrated care to adolescent-young adult childhood cancer survivors and their parents.
authors.affiliation: Family Health Division, and the Carol A Beerstecher-Blackwell Distinguished Scholar, School of Nursing, The University of North Carolina at Chapel Hill, NC, USA.
authors.forename: Sheila
authors.initials: S
authors.lastname: Judge Santacroce
authors.forename: Kirsten
authors.initials: K
authors.lastname: Asmus
authors.forename: Nina
authors.initials: N
authors.lastname: Kadan-Lottick
authors.forename: Margaret
authors.initials: M
authors.lastname: Grey
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D005260:Female; D006282:Health Personnel; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000453:epidemiology / Q000451:nursing*; D009859:Oncology Nursing; D010290:Parents; D010353:Patient Education as Topic; D010371:Pediatric Nursing; D010865:Pilot Projects; D011369:Professional-Patient Relations; D011594:Psychometrics; D013223:Statistics as Topic; D013313:Stress Disorders, Post-Traumatic / Q000209:etiology / Q000517:prevention & control; D013315:Stress, Psychological; D017741:Survivors; D013689:Telephone; D016896:Treatment Outcome; D035501:Uncertainty; D014481:United States / Q000453:epidemiology; D055815:Young Adult