title: Using non-pharmacological approaches for CJD patient and family support as provided by the CJD foundation and CJD insight.
abstract: Creutzfeldt-Jakob disease (CJD) is a rare, degenerative and fatal brain disease that appears to be caused by an abnormal form of a protein called a prion. Due to the lack of an effective treatment for CJD, support for patients and family members is crucial. Appropriate education of the healthcare community on this rare disease and provision of palliative care are critically needed. The CJD Foundation and CJD Insight were formed to provide services to patients and families affected by prion diseases.
authors.affiliation: CJD Foundation, P.O. Box 5312, Akron, OH 44334, USA. florence@cjdfoundation.org
authors.forename: Florence J
authors.initials: FJ
authors.lastname: Kranitz
authors.forename: Deana M
authors.initials: DM
authors.lastname: Simpson
mesh_terms: D017028:Caregivers; D003376:Counseling; D007562:Creutzfeldt-Jakob Syndrome / Q000628:therapy*; D005190:Family; D005582:Foundations; D006801:Humans; D012944:Social Support