title: A nurse-led intensive care after-care programme - development, experiences and preliminary evaluation.
abstract: BACKGROUND
  The benefits of critical care follow-up services include increased understanding of the long-term consequences of intensive care and entail helping patients and their next of kin to come to terms with their problems and distress following critical illness and intensive care treatment.
  
  
  OBJECTIVE
  To establish an intensive care after-care programme and to conduct a preliminary evaluation of the follow-up service from the patients' and relatives' perspectives in a general intensive care unit (ICU) in Sweden.
  
  
  METHODS
  A descriptive and evaluative design was used, and data from the first year of the after-care programme were collected. The final programme was nurse led and included five main points; a patient diary with colour photographs, ward visits, a patient information pamphlet, a follow-up consultation 2-3 months after intensive care discharge and feedback to the ICU staff. An evaluation questionnaire was handed out to patients and next of kin attending the follow-up clinic, e.g. asking the respondents to rate their satisfaction of the consultation on a visual analogue scale (VAS).
  
  
  RESULTS
  The first year of after-care statistics showed that 170 survivors with a stay of 48 h or more were discharged from the ICU, resulting in 190 ward visits and 79 follow-up consultations. The preliminary evaluation revealed that the 2-month follow-up consultation achieved a median VAS rating of 9.8 (ranging from 1 to 10, poor to excellent) from both patients and next of kin.
  
  
  CONCLUSIONS
  The development and preliminary evaluation of this nurse-led intensive care programme resulted in a feasible programme, requiring modest resources, with a high level of patient and relative satisfaction.
  
  
  CONCLUSIONS
  This paper attempts to share with professional colleagues important steps during the developmental process of establishing an intensive care follow-up service and presents the content and preliminary evaluation of a nurse-led intensive care after-care programme focusing on the patients' and relatives' perspectives.
authors.affiliation: Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden. karin.samuelson@med.lu.se
authors.forename: Karin A M
authors.initials: KA
authors.lastname: Samuelson
authors.forename: Ingrid
authors.initials: I
authors.lastname: Corrigan
mesh_terms: D000328:Adult; D000359:Aftercare / Q000458:organization & administration / Q000523:psychology; D000368:Aged; D003422:Critical Care / Q000458:organization & administration / Q000523:psychology; D005260:Female; D006801:Humans; D007857:Leadership; D007902:Length of Stay / Q000706:statistics & numerical data; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D024802:Nurse's Role; D009730:Nursing Assessment; D015403:Nursing Evaluation Research; D015404:Nursing Methodology Research; D010351:Patient Discharge; D017060:Patient Satisfaction; D016730:Program Development; D015397:Program Evaluation; D012017:Referral and Consultation; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology*; D013548:Sweden