Parent versus child assessment of quality of life in children using cochlear implants.
OBJECTIVE
Children with hearing loss who use cochlear implants have lower quality of life (QoL) in social situations and lower self-esteem than hearing peers. The child's QoL has been assessed primarily by asking the parent rather than asking the child. This poses a problem because parents have difficulty judging less observable aspects like self-esteem and socio-emotional functioning, the domains most affected by hearing loss.


METHODS
This case-control study evaluated QoL in 50 preschoolers using a cochlear implant and their parents with the Kiddy KINDL(®), an established QoL measure. Children's responses were compared to a hearing control group and correlated with demographic variables. We used a questionnaire for parents and a face-to-face interview with children. T-tests were used to compare (a) paired parent-child ratings and (b) children with cochlear implants versus normal hearing. Pearson rank correlations were used to compare QoL with demographic variables.


RESULTS
Children using cochlear implants rated overall QoL significantly more positively than their parents (M(Difference)=4.22, p=.03). Child rating of QoL did not differ significantly by auditory status (cochlear implant (82.8) vs. hearing (80.8), p=.42). Overall QoL correlated inversely with cochlear implant experience and chronologic age, but did not correlate with implantation age.


CONCLUSIONS
Preschool children using cochlear implants can assess adequately their own QoL, but parents afford valuable complementary perspective on the child's socio-emotional and physical well-being. Preschool children using cochlear implants rate overall QoL measures similar to hearing peers. A constellation of QoL measures should be collected to yield a better understanding of general QoL as well as specific domains centered on hearing loss.
Warner-Czyz
Andrea D
AD
The University of Texas at Dallas, Callier Advanced Hearing Research Center, 1966 Inwood Road, Dallas, TX 75235, USA. warnerczyz@utdallas.edu
Loy
Betty
B
Roland
Peter S
PS
Tong
Liyue
L
Tobey
Emily A
EA
D000222:Adaptation, Physiological; D000223:Adaptation, Psychological; D000367:Age Factors; D016022:Case-Control Studies; D002675:Child, Preschool; D019929:Cochlear Implantation / Q000009:adverse effects / Q000379:methods*; D003054:Cochlear Implants; D003638:Deafness / Q000175:diagnosis / Q000601:surgery; D005260:Female; D006319:Hearing Loss, Sensorineural / Q000175:diagnosis / Q000601:surgery*; D006801:Humans; D008297:Male; D010290:Parents; D017060:Patient Satisfaction / Q000706:statistics & numerical data; D011788:Quality of Life; D012016:Reference Values; D012647:Self-Assessment; D012737:Sex Factors; D011795:Surveys and Questionnaires
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