title: International Quotidian Dialysis Registry: annual report 2009.
abstract: The International Quotidian Dialysis Registry (IQDR) is a global initiative designed to study practices and outcomes associated with the use of hemodialysis regimens of increased frequency and/or duration. Several small studies suggest that compared with conventional hemodialysis (HD), short-daily, nocturnal, and long conventional HD regimens may improve surrogate endpoints and quality of life. However, methodologically robust comparisons on hard outcomes are sorely lacking. The IQDR represents the first-ever attempt to aggregate long-term follow-up data from centers utilizing alternative HD regimens worldwide, and will have adequate statistical power to examine the effects of these regimens on multiple clinical endpoints, including mortality. To date, the IQDR has enrolled patients from Canada, the United States, Australia, and New Zealand, with plans in place to begin linking with additional commercial databases and national registries. This fifth annual report of the IQDR describes (1) a proposed governance structure that will facilitate international collaboration, stakeholder input and funding; (2) data sources and participating registries; (3) recruitment to date and patient baseline characteristics; and (4) an agenda for future research.
authors.affiliation: Department of Nephrology, Humber River Regional Hospital, Toronto, ON, Canada.
authors.forename: Gihad E
authors.initials: GE
authors.lastname: Nesrallah
authors.forename: Rita S
authors.initials: RS
authors.lastname: Suri
authors.forename: Louise M
authors.initials: LM
authors.lastname: Moist
authors.forename: Meaghan
authors.initials: M
authors.lastname: Cuerden
authors.forename: Karen E
authors.initials: KE
authors.lastname: Groeneweg
authors.forename: Raymond
authors.initials: R
authors.lastname: Hakim
authors.forename: Norma J
authors.initials: NJ
authors.lastname: Ofsthun
authors.forename: Stephen P
authors.initials: SP
authors.lastname: McDonald
authors.forename: Carmel
authors.initials: C
authors.lastname: Hawley
authors.forename: Fergus J
authors.initials: FJ
authors.lastname: Caskey
authors.forename: Cecile
authors.initials: C
authors.lastname: Couchoud
authors.forename: Christian
authors.initials: C
authors.lastname: Awaraji
authors.forename: Robert M
authors.initials: RM
authors.lastname: Lindsay
mesh_terms: D006801:Humans; D007391:International Cooperation; D007676:Kidney Failure, Chronic / Q000453:epidemiology* / Q000628:therapy*; D012042:Registries; D006435:Renal Dialysis; D016896:Treatment Outcome