From support to boundary: a qualitative study of the border between self-care and professional care.
OBJECTIVE
While healthcare systems globally are promoting self-care, patients' perceptions of the policy shift remain relatively unexplored. Our qualitative study explored how organisation of care shaped patients' perceptions and experiences of self-care in dealing with their respiratory illnesses.


METHODS
We recruited 31 people, representing a range of ages and respiratory conditions and generated data using illness diaries, telephone interviews and focus group discussions. Data were transcribed, analysed and triangulated using the framework approach.


RESULTS
Patients were aware of the increasing focus on self-care, but felt that the term was incongruous as it described what they were already doing. While many respondents appreciated increased clinical responsibility some felt 'abandoned' by professionals. To be active partners in care, they needed flexible access to trusted healthcare professionals who respected patients' knowledge about their condition and preferences for management.


CONCLUSIONS
The shift to self-care needs to be underpinned by a whole system change. Professionals need communication skills to engage with patients as partners in care, working within systems that offer flexible access to supportive care.


CONCLUSIONS
Systems of care for people with long-term conditions need to ensure flexible access between self-care and professional support. Simplification of systems, clear sign-posting and co-ordination of individual patient care by a key trusted professional are essential.
Kielmann
Tara
T
Centre for Population Health Sciences, University of Edinburgh, UK. tara.kielmann@ed.ac.uk
Huby
Guro
G
Powell
Alison
A
Sheikh
Aziz
A
Price
David
D
Williams
Sian
S
Pinnock
Hilary
H
D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D003142:Communication; D005260:Female; D017144:Focus Groups; D007722:Health Knowledge, Attitudes, Practice; D006291:Health Policy; D006801:Humans; D008297:Male; D008875:Middle Aged; D010342:Patient Acceptance of Health Care; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D024382:Professional Role; D011369:Professional-Patient Relations; D036301:Qualitative Research; D012648:Self Care; D012944:Social Support