Surrogate consent for genomics research in intensive care.
Surrogate decision makers may be poorly prepared to give informed consent for genomics research for their loved ones in intensive care. A review of the challenges and strategies associated with obtaining surrogates' consent for genomics research in intensive care patients revealed that few well-controlled studies have been done on this topic. Yet, a major theme in the literature is the role of health care professionals in guiding surrogates through the informed consent process rather than simply witnessing a signature. Informed consent requires explicit strategies to approach potential surrogates effectively, educate them, and ensure that informed consent has been attained.
Shelton
Ann K
AK
ITT-Technical Institute, St Louis, Missouri, USA. stlKshelton@aol.com
Fish
Anne F
AF
Cobb
J Perren
JP
Bachman
Jean A
JA
Jenkins
Ruth L
RL
Battistich
Victor
V
Freeman
Bradley D
BD
D035843:Biomedical Research / Q000941:ethics*; D003422:Critical Care; D016638:Critical Illness; D003657:Decision Making; D005820:Genetic Testing / Q000941:ethics*; D006801:Humans; D007362:Intensive Care Units; D020458:Third-Party Consent / Q000941:ethics*