title: Surrogate consent for genomics research in intensive care.
abstract: Surrogate decision makers may be poorly prepared to give informed consent for genomics research for their loved ones in intensive care. A review of the challenges and strategies associated with obtaining surrogates' consent for genomics research in intensive care patients revealed that few well-controlled studies have been done on this topic. Yet, a major theme in the literature is the role of health care professionals in guiding surrogates through the informed consent process rather than simply witnessing a signature. Informed consent requires explicit strategies to approach potential surrogates effectively, educate them, and ensure that informed consent has been attained.
authors.affiliation: ITT-Technical Institute, St Louis, Missouri, USA. stlKshelton@aol.com
authors.forename: Ann K
authors.initials: AK
authors.lastname: Shelton
authors.forename: Anne F
authors.initials: AF
authors.lastname: Fish
authors.forename: J Perren
authors.initials: JP
authors.lastname: Cobb
authors.forename: Jean A
authors.initials: JA
authors.lastname: Bachman
authors.forename: Ruth L
authors.initials: RL
authors.lastname: Jenkins
authors.forename: Victor
authors.initials: V
authors.lastname: Battistich
authors.forename: Bradley D
authors.initials: BD
authors.lastname: Freeman
mesh_terms: D035843:Biomedical Research / Q000941:ethics*; D003422:Critical Care; D016638:Critical Illness; D003657:Decision Making; D005820:Genetic Testing / Q000941:ethics*; D006801:Humans; D007362:Intensive Care Units; D020458:Third-Party Consent / Q000941:ethics*