The challenges of caring for children with a rare skin disorder. Interview by Teresa O'Connor.
Cassidy
Sharon
S
McKenzie
Jan
J
D004820:Epidermolysis Bullosa / Q000453:epidemiology / Q000235:genetics / Q000517:prevention & control*; D006801:Humans; D007223:Infant; D008297:Male; D009520:New Zealand / Q000453:epidemiology; D009720:Nurse Clinicians / Q000458:organization & administration / Q000523:psychology*; D024802:Nurse's Role; D010348:Patient Care Team; D010351:Patient Discharge; D010371:Pediatric Nursing / Q000458:organization & administration*; D035583:Rare Diseases; D017592:Skin Care / Q000379:methods / Q000451:nursing