title: Validation of the Spanish, Portuguese and French versions of the Lupus Damage Index questionnaire: data from North and South America, Spain and Portugal.
abstract: We have previously developed and validated a self-administered questionnaire, modelled after the Systemic Lupus International Collaborating Clinics Damage Index (SDI), the Lupus Damage Index Questionnaire (LDIQ), which may allow the ascertainment of this construct in systemic lupus erythematosus (SLE) patients followed in the community and thus expand observations made about damage. We have now translated, back-translated and adapted the LDIQ to Spanish, Portuguese and French and applied it to patients followed at academic and non-academic centres in North and South America, Portugal and Spain while their physicians scored the SDI. A total of 887 patients (659 Spanish-speaking, 140 Portuguese-speaking and 80 French-speaking patients) and 40 physicians participated. Overall, patients scored all LDIQ versions higher than their physicians (total score and all domains). Infrequent manifestations had less optimal clinimetric properties but overall agreement was more than 95% for the majority of items. Higher correlations were observed among the Spanish-speaking patients than the Portuguese-speaking and French-speaking patients; further adjustments may be needed before the Portuguese and French versions of the LDIQ are applied in community-based studies. The relationship between the LDIQ and other outcome parameters is currently being investigated in a different patient sample.
authors.affiliation: Grupo Latíno Americano de Estudio de Lupus or Latin America Group for the Study of Lupus, Rosario, Argentina.
authors.forename: B A
authors.initials: BA
authors.lastname: Pons-Estel
authors.forename: J
authors.initials: J
authors.lastname: Sánchez-Guerrero
authors.forename: J
authors.initials: J
authors.lastname: Romero-Díaz
authors.forename: A
authors.initials: A
authors.lastname: Iglesias-Gamarra
authors.forename: E
authors.initials: E
authors.lastname: Bonfa
authors.forename: E F
authors.initials: EF
authors.lastname: Borba
authors.forename: S K
authors.initials: SK
authors.lastname: Shinjo
authors.forename: S
authors.initials: S
authors.lastname: Bernatsky
authors.forename: A
authors.initials: A
authors.lastname: Clarke
authors.forename: M A
authors.initials: MA
authors.lastname: García
authors.forename: J C
authors.initials: JC
authors.lastname: Marcos
authors.forename: A
authors.initials: A
authors.lastname: Duarte
authors.forename: G A
authors.initials: GA
authors.lastname: Berbotto
authors.forename: H
authors.initials: H
authors.lastname: Scherbarth
authors.forename: C D
authors.initials: CD
authors.lastname: Marques
authors.forename: L
authors.initials: L
authors.lastname: Onetti
authors.forename: V
authors.initials: V
authors.lastname: Saurit
authors.forename: A W S
authors.initials: AW
authors.lastname: Souza
authors.forename: E
authors.initials: E
authors.lastname: Velozo
authors.forename: L J
authors.initials: LJ
authors.lastname: Catoggio
authors.forename: O
authors.initials: O
authors.lastname: Neira
authors.forename: P I
authors.initials: PI
authors.lastname: Burgos
authors.forename: L A
authors.initials: LA
authors.lastname: Ramirez
authors.forename: J F
authors.initials: JF
authors.lastname: Molina
authors.forename: I G
authors.initials: IG
authors.lastname: De La Torre
authors.forename: R
authors.initials: R
authors.lastname: Silvariño
authors.forename: J A
authors.initials: JA
authors.lastname: Manni
authors.forename: S
authors.initials: S
authors.lastname: Durán-Barragán
authors.forename: L M
authors.initials: LM
authors.lastname: Vilá
authors.forename: P R
authors.initials: PR
authors.lastname: Fortin
authors.forename: J
authors.initials: J
authors.lastname: Calvo-Alén
authors.forename: M J
authors.initials: MJ
authors.lastname: Santos
authors.forename: M
authors.initials: M
authors.lastname: Portela
authors.forename: M H
authors.initials: MH
authors.lastname: Esteva-Spinetti
authors.forename: M
authors.initials: M
authors.lastname: Weisman
authors.forename: E M
authors.initials: EM
authors.lastname: Acevedo
authors.forename: M I
authors.initials: MI
authors.lastname: Segami
authors.forename: S B
authors.initials: SB
authors.lastname: Gentiletti
authors.forename: J
authors.initials: J
authors.lastname: Roldán
authors.forename: I
authors.initials: I
authors.lastname: Navarro
authors.forename: E
authors.initials: E
authors.lastname: Gonzalez
authors.forename: J M
authors.initials: JM
authors.lastname: Liu
authors.forename: E W
authors.initials: EW
authors.lastname: Karlson
authors.forename: K H
authors.initials: KH
authors.lastname: Costenbader
authors.forename: F
authors.initials: F
authors.lastname: Wolfe
authors.forename: G S
authors.initials: GS
authors.lastname: Alarcón
mesh_terms: D000328:Adult; D005260:Female; D006306:Health Surveys; D006801:Humans; D007802:Language; D008180:Lupus Erythematosus, Systemic / Q000473:pathology / Q000503:physiopathology; D009656:North America; D011174:Portugal; D015203:Reproducibility of Results; D012720:Severity of Illness Index; D013020:South America; D013030:Spain; D011795:Surveys and Questionnaires / Q000592:standards