title: Male fertility in cystic fibrosis.
abstract: Infertility rates among males with cystic fibrosis (CF) approximate 97%. No information is currently available within Ireland determining an understanding of fertility issues and the best methods of information provision to this specialized group. This study aimed to determine understanding and preferred approaches to information provision on fertility issues to Irish CF males. A Descriptive Study utilizing prospective coded questionnaires was mailed to a male CF cohort (n=50). Sections included demographics, fertility knowledge & investigation. Response rate was 16/50 (32%). All were aware that CF affected their fertility. More than two-thirds (n=11) were able to provide explanations whilst only one-third (n=5) provided the correct explanation. Significant numbers stated thoughts of marriage and a future family. Half have discussed fertility with a healthcare professional (HCP). Mean age of discussion was 21.9 years. One third preferred an earlier discussion. The commonest first source for information was written material which was also the preferred source. Three-quarters requested further information preferring again, written material. Significant gaps in sex education of Irish CF males exist. Discussion should be initiated by HCPs and centre-directed written material devised to address deficiencies.
authors.affiliation: Respiratory Research Division, Education & Research Centre, Beaumont Hospital, Dublin. schotirmall@rcsi.ie
authors.forename: S H
authors.initials: SH
authors.lastname: Chotirmall
authors.forename: A K
authors.initials: AK
authors.lastname: Mann
authors.forename: P
authors.initials: P
authors.lastname: Branagan
authors.forename: C
authors.initials: C
authors.lastname: O'Donohoe
authors.forename: A M
authors.initials: AM
authors.lastname: Lyons
authors.forename: M G
authors.initials: MG
authors.lastname: Flynn
authors.forename: C
authors.initials: C
authors.lastname: Gunaratnam
authors.forename: S J
authors.initials: SJ
authors.lastname: O'Neill
authors.forename: N G
authors.initials: NG
authors.lastname: McElvaney
mesh_terms: D000328:Adult; D003376:Counseling; D003550:Cystic Fibrosis / Q000453:epidemiology* / Q000209:etiology; D006266:Health Education / Q000706:statistics & numerical data; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007248:Infertility, Male / Q000453:epidemiology* / Q000209:etiology; D007494:Ireland / Q000453:epidemiology; D008297:Male; D011446:Prospective Studies; D011795:Surveys and Questionnaires