Psychosocial experiences of parents of a child with imperforate anus.
OBJECTIVE
This study aims to examine the psychosocial experiences of parents of children with imperforate anus (IA) and to describe their potential positive experiences.


METHODS
Parents of IA children and a comparison group answered a questionnaire, which was analyzed quantitatively and with manifest content analysis.


RESULTS
Social relationships and respect for the child's will were more affected among IA mothers. Positive experiences were revealed in relation to the child, the parent, and the family.


CONCLUSIONS
Support to parents in caring for a child with IA should be individualized and occasionally undertaken through collaboration with experts from child and adolescent psychiatry.
Nisell
Margret
M
Red Cross University College, Karolinska Institutet, Stockholm, Sweden. margret.nisell@ki.se
Ojmyr-Joelsson
Maria
M
Frenckner
Björn
B
Rydelius
Per-Anders
PA
Christensson
Kyllike
K
D000223:Adaptation, Psychological; D000293:Adolescent; D001006:Anus, Imperforate / Q000451:nursing / Q000523:psychology* / Q000601:surgery; D001171:Arthritis, Juvenile / Q000523:psychology; D001294:Attitude to Health; D016009:Chi-Square Distribution; D002648:Child; D017281:Cost of Illness; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008016:Life Change Events; D016015:Logistic Models; D008297:Male; D024802:Nurse's Role; D015404:Nursing Methodology Research; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research; D012189:Retrospective Studies; D012944:Social Support; D018709:Statistics, Nonparametric; D011795:Surveys and Questionnaires; D013548:Sweden