[Registration of ethnicity allowed with conditions].
Registration of an individual's ethnicity is, in the light of the potential risks of stigmatization and discrimination, rightfully considered a sensitive issue. Traditionally, privacy legislation offers special legal protection in the collection, registration etc. of data relating to race and ethnic background. However, if it can be established that registration of ethnicity is necessary for providing good care, registration is lawful. However, registration for health research purposes requires the explicit consent of the persons involved.
Ploem
M C Corrette
MC
Academisch Medisch Centrum/Universiteit van Amsterdam, afd. Sociale Geneeskunde, Amsterdam, The Netherlands. m.c.ploem@amc.uva.nl
D005006:Ethnicity; D006801:Humans; D007258:Informed Consent; D008913:Minority Groups; D009426:Netherlands; D005791:Patient Care / Q000592:standards*; D012042:Registries