title: Utilization of internet-based survivorship care plans by lung cancer survivors.
abstract: BACKGROUND
  Persons living after lung cancer remain an important subset of the cancer survivor population who may be at risk for serious health consequences of lung cancer and its treatments. The Institute of Medicine recommends survivorship care plans for all cancer survivors.
  
  
  METHODS
  A program for the creation of survivorship care plans, OncoLife, was made publicly accessible. Users responded to queries regarding demographics, diagnosis, and treatment and received comprehensive, individualized guidelines for future care addressing issues such as late toxicity, second malignancy, fertility, and tumor recurrence. Data were maintained anonymously with approval from the Institutional Review Board.
  
  
  RESULTS
  From May 2007 to November 2008, 3343 individuals completed OncoLife surveys. Lung cancer survivors comprised 4% (n=142), with a median age at diagnosis of 57 years and median current age of 59 years. Lung cancer survivors were 50% male and 83% Caucasian. Chemotherapy was used in the treatment of 78% of patients with lung cancer, radiation was used in 58%, and surgery was used in 38%. Most lung cancer survivors (62%) reported receiving follow-up care from only an oncologist, while 27% reported being monitored by a primary care provider (PCP) and an oncologist, and 6% saw only a PCP. Only 11% reported receiving survivorship information at the conclusion of therapy.
  
  
  CONCLUSIONS
  OncoLife represents the first Web-based program for the creation of survivorship care plans, and lung cancer survivors appear willing to use this type of tool. Most have received multimodality care, placing them at risk for treatment-related late effects. Most survivors do not report receiving routine care from a PCP, so attention to survivor healthcare needs by the oncology community is particularly important.
authors.affiliation: Department of Radiation Oncology, University of Pennsylvania, and Hospital of the University of Pennsylvania, Philadelphia, PA 19104, USA. hill@xrt.upenn.edu
authors.forename: Christine E
authors.initials: CE
authors.lastname: Hill-Kayser
authors.forename: Carolyn
authors.initials: C
authors.lastname: Vachani
authors.forename: Margaret K
authors.initials: MK
authors.lastname: Hampshire
authors.forename: Linda A
authors.initials: LA
authors.lastname: Jacobs
authors.forename: James M
authors.initials: JM
authors.lastname: Metz
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D003194:Computer-Assisted Instruction; D005260:Female; D006285:Health Planning; D006801:Humans; D020407:Internet; D008175:Lung Neoplasms / Q000401:mortality / Q000503:physiopathology / Q000628:therapy; D008297:Male; D008875:Middle Aged; D015397:Program Evaluation; D011795:Surveys and Questionnaires; D015996:Survival Rate; D014481:United States