Completing the circle: a model for effective community review of environmental health research.
While it is well understood that multiple and cumulative environmental stressors negatively impact health at the community level, existing ethical research review procedures are designed to protect individual research participants but not communities. Increasing concerns regarding the ethical conduct of research in general and environmental and genetic research in particular underscore the need to expand the scope of current human participant research regulations and ethical guidelines to include protections for communities. In an effort to address this issue, West Harlem Environmental Action (WE ACT), a nonprofit, community-based environmental justice organization in New York City that has been involved in community-academic partnerships for the past decade, used qualitative interview data to develop a pilot model for community review of environmental health science research.
Watkins
Beverly Xaviera
BX
Mailman School of Public Health, Columbia University, and New York University School of Medicine, Department of Medicine, Old Bellevue, 6th Floor, Room A619, 530 1st Ave, New York, NY 10016, USA. beverly-xaviera.watkins@nyumc.org
Shepard
Peggy Morrow
PM
Corbin-Mark
Cecil D
CD
D055812:Community-Based Participatory Research; D004782:Environmental Health; D032984:Ethics, Research; D017144:Focus Groups; D006801:Humans; D007407:Interviews as Topic; D017146:Models, Organizational; D009519:New York City