title: Making sense of risk. Donor risk communication in families considering living liver donation to a child.
abstract: This paper contributes to the growing line of thought in bioethics that respect for autonomy should not be equated to the facilitation of individualistic self determination through standard requirements of informed consent in all healthcare contexts. The paper describes how in the context of donation for living related liver transplantation (LRLT) meaningful, responsible decision making is often embedded within family processes and its negotiation. We suggest that good donor risk communication in families promote "conscientious autonomy" and "reflective trust". From this, the paper offers the suggestion that transplant teams and other relevant professionals have to broaden their role and responsibility for risk communication beyond proper disclosure by addressing the impact of varied psychosocial conditions on risk interpretation and assessment for potential donors and family stakeholders. In conclusion, we suggest further research questions on how professional responsibility and role-taking in risk communication should be morally understood.
authors.affiliation: Department of Health Sciences, University Medical Center Groningen, University of Groningen, Expert Center Ethics of Care, 9700 RB, Groningen, The Netherlands. m.e.knibbe@med.umcg.nl
authors.forename: Mare
authors.initials: M
authors.lastname: Knibbe
authors.forename: Marian
authors.initials: M
authors.lastname: Verkerk
mesh_terms: D003142:Communication; D033001:Directed Tissue Donation / Q000941:ethics*; D005190:Family; D005195:Family Relations; D006801:Humans; D016031:Liver Transplantation / Q000941:ethics*; D019520:Living Donors / Q000941:ethics*; D026684:Personal Autonomy; D018570:Risk Assessment; D035502:Trust