title: The meaning of surviving cancer for Latino adolescents and emerging young adults.
abstract: Adolescent and young adult (AYA) survivors of cancer are an understudied population with unique developmental and medical needs that extend well beyond their active treatment. Survivors diagnosed as AYAs may experience both physical and emotional late effects. In particular, the experiences of Latino cancer survivors have not been explored. The purpose of this study was to conduct interviews with AYA Latino cancer survivors to inform professionals working with these survivors. A hermeneutic phenomenological approach was selected based on the focus on experiences and meanings of Latino adolescents' cancer survivorship. Phenomenology allows for understanding the subjective meaning and lived experience of populations that are understudied or marginalized. In-depth interviews were conducted with participants. Enrolled in the study were Latino AYAs between the ages of 14 and 21 years, after treatment. Interviews revealed 7 themes regarding the experience and meaning of survivorship for this population: gratitude, humor/positive attitude, empathy for younger children with cancer, God and faith, cancer happens for a reason/cancer changed my life, familial support, and staff relationships. Latino AYA cancer survivors develop meaning out of unique cancer experiences. Programs need to be developed specifically to address Latino adolescents and young adult survivors of cancer.
authors.affiliation: University of Texas at Austin School of Social Work, 1 University St, D3500, Austin, TX 78751, USA. barbarajones@mail.utexas.edu
authors.forename: Barbara L
authors.initials: BL
authors.lastname: Jones
authors.forename: Deborah L
authors.initials: DL
authors.lastname: Volker
authors.forename: Yolanda
authors.initials: Y
authors.lastname: Vinajeras
authors.forename: Linda
authors.initials: L
authors.lastname: Butros
authors.forename: Cynthia
authors.initials: C
authors.lastname: Fitchpatrick
authors.forename: Kelly
authors.initials: K
authors.lastname: Rossetto
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000367:Age Factors; D002648:Child; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006630:Hispanic or Latino; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000175:diagnosis*; D009516:New Mexico; D010865:Pilot Projects; D011594:Psychometrics; D013315:Stress, Psychological; D017741:Survivors; D013781:Texas; D014481:United States; D055815:Young Adult