title: Young adult survivors of childhood cancer; experiences affecting self-image, relationships, and present life.
abstract: Knowledge about how young adults experience being a childhood cancer survivor is limited, as most previous research concerning the quality of life in survivors of childhood cancer has been conducted using standardized questionnaires. The aim of the current study was to identify and describe young adults' own experiences of long-term effects of cancer treatment on their self-image, relationships, and present life related to the impact of being a survivor of childhood cancer. Interviews were held with 7 young adults, 20 to 23 years of age. The verbatim-transcribed interviews were analyzed using constant comparative analysis. The core category was identified as "compensated life picture." All the negative and difficult experiences are compensated for with a positive view on and positive expectations regarding life. This core category was grounded in 5 categories: living a normal life, bodily changes, relationships with and support from others nearby, sentient life, and personal growth. The findings in this study illustrate the importance for healthcare staff to be aware of young adult survivors' experiences of their childhood cancer and its long-term effects. Extra attention and support from the healthcare system after the concluded treatment period are needed via a support program or support group for young adults.
authors.affiliation: Department of Nursing Science, School of Health Sciences, Jönköping University, PO Box 1026, S-551, 11 Jönköping, Sweden. karin.enskar@hhj.hj.se
authors.forename: Karin
authors.initials: K
authors.lastname: Enskär
authors.forename: Carina
authors.initials: C
authors.lastname: Berterö
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000367:Age Factors; D002648:Child; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000150:complications*; D011594:Psychometrics; D036301:Qualitative Research; D011788:Quality of Life; D012649:Self Concept; D012647:Self-Assessment; D013315:Stress, Psychological / Q000150:complications*; D017741:Survivors; D013548:Sweden; D013997:Time Factors; D055815:Young Adult