title: Disparities by race and ethnicity in cancer survivor stories available on the web.
abstract: BACKGROUND
  The rapid growth of eHealth could have the unintended effect of deepening health disparities between population subgroups. Most concerns to date have focused on population differences in access to technology, but differences may also exist in the appropriateness of online health content for diverse populations.
  
  
  OBJECTIVE
  This paper reports findings from the first descriptive study of online cancer survivor stories by race and ethnicity of the survivor.
  
  
  METHODS
  Using the five highest-rated Internet search engines and a set of search terms that a layperson would use to find cancer survivor stories online, we identified 3738 distinct sites. Of these, 106 met study criteria and contained 7995 total stories, including 1670 with an accompanying photo or video image of the survivor. Characteristics of both websites and survivor stories were coded.
  
  
  RESULTS
  All racial minority groups combined accounted for 9.8% of online cancer survivor stories, despite making up at least 16.3% of prevalent cancer cases. Also notably underrepresented were stories from people of Hispanic ethnicity (4.1%), men (35.7%), survivors of colon cancer (3.5%), and older adults.
  
  
  CONCLUSIONS
  Because racial/ethnic minority cancer survivors are underrepresented in survivor stories available online, it is unlikely that this eHealth resource in its current form will help eliminate the disproportionate burden of cancer experienced by these groups.
authors: Health Communication Research Laboratory and Center for Cultural Cancer Communication, George Warren Brown School of Social Work, Washington University in St. Louis, St. Louis, MO 63112-1408, USA. keddens@gwbmail.wustl.edu
authors: Katherine S
authors: KS
authors: Eddens
authors: Matthew W
authors: MW
authors: Kreuter
authors: Jennifer C
authors: JC
authors: Morgan
authors: Kate E
authors: KE
authors: Beatty
authors: Sina A
authors: SA
authors: Jasim
authors: Lori
authors: L
authors: Garibay
authors: Donghua
authors: D
authors: Tao
authors: Trent D
authors: TD
authors: Buskirk
authors: Keri A
authors: KA
authors: Jupka
mesh_terms: D000328:Adult; D005006:Ethnicity; D005260:Female; D006630:Hispanic or Latino; D006801:Humans; D020407:Internet; D008297:Male; D008913:Minority Groups; D009369:Neoplasms / Q000145:classification / Q000453:epidemiology* / Q000401:mortality; D044469:Racial Groups; D017741:Survivors / Q000706:statistics & numerical data*