International Classification of Functioning, Disability and Health in subjects with alternating hemiplegia of childhood.
OBJECTIVE
To examine the functioning of patients with alternating hemiplegia of childhood (AHC), a very rare clinical condition manifesting with recurrent episodes of hemiplegia lasting from few minutes to several days, paroxysmal occurrence of tonic/dystonic attacks and other autonomic disturbances. Furthermore, patients exhibit chronic disabilities as well as mental retardation, epilepsy and motor disorders that affect the patients' everyday functioning to a considerable extent.


METHODS
Data about 25 patients with AHC (F = 13) aged 3-34 years were collected with International Classification of Functioning Disability and Health (ICF) questionnaires. Data analysis was carried out on four age groups: 3-6, 7-12, 13-18 and >18 years, using only the ICF questionnaires' cross-age items.


RESULTS
In the body functions component, paying attention, seeing, muscle tones were common problems for all age groups. In the activity and participation component, all participants showed problems in basic interpersonal interactions. Finally, in the environmental factors component, barriers concern the climate and health services. On the other hand, families reported adequate support from social services.


CONCLUSIONS
Although these findings must be validated, they appear to be promising and can contribute to understanding the daily functioning features of patients with AHC.
Montirosso
Rosario
R
Department of Child Neuropsychiatry and Neurorehabilitation, IRCCS E.Medea Associazione La Nostra Famiglia, Bosisio Parini (LC), Italy. renato.borgatti@bp.lnf.it
Ceppi
Elisa
E
D'aloisio
Chiara
C
Zucca
Claudio
C
Borgatti
Renato
R
D000203:Activities of Daily Living; D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D015331:Cohort Studies; D004185:Disability Evaluation; D005260:Female; D006429:Hemiplegia / Q000150:complications / Q000175:diagnosis*; D006801:Humans; D008607:Intellectual Disability / Q000150:complications; D008297:Male; D018875:Vocabulary, Controlled; D055815:Young Adult