title: Negotiating the boundary between medicine and consumer culture: online marketing of nutrigenetic tests.
abstract: Genomics researchers and policy makers have accused nutrigenetic testing companies--which provide DNA-based nutritional advice online--of misleading the public. The UK and USA regulation of the tests has hinged on whether they are classed as "medical" devices, and alternative regulatory categories for "lifestyle" and less-serious genetic tests have been proposed. This article presents the findings of a qualitative thematic analysis of the webpages of nine nutrigenetic testing companies. We argue that the companies, mirroring and negotiating the regulatory debates, were creating a new social space for products between medicine and consumer culture. This space was articulated through three themes: (i) how "genes" and tests were framed, (ii) how the individual was imagined vis a vis health information, and (iii) the advice and treatments offered. The themes mapped onto four frames or models for genetic testing: (i) clinical genetics, (ii) medicine, (iii) intermediate, and (iv) lifestyle. We suggest that the genomics researchers and policy makers appeared to perform what Gieryn (Gieryn, T.F. (1983). Boundary-work and the demarcation of science from non-science: strains and interests in professional ideologies of scientists. American Sociological Review, 48, 781-795.) has termed "boundary work", i.e., to delegitimize the tests as outside proper medicine and science. Yet, they legitimated them, though in a different way, by defining them as lifestyle, and we contend that the transformation of the boundaries of science into a creation of such hybrid or compromise categories is symptomatic of current historical times. Social scientists studying medicine have referred to the emergence of "lifestyle" products. This article contributes to this literature by examining the historical, regulatory and marketing processes through which certain goods and services become defined this way.
authors.affiliation: Department of Social Sciences, Loughborough University, Brockington Building, LE113TU Loughborough, Leicestershire, UK. p.saukko@lboro.ac.uk
authors.forename: Paula M
authors.initials: PM
authors.lastname: Saukko
authors.forename: Matthew
authors.initials: M
authors.lastname: Reed
authors.forename: Nicky
authors.initials: N
authors.lastname: Britten
authors.forename: Stuart
authors.initials: S
authors.lastname: Hogarth
mesh_terms: D003132:Commerce / Q000941:ethics / Q000379:methods; D054626:Consumer Health Information / Q000941:ethics*; D036281:Genetic Research; D005820:Genetic Testing / Q000331:legislation & jurisprudence; D033161:Government Regulation; D006291:Health Policy; D006801:Humans; D020407:Internet; D008019:Life Style; D008389:Marketing of Health Services / Q000941:ethics / Q000379:methods; D054647:Nutrigenomics / Q000458:organization & administration; D011050:Policy Making; D036301:Qualitative Research; D006113:United Kingdom; D014481:United States