Guiding policy decisions for genetic screening: developing a systematic and transparent approach.
With the ever-widening gap between what is technologically possible and services available, jurisdictions around the world are faced with complex decisions regarding the introduction and expansion of genetic screening programs. A series of literature reviews and consultations with stakeholders and experts led to the development of a decision support guide for genetic screening policy-making. This involved establishing a preliminary list of core criteria synthesized from the growing literature on genetic screening, which was then transformed through a series of consultations into a more elaborate decision guide. Although certain perennial challenges in genetic screening policy-making remain, the decision support guide aims to promote a fair and evidence-informed process that makes explicit the ethical dilemmas often inherent to such policy decisions.
Andermann
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McGill University, Montreal, Que., Canada. anne.andermann@mail.mcgill.ca
Blancquaert
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Beauchamp
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Costea
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D003659:Decision Making, Organizational; D005820:Genetic Testing / Q000331:legislation & jurisprudence* / Q000458:organization & administration; D017408:Guidelines as Topic; D006291:Health Policy; D006801:Humans; D011050:Policy Making