title: The loneliness of fighting a rare cancer.
abstract: After her mother is diagnosed with gallbladder cancer, a journalist researches how to help find effective therapies for patients who get rare diseases.
authors.affiliation: Wall Street Journal. amydmarcus@aol.com
authors.forename: Amy
authors.initials: A
authors.lastname: Dockser Marcus
mesh_terms: D000739:Anecdotes as Topic; D001900:Boston; D005260:Female; D005653:Fund Raising; D005706:Gallbladder Neoplasms / Q000150:complications / Q000175:diagnosis / Q000523:psychology; D006801:Humans; D008495:Medical Oncology; D009316:National Institutes of Health (U.S.); D009965:Orphan Drug Production / Q000331:legislation & jurisprudence; D010287:Parent-Child Relations; D010344:Patient Advocacy; D010817:Physician-Patient Relations; D011785:Quality Assurance, Health Care / Q000379:methods; D035583:Rare Diseases / Q000175:diagnosis / Q000523:psychology; D009626:Terminology as Topic; D014481:United States