title: Exploring Indian women's reproductive decision-making regarding prenatal testing.
abstract: Pregnant women in large cities and small towns of India are increasingly undergoing prenatal testing (PNT) on the advice of medical practitioners to ensure foetal health and to prevent the birth of disabled children. In the last two decades, several studies have been conducted in India to determine the extent of proliferation of PNT for sex selection, the profile of women/couples who avail themselves of it and their attitudes towards it, but hardly any research exists which studies women's use of PNT for genetic purposes. Drawing on empirical research, this paper aims to identify factors and actors that influence women's decision-making regarding testing and whether to continue a pregnancy after PNT and how informed their choice is. The research shows that once placed in the role of autonomous and responsible decision-makers, women are making very pragmatic decisions, although the information they possess is highly inadequate and incomplete and their life circumstances too constraining.
authors.affiliation: University for Humanistics, Utrecht, Netherlands. jagupta@uvh.nl
authors.forename: Jyotsna Agnihotri
authors.initials: JA
authors.lastname: Gupta
mesh_terms: D000025:Abortion, Eugenic; D003469:Culture; D003657:Decision Making; D005260:Female; D005817:Genetic Counseling; D005820:Genetic Testing; D006801:Humans; D007194:India; D011247:Pregnancy; D011296:Prenatal Diagnosis