The HIV experience: youth identified barriers for transitioning from pediatric to adult care.
OBJECTIVE
The aim of this study was to explore the experiences of youth living with HIV who transitioned from pediatric to adult care.


METHODS
Semi-structured telephone interviews were conducted with 59 youth (mean age = 22 years) living with HIV about the transition experience, demographics, and health status.


RESULTS
Of youth who transitioned to adult care, immune function (CD4) trended downward, 45% found the transition more difficult than anticipated, and 32% could not find emotional support services. Youth identified the need for increased continuity of care, assistance with logistics, improved communication with providers and caregivers, and individualized management of their transition process.


CONCLUSIONS
Without adequate preparation, the transition process can be compromised with potentially serious health consequences. Youth living with HIV seek adult providers that can provide developmentally appropriate transition interventions that address loss, disclosure, and sexual behavior along with medical needs.
Wiener
Lori S
LS
National Cancer Institute, Center for Cancer Research, National Institutes of Health, 10 Center Drive, Bethesda, MD 20892, USA. wienerl@mail.nih.gov
Kohrt
Brie-Anne
BA
Battles
Haven B
HB
Pao
Maryland
M
D000293:Adolescent; D016497:Adolescent Health Services; D000328:Adult; D003266:Continuity of Patient Care; D015658:HIV Infections / Q000628:therapy*; D006679:HIV Seropositivity / Q000628:therapy*; D006297:Health Services Accessibility; D006304:Health Status; D006801:Humans; D007407:Interviews as Topic; D010817:Physician-Patient Relations