title: A multidisciplinary approach to the care of the ventilator-dependent child at home: a case study.
abstract: An estimated 4,300 children in the United States are managed at home on mechanical ventilation. Despite frequent overwhelming challenges, most families are able to maintain a safe and enriching life for the child if they are supported in the home by a multidisciplinary professional team. The Pennsylvania Ventilator Assisted Children's Home Program (VACHP) is a statewide program that coordinates the care of children at home on mechanical ventilation and advocates for the support of families in the community. In this case study, VACHP illustrates the importance of a multidisciplinary approach to care in order to ensure a safe and successful home management of children on mechanical ventilation.
authors.affiliation: Ventilator Assisted Children's Home Program (VACHP), Pennsylvania Department of Health Program, Philadelphia, PA 19103-1454, USA. boroughs@email.chop.edu
authors.forename: Deborah S
authors.initials: DS
authors.lastname: Boroughs
authors.forename: Joan
authors.initials: J
authors.lastname: Dougherty
mesh_terms: D057179:Advanced Practice Nursing / Q000458:organization & administration; D002648:Child; D003152:Community Health Nursing / Q000458:organization & administration*; D003266:Continuity of Patient Care / Q000458:organization & administration*; D005260:Female; D006699:Home Care Services / Q000458:organization & administration*; D006801:Humans; D009937:Organizational Objectives; D010344:Patient Advocacy; D010347:Patient Care Planning / Q000458:organization & administration*; D010348:Patient Care Team / Q000458:organization & administration*; D018802:Patient-Centered Care / Q000458:organization & administration; D010371:Pediatric Nursing / Q000458:organization & administration; D010414:Pennsylvania; D012121:Respiration, Artificial / Q000451:nursing*; D012138:Respiratory Therapy / Q000379:methods; D012944:Social Support; D012947:Social Work / Q000458:organization & administration; D013221:State Health Plans / Q000458:organization & administration