[Perceived quality of life in children with chronic renal disease and in their parents].
BACKGROUND
Chronic renal disease (CRD) affects physical, emotional and social wellbeing of children. Renal adult and adolescent patients have a poorer quality of life (QL) than healthy population but few studies have been performed in children with CRD and appropriate QL measurement tools.


OBJECTIVE
To assess QL in children with CRD comparing it with healthy children.


METHODS
Cross-sectional study in 71 children with CRD and 57 healthy children with the generic health status tool MOSF-SF-20 answered by children older than 9 and their parents and only by parents when children were younger than 9.


RESULTS
Children with CRD have a poorer QL than healthy children with significant differences in general self-esteem, physical performance and physical activity and no significant difference in socialization. On the contrary they refer less pain and emotional discomfort than healthy population. Perceived QL of children by parents is also worse in CRD population affecting all but pain dominions. 9-12 years old children and their parents agree in all QL dominions while parents underestimate social function and emotional well-being when their children were older than 12.


CONCLUSIONS
QL in children with CRD is worse than in healthy children mainly in physical function and general self-esteem and agree with parents perceptions.
Aparicio López
C
C
Servicio de Nefrología Infantil, Hospital General Universitario Gregorio Marañón, Madrid, Spain. cris_aparicio@wanadoo.es
Fernández Escribano
A
A
Garrido Cantanero
G
G
Luque
A
A
Izquierdo García
E
E
D000328:Adult; D002648:Child; D002908:Chronic Disease; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D007674:Kidney Diseases / Q000523:psychology; D008297:Male; D010290:Parents; D011788:Quality of Life; D011795:Surveys and Questionnaires