[Design of a quality of life questionnaire in Spanish for children with chronic kidney disease].
Treatment of chronic kidney disease in childhood must include assessment of social and psychological aspects involved in the perceived quality of life of the child and its family. Our objective has been to design a specific tool in Spanish for measuring quality of life in pediatric patients with chronic kidney disease, since there is not a validated test for children at the moment.


RESULTS
We designed a specific questionnaire for kidney disease in children based on the test of quality of life for adults with kidney disease (KDQOL-SFTM) and on the test of quality of life for children with epilepsy (CAVE) adapting them to children with kidney disease, denominating TECAVNER (Test of Quality of Life in Children with Kidney Disease). Reliability of this questionnaire determined be alfa Cronbach coefficient was 0,92.


CONCLUSIONS
Questionnaire determined by Test-retest reliability and construct validity were not conducted. In conclusion, this is a first approach for design a specific health related quality of life test in Spanish for children with chronic kidney disease.
Aparicio López
C
C
Servicio de Pediatría, Nefrología Pediátrica, Hospital de Getafe, Madrid, Spain. cris_aparicio@wanadoo.es
Fernández Escribano
A
A
Garrido Cantanero
G
G
Luque de Pablos
A
A
Izquierdo García
E
E
D000293:Adolescent; D000328:Adult; D002648:Child; D002908:Chronic Disease; D005260:Female; D006801:Humans; D007674:Kidney Diseases / Q000453:epidemiology / Q000523:psychology* / Q000628:therapy; D008297:Male; D010290:Parents / Q000523:psychology; D010361:Patients / Q000523:psychology; D011788:Quality of Life; D017582:Renal Replacement Therapy / Q000523:psychology; D015203:Reproducibility of Results; D013030:Spain / Q000453:epidemiology; D011795:Surveys and Questionnaires