title: ICF Core Sets for individuals with spinal cord injury in the long-term context.
abstract: METHODS
  A formal decision-making and consensus process integrating evidence gathered from preparatory studies was followed.
  
  
  OBJECTIVE
  The objective of the study was to report on the results of the consensus process to develop the first version of a Comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set, and a Brief ICF Core Set for individuals with spinal cord injury (SCI) in the long-term context.
  
  
  METHODS
  The consensus conference took place in Switzerland. Preparatory studies were performed worldwide.
  
  
  METHODS
  Preparatory studies included an expert survey, a systematic literature review, a qualitative study and empirical data collection involving people with SCI. Relevant ICF categories were identified in a formal consensus process by international experts from different backgrounds.
  
  
  RESULTS
  The preparatory studies identified a set of 595 ICF categories at the second, third or fourth level. A total of 34 experts from 31 countries attended the consensus conference (12 physicians, 6 physical therapists, 5 occupational therapists, 6 nurses, 3 psychologists and 2 social workers). Altogether, 168 second-, third- or fourth-level categories were included in the Comprehensive ICF Core with 44 categories from body functions, 19 from body structures, 64 from activities and participation and 41 from environmental factors. The Brief Core Set included a total of 33 second-level categories with 9 on body functions, 4 on body structures, 11 on activities and participation and 9 on environmental factors.
  
  
  CONCLUSIONS
  A formal consensus process integrating evidence and expert opinion based on the ICF led to the definition of the ICF Core Sets for individuals with SCI in the long-term context. Further validation of this first version is needed.
authors.affiliation: Institute for Health and Rehabilitation Sciences (IHRS), ICF Research Branch WHO FIC Collaborating Center (DIMDI), Ludwig Maximilian University, Munich, Germany.
authors.forename: A
authors.initials: A
authors.lastname: Cieza
authors.forename: I
authors.initials: I
authors.lastname: Kirchberger
authors.forename: F
authors.initials: F
authors.lastname: Biering-Sørensen
authors.forename: M
authors.initials: M
authors.lastname: Baumberger
authors.forename: S
authors.initials: S
authors.lastname: Charlifue
authors.forename: M W
authors.initials: MW
authors.lastname: Post
authors.forename: R
authors.initials: R
authors.lastname: Campbell
authors.forename: A
authors.initials: A
authors.lastname: Kovindha
authors.forename: H
authors.initials: H
authors.lastname: Ring
authors.forename: A
authors.initials: A
authors.lastname: Sinnott
authors.forename: N
authors.initials: N
authors.lastname: Kostanjsek
authors.forename: G
authors.initials: G
authors.lastname: Stucki
mesh_terms: D006801:Humans; D020127:Recovery of Function; D012720:Severity of Illness Index; D013119:Spinal Cord Injuries / Q000145:classification*; D013557:Switzerland