title: Tailoring protocols to successfully recruit and retain older adults in a longitudinal study of sleep and cognition.
abstract: Many studies attest to the challenges of recruiting and retaining older adults in longitudinal studies. This article presents the methods used by the Physiological Research to Improve Sleep and Memory project to recruit and retain 115 adults (age 70 and older) in a 2-year study that involved annual administrations of two neurocognitive test batteries and two nights of polysomnography. Strategies built on knowledge obtained from participant informants and the use of tailored, individualized protocols are described. Together, these strategies enabled participants to become vested in the research process and to fully participate in all aspects of the study.
authors.affiliation: Biobehaviroal Laboratory, School of Nursing, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA. bcarlson@email.unc.edu
authors.forename: Barbara Waag
authors.initials: BW
authors.lastname: Carlson
authors.forename: John R
authors.initials: JR
authors.lastname: Carlson
authors.forename: Virginia J
authors.initials: VJ
authors.lastname: Neelon
authors.forename: Marilyn
authors.initials: M
authors.lastname: Hartman
mesh_terms: D000368:Aged / Q000502:physiology / Q000523:psychology*; D000369:Aged, 80 and over; D002985:Clinical Protocols; D003072:Cognition Disorders / Q000209:etiology; D006301:Health Services Needs and Demand; D006801:Humans; D008137:Longitudinal Studies; D009483:Neuropsychological Tests; D015399:Nursing Research / Q000458:organization & administration*; D010347:Patient Care Planning / Q000458:organization & administration; D010352:Patient Dropouts / Q000523:psychology; D018579:Patient Selection; D017286:Polysomnography; D012107:Research Design; D035842:Research Subjects / Q000523:psychology*; D012890:Sleep / Q000502:physiology