[Care continuity for patients with myopathy during transition of childhood to adulthood].
Recently, patients with myopathies who had not previously been able to survive after adolescence required long-term follow-up and treatment. We here discussed medical practice after adolescence in child neurology for these patients with myopathies, such as muscular dystrophies, Pompe disease and juvenile dermatomyositis. Major issues encountered in such practice included inpatient facilities and community medical networks, especially for patients who receive long-term home mechanical ventilation, management for cardiomyopathy and/or gastrogavage. A full information transfer system between child specialists and adult specialists is needed for the benefit of maturing patients.
Yoshioka
Mieko
M
Department of Pediatric Neurology, Kobe City Pediatric and General Rehabilitation Center for the Challenged.
Tsuji
Masahiro
M
Kawamoto
Michi
M
Kouhara
Nobuo
N
D000293:Adolescent; D000328:Adult; D002648:Child; D019058:Community Networks; D003266:Continuity of Patient Care; D005260:Female; D006699:Home Care Services; D006801:Humans; D008297:Male; D009135:Muscular Diseases / Q000628:therapy*; D009462:Neurology; D012121:Respiration, Artificial; D055815:Young Adult