title: Barriers to accessing quality health care for cancer patients: a survey of members of the association of oncology social work.
abstract: The present article reports data from a cross-sectional survey of members of the Association of Oncology Social Work (AOSW) completed in May 2006. The purpose of the survey was to gather information on AOSW members' practice roles, the clients they serve, and their views on barriers cancer patients face in obtaining quality cancer care. The survey instrument was a self-administered 18-page survey disseminated online and by U.S. mail to members who did not provide e-mail addresses. The response rate to the survey was 62.3% (622/999). Reported barriers to quality cancer care are presented here in three categories: health system, social/environmental, and individual-level barriers. The majority of respondents reported health system barriers, specifically inadequate health insurance, as the major barrier to accessing quality health care for cancer patients. Among social/environmental barriers, inability to pay for treatment-related expenses was the major barrier. Among individual-level barriers, patients' fears and distress were the major barriers. The conclusions from this survey point to the critical role of oncology social workers in assisting cancer patients in overcoming the barriers to quality care and achieving optimum quality of life.
authors.affiliation: Department of Community Health & Family Medicine, University of Florida, Gainesville, Florida 32601, USA. burg@ufl.edu
authors.forename: Mary Ann
authors.initials: MA
authors.lastname: Burg
authors.forename: Brad
authors.initials: B
authors.lastname: Zebrack
authors.forename: Katherine
authors.initials: K
authors.lastname: Walsh
authors.forename: Peter
authors.initials: P
authors.lastname: Maramaldi
authors.forename: Jung-Won
authors.initials: JW
authors.lastname: Lim
authors.forename: Kathryn M
authors.initials: KM
authors.lastname: Smolinski
authors.forename: Kim
authors.initials: K
authors.lastname: Lawson
mesh_terms: D001291:Attitude of Health Personnel; D003430:Cross-Sectional Studies; D006297:Health Services Accessibility / Q000706:statistics & numerical data*; D006801:Humans; D008489:Medical Indigency / Q000706:statistics & numerical data; D017057:Medically Uninsured / Q000706:statistics & numerical data; D009369:Neoplasms / Q000523:psychology / Q000628:therapy*; D024382:Professional Role; D011787:Quality of Health Care; D012947:Social Work; D012952:Societies; D011795:Surveys and Questionnaires; D014481:United States