title: Parental perceptions of the outcome and meaning of normalization.
abstract: The purpose of this secondary analysis was to identify the meaning of normalization for parents of a child with a chronic genetic condition. The sample was comprised of 28 families (48 parents), selected to reflect two groups: Normalization Present (NP) and Normalization Absent (NA). Constant comparison analysis was used to identify themes characterizing parents' perceptions of the meaning of normalization. The meanings parents attributed to normalization reflected their evaluation of condition management, parenting role, and condition impact, with parents in the NP and NA groups demonstrating distinct patterns of meaning. These meaning patterns are discussed as an outcome of normalization. Providers can play a pivotal role in helping families achieve normalization by providing guidance on how to balance condition management with normal family life.
authors.affiliation: School of Nursing, University of North Carolina at Chapel Hill, 2007 Carrington Hall - CB 7460, Chapel Hill, NC 27599, USA.
authors.forename: Kathleen A
authors.initials: KA
authors.lastname: Knafl
authors.forename: Blair G
authors.initials: BG
authors.lastname: Darney
authors.forename: Agatha M
authors.initials: AM
authors.lastname: Gallo
authors.forename: Denise B
authors.initials: DB
authors.lastname: Angst
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D002648:Child; D002675:Child, Preschool; D002908:Chronic Disease; D017281:Cost of Illness; D005260:Female; D030342:Genetic Diseases, Inborn / Q000517:prevention & control; D006262:Health; D006801:Humans; D008016:Life Change Events; D008297:Male; D015146:Midwestern United States; D015404:Nursing Methodology Research; D010290:Parents / Q000193:education / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology; D012380:Role; D020377:Self Efficacy; D011795:Surveys and Questionnaires