Health-related quality of life across pediatric chronic conditions.
OBJECTIVE
To compare health-related quality of life (HRQOL) across 8 pediatric chronic conditions, including 5 understudied populations, and examine convergence between youth self-report and parent-proxy report.


METHODS
Secondary data from 589 patients and their caregivers were collected across the following conditions: obesity, eosinophilic gastrointestinal disorder, inflammatory bowel disease, epilepsy, type 1 diabetes, sickle cell disease, post-renal transplantation, and cystic fibrosis. Youth and caregivers completed age-appropriate self-report and/or parent-proxy report generic HRQOL measures.


RESULTS
Youth diagnosed with eosinophilic gastrointestinal disorder and obesity had lower HRQOL than other pediatric conditions by parent report. Caregivers reported lower HRQOL by proxy report than youth self-reported across most subscales.


CONCLUSIONS
Use of brief, easily administered, and reliable assessments of psychosocial functioning, such as HRQOL, may provide clinicians additional opportunities for intervention or services targeting improved HRQOL relative to the needs of each population.
Ingerski
Lisa M
LM
Center for the Promotion of Treatment Adherence and Self-Management, Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229-3039, USA.
Modi
Avani C
AC
Hood
Korey K
KK
Pai
Ahna L
AL
Zeller
Meg
M
Piazza-Waggoner
Carrie
C
Driscoll
Kimberly A
KA
Rothenberg
Marc E
ME
Franciosi
James
J
Hommel
Kevin A
KA
D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D002908:Chronic Disease / Q000208:ethnology / Q000523:psychology*; D005006:Ethnicity; D005260:Female; D005500:Follow-Up Studies; D006304:Health Status; D006801:Humans; D008297:Male; D009017:Morbidity; D010287:Parent-Child Relations / Q000208:ethnology; D011788:Quality of Life; D012189:Retrospective Studies; D014481:United States / Q000453:epidemiology