[The exploration of the lived experiences of schizophrenic patients and family members facing the fear of illness hereditary].
BACKGROUND
Schizophrenia negatively affects both patients and their families. What are the effects of this incurable, potentially hereditary disease on daily life? Related research shows that schizophrenics tend to experience 'uncertainty' in daily life. Discussions on 'uncertainty' experienced in daily life in the context of concerns regarding hereditary illness remain scarce in Taiwan.


OBJECTIVE
This research was designed to gather important data on schizophrenic patients and their family members related to their uncertainties about disease heredity.


METHODS
Participants were recruited from the psychiatric unit and outpatient services department at two hospitals in Hsinchu County. Research subjects included a total of six schizophrenics and six family members.


RESULTS
The three topics deduced from data analysis included: 1. marriage / family difficulties rooted in feelings of suffering and torture related to the psychosis and uncertainties regarding disease heredity; 2. evolution from doubt to trust as patients gradual accept choices and make decisions related to disease heredity; and 3. dealing with disease heredity again after having made a successful transition (i.e. persistence to maintain family ties).


CONCLUSIONS
Both patients and family members experienced worry and fear due to uncertainty about the hereditary condition of the disease. Some experienced emotional responses such as anxiety and helplessness. Research results are expected to help nursing personnel understand the multiple effects and impacts of uncertainty toward illness heredity experienced by the patients and their families in order to provide better consultation and medical care quality under differing circumstances depending on the individual characteristics of patients and their families.
Lu
Shiue-Fen
SF
School of Nursing, National Yang-Ming University, ROC.
Hong
Chen-Jee
CJ
Wang
Wen-Sheng
WS
Sheu
Shuh-Jen
SJ
D000328:Adult; D005190:Family / Q000523:psychology*; D005239:Fear; D006801:Humans; D008016:Life Change Events; D008875:Middle Aged; D012559:Schizophrenia / Q000235:genetics*; D012565:Schizophrenic Psychology