A qualitative study exploring the experiences of African-Caribbean informal stroke carers in the UK.
OBJECTIVE
To explore the experiences of African-Caribbean informal stroke carers in the UK.


METHODS
Qualitative methodology.


METHODS
Three urban locations in southern England.


METHODS
Nine African-Caribbean informal stroke carers providing support to a relative with stroke for at least six months.


METHODS
Semi-structured interviews were used to explore both predetermined and unexpected topics relating to any aspects of the carers' experiences. Interview transcriptions were analysed using inductive thematic analysis.


RESULTS
Several themes resembled those identified in previous qualitative studies with informal stroke carers from other ethnic backgrounds. However, new themes emerged which were related to the carers' ethnicity and cultural values. These themes were 'understanding of individual needs', 'battle', 'independence from services', 'faith in God', 'family ties' and 'avoiding institutionalised care.'


CONCLUSIONS
This small-scale study provides an insight into African-Caribbean stroke carers' own perspectives. These have much in common with those of other ethnicities, but also exhibit important areas of difference. Several themes indicate issues with existing service provision. Stereotypical assumptions about informal stroke carers based on ethnicity appear to be unwarranted; there is diversity within ethnic groups. Individual contexts of ethnicity, culture and religious beliefs shape expectations and perceptions. Several themes signpost service attributes that are perceived as relevant to acceptability by African-Caribbean stroke carers. Recruitment challenges could be addressed in future projects with ethnic minority carers by collaborative planning and the development of individual relationships with key informants.
Strudwick
Anna
A
Forest of Dean Community Mental Health Team for Older People, Cinderford, UK. anna.strudwick@glos.nhs.uk. anna.strudwick@glos.nhs.uk
Morris
Reg
R
D000328:Adult; D000368:Aged; D001294:Attitude to Health / Q000208:ethnology*; D044383:Black People / Q000523:psychology*; D017028:Caregivers / Q000523:psychology*; D004739:England; D005260:Female; D006701:Home Nursing / Q000523:psychology*; D006801:Humans; D008297:Male; D008875:Middle Aged; D036301:Qualitative Research; D012944:Social Support; D020521:Stroke / Q000208:ethnology; D000071939:Stroke Rehabilitation; D014900:West Indies / Q000208:ethnology