title: Families of patients with polytrauma: Understanding the evidence and charting a new research agenda.
abstract: Although research shows that caring for a family member with chronic disease or disability can cause significant distress for caregivers, it also shows that families that function well and adequately support patients can improve the quality of life and health outcomes for their ill or disabled family member. Currently, little knowledge exists about how families function and cope after a loved one has sustained polytrauma, the multiple traumatic injuries that often include traumatic brain injury (TBI). We summarize the polytrauma and TBI research about family needs during rehabilitation and recovery, describe current efforts to improve family-centered care, and detail approaches for understanding family resilience and the long-term consequences of injuries on families. We conclude with recommendations for future research in inpatient and outpatient settings where evidence has been limited for families of patients with TBI and is nonexistent for families of patients with polytrauma. Understanding many of these issues will help to better inform families of policies for benefits and resources and help researchers and clinicians plan for appropriate interventions.
authors.affiliation: Center for Chronic Disease Outcomes Research, Minneapolis VA Medical Center, One Veterans Drive, Minneapolis, MN 55417, USA. joan.griffin2@va.gov
authors.forename: Joan M
authors.initials: JM
authors.lastname: Griffin
authors.forename: Greta
authors.initials: G
authors.lastname: Friedemann-Sánchez
authors.forename: Carmen
authors.initials: C
authors.lastname: Hall
authors.forename: Sean
authors.initials: S
authors.lastname: Phelan
authors.forename: Michelle
authors.initials: M
authors.lastname: van Ryn
mesh_terms: D000223:Adaptation, Psychological; D001753:Blast Injuries / Q000534:rehabilitation; D001930:Brain Injuries / Q000534:rehabilitation*; D017028:Caregivers; D019091:Critical Pathways; D006801:Humans; D020380:Needs Assessment; D014728:Veterans