[Assessment of the outcome of anorexia nervosa: construction of a self-administered questionnaire based on the patients' perception].
BACKGROUND
Our working hypothesis is that a better insight into the outcome of patients suffering from anorexia nervosa should contribute to preventing relapses and further complications and assessing treatment efficiency. Through anorexia nervosa, the patients express the difficulty they have to view themselves as specific subjects.


OBJECTIVE
The current classic outcome evaluation is based on the study of objective events, which only partially reflect the reality of the patients' outcome at a subjective level. The objective of this study was to set up a new assessing instrument of the outcome of patients suffering from anorexia nervosa, essentially based on the patients' perception of their experience.


METHODS
The methodology used has been based on: (1) the conduct by the main investigator of unstructured interviews using "free association", with the help of an interview guide. The anorexia nervosa patients were recruited among those who were hospitalized on an isolation contract, or among outpatients under a psychiatrist/psychoanalyst's supervision, aged over 25 years old so that they may have started their reproductive life. The study included 30 patients; (2) the analysis of the interview contents backed by preexisting hypotheses and by new ones suggested by the expression of the patients' perception, so as to set up an inventory of new themes; (3) the construction of a self-administered questionnaire starting from the development of each theme into several questions taking up the patients' own words and offering 4 possible answers (disagree completely, disagree, agree, quite agree).


RESULTS
The analysis of the interviews contents has led to the development of 11 themes. The self-administered questionnaire includes a total of 124 items stemming from the development of each theme into between 9 and 16 items that were mixed in the version submitted to patients.


CONCLUSIONS
This original interpretation of the outcome of the patients through their experience provides a better understanding of their relation to desire and pleasure, and consequently of the evolution of their subjectivity. By integrating several aspects of the disease expression, our instrument constitutes an alternative to the combination of several non-specific tools in anorexia nervosa. It thus avoids the atomization of the pathology and respects the specificity of its structure. The analysis of the disease function in the emergence of their subjectivity rather than the static observation of its symptoms has led to the development of new themes.


CONCLUSIONS
The validation of this new methodological approach of the follow-up of anorexia nervosa based on the patients' perception of the evolution of their disease, aside from anthropometrical or physiological parameters, will have to be tested on a new population of patients. A quantitative score will be developed in association with the self-administered questionnaire. Its use in further epidemiological studies will enable a scientific assessment of the patients' outcome, and better prevent further complications and relapses, by screening patients with a pejorative risk. The ultimate aim is to improve these patients' care.
Fédération d'endocrinologie, hôpital neurologique et neurochirurgical Pierre-Wertheimer, 59, boulevard Pinel, 69677 Bron cedex, France. maryronze@yahoo.fr
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D000293:Adolescent; D000328:Adult; D017668:Age of Onset; D000553:Ambulatory Care; D000856:Anorexia Nervosa / Q000523:psychology* / Q000628:therapy*; D001828:Body Image; D005247:Feeding Behavior; D005260:Female; D005500:Follow-Up Studies; D005783:Gender Identity; D006760:Hospitalization; D006801:Humans; D007406:Interview, Psychological; D017060:Patient Satisfaction; D011594:Psychometrics / Q000706:statistics & numerical data; D015203:Reproducibility of Results; D055502:Secondary Prevention; D012917:Social Adjustment; D011795:Surveys and Questionnaires; D016896:Treatment Outcome; D055815:Young Adult