Understanding the provision of palliative care in the context of primary health care: qualitative research findings from a pilot study in a community setting in Chile.
This pilot study looked at the provision of palliative care in the context of primary health care in a developing setting in Chile.


OBJECTIVE
The study aimed to delineate the experience of palliative care from the perspective of patients and health care professionals; to examine primary health care as a propitious milieu for palliative care in developing countries; and to generate opportunities for international collaboration between Chile and Canada.


METHODS
The study followed tenets of hermeneutic phenomenology and participatory research. Research activities included audio-taped, in-depth individual interviews and participant observation in the home.


RESULTS
Patients expressed contentment with the services provided by the program. The support of family members, friends, neighbours, and the palliative team was critical to their home care. Health care professionals showed great enthusiasm for keeping the palliative care program going in the primary health care setting despite limited resources. They followed WHO and national guidelines for symptom relief and involved families in the care of the sick person.


CONCLUSIONS
The provision of palliative care through primary health care increases access in developing countries.
Faculty of Nursing, University of Alberta, 7-80 University Terrace, Edmonton, Alberta, Canada T6G 2T4. brenda.cameron@ualberta.ca
Brenda L
BL
Cameron
Anna
A
Santos Salas
D000328:Adult; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D002677:Chile; D055812:Community-Based Participatory Research; D003906:Developing Countries; D005190:Family / Q000523:psychology; D006297:Health Services Accessibility; D006301:Health Services Needs and Demand; D006699:Home Care Services / Q000458:organization & administration*; D006801:Humans; D008503:Medical Staff / Q000523:psychology; D015404:Nursing Methodology Research; D009740:Nursing Staff / Q000523:psychology; D010166:Palliative Care / Q000458:organization & administration* / Q000523:psychology; D010865:Pilot Projects; D017410:Practice Guidelines as Topic; D011320:Primary Health Care / Q000458:organization & administration*; D036301:Qualitative Research; D012935:Social Justice; D012944:Social Support