title: Aggressive care after a massive stroke in young patients: is that what they want?
abstract: BACKGROUND
  The assumption is often made that aggressive care in the form of early decompressive hemicraniectomy is appropriate for young patients who suffer a massive stroke. However, neither their attitude toward aggressive treatment, nor their perception of acceptable quality of life after a stroke, has been adequately studied.
  
  
  METHODS
  We conducted a cross-sectional questionnaire-based survey that consisted of demographic information and attitude toward neurological disability based on the highest acceptable modified Rankin Scale (mRS) that they would be "willing to live with." Young adults in the Los Angeles County were surveyed and grouped by whether or not they would want early decompressive hemicraniectomy after a massive stroke. Logistic regression analysis was used to determine the factors associated with willingness to accept decompressive hemicraniectomy.
  
  
  RESULTS
  Sixty-eight community-dwelling young adults (mean age: 24 +/- 6 years) were surveyed. The highest acceptable mRS (0-5) participants felt "willing to live with" were: 10.3% (0), 29.4% (1), 27.9% (2), 20.6% (3), 8.8% (4), 2.9% (5). Despite being presented with a hypothetical high likelihood of long-term disability, 46 of 68 (68%) reported they would undergo hemicraniectomy. Neither the demographic factors nor the highest acceptable mRS was associated with the willingness to seek decompressive hemicraniectomy.
  
  
  CONCLUSIONS
  Our study supports the commonly held assumption that the majority of young adults would favor early decompressive hemicraniectomy after a massive ischemic stroke. We also show that a substantial minority in this age group is reluctant to accept this aggressive measure, emphasizing the importance of discussing the individual's previously stated wishes, even in the young population.
authors.affiliation: Department of Neurology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, USA. kazuma.nakagawa@ucsfmedctr.org
authors.forename: Kazuma
authors.initials: K
authors.lastname: Nakagawa
authors.forename: Matt T
authors.initials: MT
authors.lastname: Bianchi
authors.forename: Shawn S
authors.initials: SS
authors.lastname: Nakagawa
authors.forename: Farzaneh A
authors.initials: FA
authors.lastname: Sorond
mesh_terms: D000328:Adult; D003430:Cross-Sectional Studies; D056424:Decompressive Craniectomy / Q000379:methods*; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D008297:Male; D009420:Nervous System / Q000503:physiopathology; D010342:Patient Acceptance of Health Care; D012720:Severity of Illness Index; D020521:Stroke / Q000503:physiopathology* / Q000601:surgery*; D011795:Surveys and Questionnaires; D055815:Young Adult