Conceptual framework for the study of parental end-of-life decision making in pediatric blood and marrow transplantation.
OBJECTIVE
To describe a conceptual framework that will facilitate research and practice concerning parental end-of-life decision making in pediatric blood and marrow transplantation (BMT).


METHODS
A review of relevant literature from Ovid, CINAHL, EBSCO, MEDLINE, PsycINFO, and various sociology and theology databases was combined with experiential knowledge.


RESULTS
The method of concept and theory synthesis and derivation as described by Walker and Avant was used in the development of this framework.


CONCLUSIONS
Use of the proposed conceptual framework is expected to provide the organization necessary for thinking, observation, and interpretation of parental end-of-life decision making in pediatric BMT.


CONCLUSIONS
The ability to describe the process of parental end-of-life decision making in pediatric BMT will help nurses to provide appropriate counseling, education, and support for these children and their families at the end of life. In addition, the process will help nurses to promote the well-being of the children's families after end of life.
Rishel
Cindy J
CJ
College of Nursing, University of Arizona, Tucson, USA. crishel@nursing.arizona.edu
D000328:Adult; D001803:Blood Transfusion / Q000451:nursing; D016026:Bone Marrow Transplantation / Q000451:nursing*; D002648:Child; D003657:Decision Making; D022143:Family Nursing / Q000379:methods; D006801:Humans; D008020:Life Support Care; D009369:Neoplasms / Q000451:nursing* / Q000628:therapy; D009742:Nursing Theory; D009859:Oncology Nursing / Q000379:methods*; D010290:Parents / Q000523:psychology; D010371:Pediatric Nursing / Q000379:methods*; D012944:Social Support; D013727:Terminal Care / Q000379:methods*; D028761:Withholding Treatment