Telling stories about illness and disability: the limits and lessons of narrative.
Autobiographical narratives of illness and disability are influential in popular and medical discourses of illness and disability, in part because these narratives represent illness and disability within a sociocultural context, intersecting with other categories of difference. Clinicians can benefit patients through a critical understanding of the formal and social conventions that shape illness and disability narratives and the effect these conventions can have on the lived experience of illness and disability. I analyze the 2003 edition of Lucy Grealy's Autobiography of a Face to illustrate these socio-narrative conventions, especially in light of an afterword that significantly revises the ending to Grealy's narrative. I explore the parallels between narrative conventions-such as the "recovery narrative"-and caregivers' expectations that shape the role of the "good patient," as well as the resistance to conventions of closure, represented by the "renegotiated ending."
Garden
Rebecca
R
Bioethics and Humanities, Upstate Medical University, 618 Irving Avenue, Syracuse, NY 13210, USA. gardenr@upstate.edu
D000223:Adaptation, Psychological; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology; D006233:Persons with Disabilities / Q000523:psychology*; D006801:Humans; D033262:Narration; D010361:Patients / Q000523:psychology*; D010817:Physician-Patient Relations