title: [Self-responsibility in health care using the example of medication management from the chronically ill patient's perspective].
abstract: With rising costs in health care, especially in the area of pharmaceuticals, patients are expected to be more involved in managing their care. Concepts such as shared decision-making or self-management support in chronic illness have been suggested as a way to facilitate this process and to empower patients. It is unclear however, whether the self-responsible patient role outlined in these concepts aligns with the patient's needs. The aim of this paper is to examine this proposed self-responsible role with regard to the patient's medication management needs and to discuss whether self-responsibility and autonomy are suitable concepts when illness-related challenges become difficult or complex. Selected findings from a qualitative longitudinal study on medication management from the perspective of people with chronic conditions are presented. Results from interviews with 27 patients indicate that both the patient's view and the challenges people with chronic conditions face in everyday life remain a 'blind spot' in health care. Providing information to improve health literacy may not be enough; there is a need to systematically support patients in developing skills to adequately (self-)manage a chronic condition.
authors.affiliation: Careum Stiftung (vormals Universität Bielefeld, Fakultät für Gesundheitswissenschaften), Zürich, Schweiz. joerg.haslbeck@careum.ch
authors.forename: J W
authors.initials: JW
authors.lastname: Haslbeck
authors.forename: D
authors.initials: D
authors.lastname: Schaeffer
mesh_terms: D001294:Attitude to Health; D002908:Chronic Disease / Q000188:drug therapy* / Q000453:epidemiology*; D005858:Germany / Q000453:epidemiology; D006801:Humans; D010358:Patient Participation / Q000706:statistics & numerical data*; D026684:Personal Autonomy; D012646:Self Administration / Q000379:methods* / Q000706:statistics & numerical data*; D011795:Surveys and Questionnaires