Lessons learned from a community-based participatory research project to improve American Indian cancer surveillance.
BACKGROUND
American Indian and Alaska Native cancer incidence data are limited by underreporting and misclassification. These populations also suffer from a history of research abuse.


OBJECTIVE
The project's goal was to use community-based participatory research (CBPR) to assess the local burden of cancer in the American Indian communities in Wisconsin and assess the accuracy of Wisconsin American Indian cancer data.


METHODS
Thirteen organizations partnered to conduct a retrospective review of American Indian clinics cancer cases. A match of the clinic identified cases with Wisconsin Cancer Reporting System records was then conducted.


CONCLUSIONS
Relationship building, mutual education, and local engagement in data interpretation were significant factors in this project achieving its objectives and laying a foundation for future research partnerships.


CONCLUSIONS
This project demonstrates the successful application of CBPR in a complex multisite project with multiple partners using collective resources to address cancer health disparities.
Matloub
Jackie
J
Paul P. Carbone Comprehensive Center, University of Wisconsin, USA.
Creswell
Paul D
PD
Strickland
Rick
R
Pierce
Kimmine
K
Stephenson
Laura
L
Waukau
Jerry
J
Kaur
Judith S
JS
Remington
Patrick
P
D055812:Community-Based Participatory Research; D006293:Health Promotion; D054624:Health Status Disparities; D006801:Humans; D015994:Incidence; D007198:Indians, North American; D009369:Neoplasms / Q000453:epidemiology*; D011159:Population Surveillance; D016730:Program Development; D015397:Program Evaluation; D011634:Public Health; D014481:United States / Q000453:epidemiology; D014922:Wisconsin / Q000453:epidemiology