title: Lessons learned from a community-based participatory research project to improve American Indian cancer surveillance.
abstract: BACKGROUND
  American Indian and Alaska Native cancer incidence data are limited by underreporting and misclassification. These populations also suffer from a history of research abuse.
  
  
  OBJECTIVE
  The project's goal was to use community-based participatory research (CBPR) to assess the local burden of cancer in the American Indian communities in Wisconsin and assess the accuracy of Wisconsin American Indian cancer data.
  
  
  METHODS
  Thirteen organizations partnered to conduct a retrospective review of American Indian clinics cancer cases. A match of the clinic identified cases with Wisconsin Cancer Reporting System records was then conducted.
  
  
  CONCLUSIONS
  Relationship building, mutual education, and local engagement in data interpretation were significant factors in this project achieving its objectives and laying a foundation for future research partnerships.
  
  
  CONCLUSIONS
  This project demonstrates the successful application of CBPR in a complex multisite project with multiple partners using collective resources to address cancer health disparities.
authors.affiliation: Paul P. Carbone Comprehensive Center, University of Wisconsin, USA.
authors.forename: Jackie
authors.initials: J
authors.lastname: Matloub
authors.forename: Paul D
authors.initials: PD
authors.lastname: Creswell
authors.forename: Rick
authors.initials: R
authors.lastname: Strickland
authors.forename: Kimmine
authors.initials: K
authors.lastname: Pierce
authors.forename: Laura
authors.initials: L
authors.lastname: Stephenson
authors.forename: Jerry
authors.initials: J
authors.lastname: Waukau
authors.forename: Judith S
authors.initials: JS
authors.lastname: Kaur
authors.forename: Patrick
authors.initials: P
authors.lastname: Remington
mesh_terms: D055812:Community-Based Participatory Research; D006293:Health Promotion; D054624:Health Status Disparities; D006801:Humans; D015994:Incidence; D007198:Indians, North American; D009369:Neoplasms / Q000453:epidemiology*; D011159:Population Surveillance; D016730:Program Development; D015397:Program Evaluation; D011634:Public Health; D014481:United States / Q000453:epidemiology; D014922:Wisconsin / Q000453:epidemiology