Physician views on barriers to primary care for young adults with childhood-onset chronic disease.
OBJECTIVE
Growing numbers of children with severe chronic illnesses are surviving to adulthood. Little is known about what primary care physicians perceive as the resources for and barriers to providing primary care services for young adults who transfer care from pediatric to adult medicine practitioners. The objective of this study was to describe primary care physicians' resources for and barriers to caring for young adults with childhood-onset chronic diseases.


METHODS
We conducted a national mailed survey of general internists and pediatricians to assess their office and specialty resources, attitudes toward, and barriers faced in treating young adult patients with childhood-onset chronic diseases. We then analyzed how these factors were associated with overall perceived quality of chronic illness care delivery.


RESULTS
Overall response rate was 53% (1289 of 2434). Only half of general internists viewed themselves as readily able to provide for the primary care needs of young adults with childhood-onset chronic diseases. Half of the internists and 62% of pediatricians thought that it would be difficult for these young adults to find an adult-focused primary care provider. Both specialties reported lack of time and reimbursement as major barriers in providing primary care to transitioning patients. Good office systems for coordinating patient care and improved coordination with subspecialty resources were both associated with improved provider perception of providing high-quality chronic illness care.


CONCLUSIONS
General pediatricians and internists report multiple barriers to providing care for adults with childhood-onset chronic diseases. Improvements in office-based support seem to be most associated with perceived quality of care delivery.
General Pediatrics and General Internal Medicine, University of California, San Francisco, 3333 California St, Suite 245, San Francisco, CA 94118, USA. okumuram@peds.ucsf.edu
Megumi J
MJ
Okumura
Eve A
EA
Kerr
Michael D
MD
Cabana
Matthew M
MM
Davis
Sonya
S
Demonner
Michele
M
Heisler
D000328:Adult; D000367:Age Factors; D017668:Age of Onset; D001291:Attitude of Health Personnel; D002908:Chronic Disease / Q000523:psychology / Q000628:therapy*; D003625:Data Collection; D003695:Delivery of Health Care / Q000379:methods* / Q000639:trends; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010821:Physicians, Family / Q000523:psychology / Q000639:trends; D011320:Primary Health Care / Q000379:methods* / Q000639:trends