title: Mychildren's: integration of a personally controlled health record with a tethered patient portal for a pediatric and adolescent population.
abstract: Personally controlled health records (PCHRs) and patient portals are increasingly being offered by healthcare institutions, employers, insurance companies and commercial entities to allow patients access to their health information. Both applications offer unique services to provide patients with tools to manage their health. While PCHRs allow users ubiquitous, portable, patient controlled access to their health information, traditional patient portals provide provider-tethered applications allowing patients access, but not control of, certain healthcare information, as well as communication and administrative functions, such as secure messaging, appointment management and prescription refill requests, facilitating care at a specific healthcare facility.We describe our approach for the design, content creation, policy development, and implementation of MyChildren's, a unique web-based application leveraging the advantages of both a provider-tethered patient portal and a PCHR to allow patients and their guardians access to the functionality and convenience of a traditional patient portal, as well as the portability and flexibility of a PCHR.
authors.affiliation: Children's Hospital Boston, Boston, Massachusetts, USA.
authors.forename: Fabienne C
authors.initials: FC
authors.lastname: Bourgeois
authors.forename: Kenneth D
authors.initials: KD
authors.lastname: Mandl
authors.forename: Danny
authors.initials: D
authors.lastname: Shaw
authors.forename: Daisy
authors.initials: D
authors.lastname: Flemming
authors.forename: Daniel J
authors.initials: DJ
authors.lastname: Nigrin
mesh_terms: D000293:Adolescent; D002648:Child; D003219:Confidentiality; D057286:Electronic Health Records / Q000458:organization & administration*; D055991:Health Records, Personal; D006801:Humans; D020407:Internet; D033283:Patient Access to Records