title: [Long-term follow-up of patients undergoing allogeneic hematopoietic stem cell transplantation in Japan].
abstract: The number of hematopoietic stem cell transplantations and recipients with late complications from transplantation are both increasing; therefore, we investigated the status of the long-term follow-up system for hematopoietic stem cell transplantation survivors in Japan using a mail questionnaire; 100 of 194 institutions replied. The median examination time for each patient was 12.5 min. Five percent of institutions had an outpatient transplantation clinic, 1% had a manual for long-term follow-up after stem cell transplantation, and 11% used NIH criteria for the diagnosis of chronic GVHD. The lack of human resources, such as doctors, nurses, and other co-medical staff for transplant patients, was a structural problem. In addition, the development of guidelines for Japanese patients and staff education are also required in the clinical process. Thus, a long-term follow-up system, training of human resources, and appropriate reallocation of funds for medical services are required.
authors.affiliation: Division of Hematology, Internal Medicine, Toyama Hospital International Medical Center of Japan.
authors.forename: Shotaro
authors.initials: S
authors.lastname: Hagiwara
authors.forename: Tomomi
authors.initials: T
authors.lastname: Mochizuki
authors.forename: Miki
authors.initials: M
authors.lastname: Kondo
authors.forename: Ayako
authors.initials: A
authors.lastname: Mori
authors.forename: Takahiro
authors.initials: T
authors.lastname: Fukuda
mesh_terms: D002908:Chronic Disease; D005500:Follow-Up Studies; D006086:Graft vs Host Disease / Q000175:diagnosis / Q000628:therapy; D006280:Health Workforce; D018380:Hematopoietic Stem Cell Transplantation / Q000191:economics / Q000706:statistics & numerical data; D006801:Humans; D007564:Japan / Q000453:epidemiology; D011788:Quality of Life; D012015:Reference Standards; D011795:Surveys and Questionnaires; D013997:Time Factors; D014184:Transplantation, Homologous