title: Gene patents and licensing: case studies prepared for the Secretary's Advisory Committee on Genetics, Health, and Society.
abstract: Researchers at the Center for Public Genomics at Duke University analyzed how patenting and licensing affect clinical access to genetic testing in the United States. The research was requested by the Secretary's Advisory Committee on Genetics, Health, and Society. Conditions studied were breast and ovarian cancers, colon cancers, Alzheimer disease, cystic fibrosis, hearing loss, hereditary hemochromatosis, long QT syndrome, spinocerebellar ataxia, Tay-Sachs disease, and Canavan disease.
authors.affiliation: Center for Public Genomics, Center for Genome Ethics, Law and Policy, Institute for Genome Sciences and Policy, Duke University, Durham, NC 27708, USA. gelp@duke.edu
authors.forename: Robert
authors.initials: R
authors.lastname: Cook-Deegan
authors.forename: Christopher
authors.initials: C
authors.lastname: Heaney
mesh_terms: D005820:Genetic Testing / Q000941:ethics*; D006297:Health Services Accessibility / Q000941:ethics*; D006801:Humans; D008007:Licensure, Medical / Q000941:ethics*; D010330:Patents as Topic / Q000941:ethics*; D012955:Societies, Medical; D014481:United States
references.citation: Nat Biotechnol. 2006 Sep;24(9):1091-4
references.pmid: 16964215