A striving for independence: a qualitative study of women living with vertebral fracture.
BACKGROUND
Quantitative studies using generic and disease-specific health-related quality of life (HRQOL) questionnaires have shown that osteoporosis-related vertebral fractures have a significant negative effect on HRQOL, but there are only few studies that address what it means to live with vertebral fracture from a deeper experiential perspective. How HRQOL and daily life are affected several years after vertebral fracture and how women cope with this are more unclear. This study aimed to describe how HRQOL and daily life had been affected in women with vertebral fracture several years after diagnosis.


METHODS
The study design was qualitative. Semi-structured interviews were conducted with ten Swedish women during 2008. Data were analysed using qualitative inductive content analysis.


RESULTS
The findings of this study revealed three themes related to the influence on HRQOL and daily life: A threatened independence, i.e. back pain, anxiety, negative impact on self-image and consequences in daily life; Strategies for maintaining independence, i.e. coping, self-care and support; and The importance of maintaining independence, i.e. the ability to perform everyday activities, social interaction and having something meaningful to do. The women were striving for independence or maintaining their independence by trying to manage different types of symptoms and consequences in different ways.


CONCLUSIONS
HRQOL and daily life were strongly affected in a negative way by the impact of the vertebral fracture. Information from this study may provide new knowledge and understanding of the women's experiences of living with vertebral fracture from an insider's point of view in order to obtain a deeper understanding of the women's everyday life. However, further evaluation is still needed in larger study groups.
Hallberg
Inger
I
Department of Medical and Health Sciences, Division of Nursing Science, Faculty of Health Sciences, Linköping University, SE-581 85 Linköping, Sweden. inger.hallberg@liu.se.
Ek
Anna-Christina
AC
Toss
Göran
G
Bachrach-Lindström
Margareta
M
J Adv Nurs. 2008 Apr;62(1):107-15
18352969
Osteoporos Int. 2004 Oct;15(10):834-41
15045468
J Bone Miner Res. 1993 Sep;8(9):1137-48
8237484
Arthritis Rheum. 2001 Nov;44(11):2611-9
11710717
Osteoporos Int. 2006;17(3):355-63
16341623
Osteoporos Int. 1999;9(6):508-15
10624458
Bone. 1996 Mar;18(3 Suppl):185S-189S
8777086
Am J Med. 1993 Jun;94(6):646-50
8506892
J Bone Miner Res. 1992 Apr;7(4):449-56
1535172
Rheum Dis Clin North Am. 2001 Feb;27(1):255-62
11285999
Scand J Occup Ther. 2014;21 Suppl 1:48-52
25116745
Arthritis Rheum. 1993 Jun;36(6):750-6
8507215
J Women Aging. 2001;13(1):73-92
11217187
Osteoporos Int. 2005 Aug;16(8):861-70
15558238
Qual Health Res. 2005 Nov;15(9):1277-88
16204405
Ann Intern Med. 1998 May 15;128(10):793-800
9599190
J Bone Miner Res. 2000 Jul;15(7):1384-92
10893688
Osteoporos Int. 2009 Jun;20(6):869-78
18846400
Osteoporos Int. 2005 May;16(5):447-55
15609073
J Bone Miner Res. 2002 Apr;17(4):716-24
11918229
BMC Musculoskelet Disord. 2009 Nov 03;10:135
19886998
ANS Adv Nurs Sci. 1996 Mar;18(3):27-36
8660010
Gerontologist. 1988 Apr;28(2):224-8
3360365
Acta Orthop. 2007 Dec;78(6):813-21
18236189
Am J Med. 1997 Aug 18;103(2A):30S-42S; discussion 42S-43S
9302895
J Women Aging. 2001;13(3):59-77
11722007
JAMA. 2007 Dec 19;298(23):2761-7
18165669
Bone. 1992;13 Suppl 2:S27-31
1627411