title: The importance of context in fostering responsive community systems: supports for families in systems of care.
abstract: The importance of helping families of children with severe emotional disturbances (SED) connect with informal or natural supports-that is, individuals who are part of their ongoing communities and daily lives-has been widely recognized. Utilization of informal supports has thus become a core element within systems of care (SOCs) designed to improve services for children with SED and their families. However, research demonstrates that implementation of wraparound, the key practice approach within SOCs, often does not include involvement of informal supports. Using a measure of social connectedness (SC), developed to augment the instruments used for the SOC national evaluation, this study assessed parents' and caregivers' views of their connections to and support from their community within a SOC. Overall, parents and caregivers reported low levels of support across multiple sources as well as a desire for more support. Greater levels of perceived support related positively to caregiver strain, types of and satisfaction with services received, and views of their communities as supportive and safe. Greater attention to families' contexts and the identification of effective ways to connect families to their communities are recommended.
authors.affiliation: University of North Carolina at Charlotte, NC, USA. jcook@uncc.edu
authors.forename: James R
authors.initials: JR
authors.lastname: Cook
authors.forename: Ryan P
authors.initials: RP
authors.lastname: Kilmer
mesh_terms: D000293:Adolescent; D016000:Cluster Analysis; D003156:Community Mental Health Services; D005190:Family; D005260:Female; D006291:Health Policy; D006801:Humans; D007398:Interpersonal Relations; D008137:Longitudinal Studies; D008297:Male; D001523:Mental Disorders / Q000628:therapy*; D017063:Outcome Assessment, Health Care; D012934:Social Isolation; D012944:Social Support; D014481:United States