Evaluation of an information resource for parents of children with autism spectrum disorder.
This study sought to evaluate a newly created information resource book for parents of children newly diagnosed with Autism Spectrum Disorder entitled Autism Spectrum Disorder: Information for Parents. A purposive sample of 13 participants (comprised of mothers of children with ASD and ASD service providers) participated in 1 of 3 focus groups. Focus group participants provided their feedback regarding the accessibility, usefulness, content accuracy and tone of the resource book. Findings reveal that concise yet comprehensive and hopeful information targeted to parents at diagnosis, has been lacking in ASD practice. This supportive informational resource book addresses this gap in supporting family adaptation and mobilization at the key juncture of diagnosis. Suggestions for resource refinement and future development of similar diagnostic-related literature to support families of newly-diagnosed children are outlined.
Mulligan
Janice
J
The Hospital for Sick Children, Toronto, Canada. janice.mulligan@sickkids.ca
Steel
Lee
L
Macculloch
Radha
R
Nicholas
David
D
D000223:Adaptation, Psychological; D000293:Adolescent; D001294:Attitude to Health; D002170:Canada; D002648:Child; D002659:Child Development Disorders, Pervasive; D002675:Child, Preschool; D017144:Focus Groups; D006266:Health Education / Q000379:methods*; D006801:Humans; D009035:Mothers / Q000193:education; D010290:Parents / Q000193:education*