title: Patient and public involvement in clinical guidelines: international experiences and future perspectives.
abstract: BACKGROUND
  Clinical practice guidelines (CPG) are important tools for improving patient care. Patient and public involvement is recognised as an essential component of CPG development and implementation. The Guideline International Network Patient and Public Involvement Working Group (G-I-N PUBLIC) aims to support the development, implementation and evaluation of guideline-oriented patient and public involvement programmes (PPIPs).
  
  
  OBJECTIVE
  To develop an international practice and research agenda on patient and public involvement in CPG.
  
  
  METHODS
  56 CPG developers, researchers, and patient/public representatives from 14 different countries, were consulted in an international workshop. Recommendations were validated with G-I-N PUBLIC steering committee members.
  
  
  RESULTS
  Many CPG organisations have set up PPIPs that use a range of participation, consultation and communication methods. Current PPIPs aim to improve the quality and responsiveness of CPGs to public expectations and needs, or to foster individual healthcare decisions. Some organisations use structured involvement methods, including providing training for patient and public representatives. A number of financial, organisational and sociopolitical barriers limit patient and public involvement. The paucity of process and impact evaluations limits our current understanding of the conditions under which patient and public involvement is most likely to be effective.
  
  
  CONCLUSIONS
  Greater international collaboration and research are needed to strengthen existing knowledge, development and evaluation of patient and public involvement in CPG.
authors.affiliation: Scientific Institute for Quality of Healthcare, Radboud University Nijmegen Medical Centre, Nijmegen, The Netherlands. antoine.boivin@gmail.com
authors.forename: Antoine
authors.initials: A
authors.lastname: Boivin
authors.forename: Kay
authors.initials: K
authors.lastname: Currie
authors.forename: Béatrice
authors.initials: B
authors.lastname: Fervers
authors.forename: Javier
authors.initials: J
authors.lastname: Gracia
authors.forename: Marian
authors.initials: M
authors.lastname: James
authors.forename: Catherine
authors.initials: C
authors.lastname: Marshall
authors.forename: Carol
authors.initials: C
authors.lastname: Sakala
authors.forename: Sylvia
authors.initials: S
authors.lastname: Sanger
authors.forename: Judi
authors.initials: J
authors.lastname: Strid
authors.forename: Victoria
authors.initials: V
authors.lastname: Thomas
authors.forename: Trudy
authors.initials: T
authors.lastname: van der Weijden
authors.forename: Richard
authors.initials: R
authors.lastname: Grol
authors.forename: Jako
authors.initials: J
authors.lastname: Burgers
mesh_terms: D003256:Community Participation; D004493:Education; D006801:Humans; D038622:Internationality; D010358:Patient Participation; D017410:Practice Guidelines as Topic