title: National Organization for Rare Disorders (NORD): providing advocacy for people with rare disorders.
authors.affiliation: National Organization for Rare Disorders, Danbury, CT, USA.
authors.forename: Stefanie
authors.initials: S
authors.lastname: Putkowski
mesh_terms: D003255:Consumer Organizations / Q000458:organization & administration*; D005817:Genetic Counseling; D006801:Humans; D007255:Information Services / Q000458:organization & administration; D020407:Internet / Q000458:organization & administration; D009720:Nurse Clinicians; D048108:Nursing Informatics; D009965:Orphan Drug Production / Q000331:legislation & jurisprudence; D010344:Patient Advocacy; D035583:Rare Diseases / Q000175:diagnosis / Q000453:epidemiology / Q000628:therapy; D012109:Research Support as Topic / Q000458:organization & administration; D014481:United States / Q000453:epidemiology