Stigma and cystic fibrosis.
Cystic Fibrosis (CF), also known as Mucoviscidosis, is a chronic disease of autosomal recessive origin and so far incurable. This analysis considers some characteristics of patients and family members that indicate it is a stigmatizing disease. The CF stigmas impact on the lives of children and adolescents can affect treatment adherence, socialization, family relationships and the formation of their life histories, with direct consequences on their quality of life.
Pizzignacco
Tainá Maues Peluci
TM
Escola de Enfermagem de Ribeirão Preto, Universidade de São Paulo, WHO Collaborating Centre for Nursing Research Development, Brazil. tainapizzi@usp.br
de Mello
Débora Falleiros
DF
de Lima
Regina Aparecida Garcia
RA
D000293:Adolescent; D002648:Child; D003550:Cystic Fibrosis / Q000451:nursing / Q000523:psychology / Q000628:therapy; D005190:Family; D006699:Home Care Services; D006801:Humans; D010349:Patient Compliance; D010371:Pediatric Nursing; D012951:Socialization; D013240:Stereotyping; D013997:Time Factors