Epidermolysis bullosa care in Mexico.
Epidermolysis bullosa (EB) in Mexico continues to be a rare genodermatosis that is still unknown for most of the health care professionals in the country. The spirit of DebRA MEXICO was born in 1994 when the Mexican health care team started to see patients with the main purpose to provide medical care, genetic counseling, and advice to patients with EB and their families; to promote collaboration and exchange information among people with EB; to research and find new therapeutic approaches; and finally, to diffuse knowledge and raise awareness of the issues of EB in general public and health care professionals.
Liy-Wong
Carmen
C
Department of Dermatology, Hospital Universitario Dr Jose E. Gonzalez UANL, Monterrey, Nuevo León, México.
Cepeda-Valdes
Rodrigo
R
Salas-Alanis
Julio Cesar
JC
D004820:Epidermolysis Bullosa / Q000628:therapy*; D006801:Humans; D008800:Mexico; D010348:Patient Care Team