Epidermolysis bullosa care in Italy.
Epidermolysis bullosa (EB) has officially been recognized as a rare disease in Italy. Regional reference centers for EB have been created during the past years. This article discusses the clinical services and coordinated multidisciplinary management of EB in Italy.
Castiglia
Daniele
D
Laboratory of Molecular and Cell Biology, IDI-IRCCS, Rome, Italy.
Zambruno
Giovanna
G
D004820:Epidermolysis Bullosa / Q000175:diagnosis / Q000235:genetics* / Q000628:therapy*; D006801:Humans; D007558:Italy; D009313:National Health Programs / Q000458:organization & administration*; D012017:Referral and Consultation / Q000458:organization & administration*; D012042:Registries