Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.
Knoppers
Bartha Maria
BM
Centre of Genomics and Policy, McGill University, Montréal, Québec, Canada. bartha.knoppers@mcgill.ca
D003256:Community Participation; D030661:Genetic Privacy / Q000941:ethics*; D036281:Genetic Research / Q000941:ethics*; D005820:Genetic Testing / Q000191:economics / Q000941:ethics*; D005828:Genetics, Population / Q000941:ethics*; D015894:Genome, Human / Q000235:genetics; D023281:Genomics / Q000941:ethics*; D006801:Humans; D007258:Informed Consent / Q000941:ethics*; D020407:Internet; D057285:Precision Medicine / Q000191:economics / Q000941:ethics*; D017422:Sequence Analysis, DNA
Am J Hum Genet. 2009 Dec;85(6):786-800
19931039
Eur J Clin Invest. 2010 Jan;40(1):64-8
20055897
Eur J Hum Genet. 2003 Dec;11(12):906-8
14574362
PLoS Genet. 2008 Aug 29;4(8):e1000167
18769715
Per Med. 2009 Nov;6(6):663-667
29783360
Nat Rev Genet. 2009 May;10(5):331-5
19308065
PLoS Genet. 2009 Oct;5(10):e1000665
19798440
Am J Bioeth. 2009;9(6-7):11-3
19998102
Int J Epidemiol. 2009 Feb;38(1):263-73
18676414
Nature. 2009 Sep 10;461(7261):168-70
19741685
Nat Rev Genet. 2008 May;9(5):406-11
18379574
Am J Bioeth. 2009;9(6-7):35-44
19998112
Hum Genet. 2010 Feb;127(2):125-34
19936793
Hum Genet. 2009 May;125(4):375-9
19252928