Monitoring symptoms at home: what methods would cancer patients be comfortable using?
OBJECTIVE
This study aimed to determine which methods of remote symptom assessment cancer outpatients would be comfortable using, including those involving information technology, and whether this varied with age and gender.


METHODS
A questionnaire survey of 477 outpatients attending the Edinburgh Cancer Centre in Edinburgh, UK.


RESULTS
Most patients reported that they would not feel comfortable using methods involving technology such as a secure website, email, mobile phone text message, or a computer voice on the telephone but that they would be more comfortable using more traditional methods such as a paper questionnaire, speaking to a nurse on the telephone, or giving information in person.


CONCLUSIONS
The uptake of new, potentially cost-effective technology-based methods of monitoring patients' symptoms at home might be limited by patients' initial discomfort with the idea of using them. It will be important to develop methods of addressing this potential barrier (such as detailed explanation and supervised practice) if these methods are to be successfully implemented.
Kleiboer
Annet
A
Psychological Medicine Research, School of Molecular and Clinical Medicine, University of Edinburgh, Kennedy Tower, Royal Edinburgh Hospital, Edinburgh, EH10 5HF, UK. annet.kleiboer@ed.ac.uk
Gowing
Katie
K
Holm Hansen
Christian
C
Hibberd
Carina
C
Hodges
Laura
L
Walker
Jane
J
Thekkumpurath
Parvez
P
O'Connor
Mark
M
Murray
Gordon
G
Sharpe
Michael
M
D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D003430:Cross-Sectional Studies; D003625:Data Collection; D005260:Female; D006699:Home Care Services; D006801:Humans; D008297:Male; D008875:Middle Aged; D018670:Monitoring, Ambulatory / Q000379:methods; D009369:Neoplasms / Q000628:therapy*; D010342:Patient Acceptance of Health Care; D017216:Telemedicine; D055815:Young Adult
BMC Med Inform Decis Mak. 2004 Jun 15;4:7
15196308
Support Care Cancer. 2009 Apr;17(4):437-44
18953579
Comput Inform Nurs. 2008 Nov-Dec;26(6):332-8
19047882
Telemed J E Health. 2009 Dec;15(10):933-48
19954346
Qual Life Res. 2005 Feb;14(1):77-93
15789943
Prim Care Respir J. 2006 Aug;15(4):237-45
16843066
J Telemed Telecare. 2003;9(5):264-72
14599329
Telemed J E Health. 2001 Fall;7(3):241-8
11564360
J Clin Psychol. 2004 Feb;60(2):141-5
14724921
J Telemed Telecare. 2005;11 Suppl 2:S22-5
16375788
J Med Syst. 1998 Apr;22(2):95-102
9571516
J Am Med Inform Assoc. 2007 May-Jun;14(3):269-77
17329725
J Palliat Care. 2001 Spring;17(1):46-52
11324185
Qual Life Res. 2009 Feb;18(1):125-36
19152119
J Med Internet Res. 2008 Apr 18;10(2):e11
18440918
Telemed J. 1997 Summer;3(2):159-71
10168281