Epidermolysis bullosa in France: management in the National Reference Center for Genodermatosis.
For more than 20 years, the department of dermatology in the Necker Enfants Malades Hospital (Paris) has been organizing the coordination of an epidermolysis bullosa-specific multidisciplinary management. The French Ministry of Health distinguished this hospital as a reference center for rare diseases. MAGEC-Necker now aims to offer the best medical and social management of epidermolysis bullosa.
Bodemer
Christine
C
Department of Dermatology, Necker Enfants Malades Hospital, APHP Paris 75015, France. christine.bodemer@nck.aphp.fr
D016208:Databases, Factual; D004820:Epidermolysis Bullosa / Q000628:therapy*; D005602:France; D006801:Humans; D009313:National Health Programs / Q000458:organization & administration*; D010348:Patient Care Team / Q000458:organization & administration*; D012017:Referral and Consultation / Q000458:organization & administration*