title: Epidermolysis bullosa in France: management in the National Reference Center for Genodermatosis.
abstract: For more than 20 years, the department of dermatology in the Necker Enfants Malades Hospital (Paris) has been organizing the coordination of an epidermolysis bullosa-specific multidisciplinary management. The French Ministry of Health distinguished this hospital as a reference center for rare diseases. MAGEC-Necker now aims to offer the best medical and social management of epidermolysis bullosa.
authors.affiliation: Department of Dermatology, Necker Enfants Malades Hospital, APHP Paris 75015, France. christine.bodemer@nck.aphp.fr
authors.forename: Christine
authors.initials: C
authors.lastname: Bodemer
mesh_terms: D016208:Databases, Factual; D004820:Epidermolysis Bullosa / Q000628:therapy*; D005602:France; D006801:Humans; D009313:National Health Programs / Q000458:organization & administration*; D010348:Patient Care Team / Q000458:organization & administration*; D012017:Referral and Consultation / Q000458:organization & administration*