A global pulmonary arterial hypertension registry: is it needed? Is it feasible? Pulmonary vascular disease: the global perspective.
Pulmonary arterial hypertension (PAH) is a fatal orphan disease. The global epidemiology of PAH is not well known and encourages combined national and international efforts to enhance understanding of the disease. A global database will help unify investigators and patients to foster collaboration and knowledge.
Gomberg-Maitland
Mardi
M
Department of Medicine, University of Chicago Medical Center, Chicago, IL 60637, USA. mgomberg@medicine.bsd.uchicago.edu
Michelakis
Evangelos D
ED
D016208:Databases, Factual; D014943:Global Health; D006801:Humans; D006976:Hypertension, Pulmonary; D012042:Registries