Multiple sclerosis patient caregivers: the relationship between their psychological and social needs and burden levels.
OBJECTIVE
The aim of this study was to discuss the burden of care-giving and the accompanied psychosocial experiences of caregivers.


METHODS
We studied 49 caregivers of persons with multiple sclerosis (MS) recruited from a Turkish MS organisation, measuring their needs using the Psychological and Social Needs Scale. To assess the level of their burdens, we used the Zarit Caregiver Burden Interview (ZCBI).


RESULTS
Most of the caregivers (63.3%) were females with a mean age of 42.12 (13.8) years, and 55.1% of the caregivers were spouses. The majority of caregivers were involved in bathing (59.2%) and dressing (55.1%) activities. A significant correlation exists between the ZCBI and dimensions of the Psychological and the Social Needs Scale (hopelessness, conflict in decision making, leisure activity deficit and social isolation). The following variables increased the ZCBI scores for caregivers: insufficient income; unemployment; presence of chronic disease; financial problems; difficulties in maintaining responsibilities; caregiver responsibilities involving dressing and positioning of the patient.


CONCLUSIONS
Major predictors of feelings of being burdened were hopelessness, conflict in decision making, leisure activity deficits and social isolation of the person with MS. Psychological, social and financial support should be considered to reduce the burden of caregivers in Turkey.
Health High School, Kafkas University, Saglik Yüksekokulu, Kars 36100, Turkey. yelizakkus@gmail.com
Yeliz
Y
Akkuş
D000203:Activities of Daily Living; D000293:Adolescent; D000328:Adult; D000368:Aged; D017028:Caregivers / Q000523:psychology*; D002908:Chronic Disease; D003657:Decision Making; D005260:Female; D006801:Humans; D007182:Income; D007899:Leisure Activities; D008297:Male; D008875:Middle Aged; D009103:Multiple Sclerosis / Q000523:psychology*; D020380:Needs Assessment; D012934:Social Isolation; D011795:Surveys and Questionnaires; D014421:Turkey; D014478:Unemployment