title: The relationship between religion, illness and death in life histories of family members of children with life-threatening diseases.
abstract: This qualitative study aimed to get to know the relationship between the experiences of families of children with a life-threatening disease and their religion, illness and life histories. The methodological framework was based on Oral History. The data were collected through interviews and the participants were nine families from six different religions who had lived the experience of having a child with a life-threatening disease. The interviews, held with one or two family members, were transcribed, textualized and, through their analysis, the Vital Tone was elaborated, representing the moral synthesis of each narrative. Three dimensions of spirituality were related to illness and death in their life histories: a Higher Being with a healing power; Development and Maintenance of a Connection with God and Faith Encouraging Optimism. The narratives demonstrated the family's search to attribute meanings to their experiences, based on their religious beliefs.
authors.affiliation: Escola de Enfermagem, Universidade de São Paulo, Brazil. szylit@usp.br
authors.forename: Regina Szylit
authors.initials: RS
authors.lastname: Bousso
authors.forename: Taís de Souza
authors.initials: Tde S
authors.lastname: Serafim
authors.forename: Maira Deguer
authors.initials: MD
authors.lastname: Misko
mesh_terms: D002648:Child; D004194:Disease; D005190:Family / Q000523:psychology*; D006801:Humans; D012067:Religion; D012720:Severity of Illness Index; D013795:Thanatology