title: [Perceived quality of life in mothers of young boys with fragile X syndrome].
abstract: Quality of life has been conceptualized as a subjective view of one's feeling of well-being. There is evidence for restraints caused by parenting stress as well as resilience in mothers of children with an intellectual handicap. Specifically, we report on an investigation using the family-related life quality questionnaire (FLQ) in mothers of 26 young boys with Fragile X syndrome. Quality of life is affected by parenting stress as well as individual and social coping resources (hope as a personal trait and quality of family relationships). Child-related variables (age, adaptive competence) had no significant effect on perceived quality of life, child temperament and atypical behavior is related indirectly to maternal life satisfaction as a factor determining the degree of parenting stress.
authors.affiliation: Pädagogische Hochschule Heidelberg, Heidelberg. sarimski@ph-heidelberg.de
authors.forename: Klaus
authors.initials: K
authors.lastname: Sarimski
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology; D002648:Child; D002675:Child, Preschool; D017281:Cost of Illness; D004185:Disability Evaluation; D005260:Female; D005600:Fragile X Syndrome / Q000523:psychology*; D006801:Humans; D008297:Male; D009034:Mother-Child Relations; D009035:Mothers / Q000523:psychology*; D016487:Parenting / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology*; D055500:Resilience, Psychological; D012944:Social Support; D013694:Temperament