title: The interface of population-based cancer registries and biobanks in etiological and clinical research--current and future perspectives.
abstract: BACKGROUND
  The availability of quality assured, population-based cancer registries and biobanks with high quality samples makes it possible to conduct research on large samples sets with long follow-up within a reasonable time frame. Defined quality for both cancer registries and biobanks is essential for enabling high quality biobank-based research. Recent networking projects have brought these infrastructures together to promote the combined use of cancer registries and biobanks in cancer research.
  
  
  METHODS
  In this report we review the current status and future perspectives of cancer registries and biobanks and how the interface between them should be developed to optimally further cancer research.
  
  
  CONCLUSIONS
  Major conclusions for future improvements are that the research exploiting cancer registries and biobanks, and the research that is building and optimising the infrastructure, should evolve together for maximally relevant progress. Population-based and sustainable biobanks that continuously and consecutively store all samples ("Biological registries") under strict quality control are needed. There is also a need for increased education, information and visibility of the interdisciplinary sciences required for optimal exploitation of these resources.
authors.affiliation: Lund University, Malmö, Sweden.
authors.forename: Kristin
authors.initials: K
authors.lastname: Andersson
authors.forename: Freddie
authors.initials: F
authors.lastname: Bray
authors.forename: Marc
authors.initials: M
authors.lastname: Arbyn
authors.forename: Hans
authors.initials: H
authors.lastname: Storm
authors.forename: Roberto
authors.initials: R
authors.lastname: Zanetti
authors.forename: Göran
authors.initials: G
authors.lastname: Hallmans
authors.forename: Jan W
authors.initials: JW
authors.lastname: Coebergh
authors.forename: Joakim
authors.initials: J
authors.lastname: Dillner
mesh_terms: D035843:Biomedical Research; D003226:Congresses as Topic; D017408:Guidelines as Topic; D006801:Humans; D009369:Neoplasms; D011640:Public Policy / Q000639:trends; D012042:Registries / Q000592:standards; D014015:Tissue Banks / Q000941:ethics / Q000592:standards / Q000639:trends