title: Family members' involvement in psychiatric care: experiences of the healthcare professionals' approach and feeling of alienation.
abstract: The involvement of family members in psychiatric care is important for the recovery of persons with psychotic disorders and subsequently reduces the burden on the family. Earlier qualitative studies suggest that the participation of family members can be limited by how they experience the professionals' approach, which suggests a connection to the concept of alienation. Thus, the aim of this study was in a national sample investigate family members' experiences of the psychiatric health care professionals' approach. Data were collected by the Family Involvement and Alienation Questionnaire. The median level and quartiles were used to describe the distributions and data were analysed with non-parametric statistical methods. Seventy family members of persons receiving psychiatric care participated in the study. The results indicate that a majority of the participants respond that they have experiencing a negative approach from the professionals, indicating lack of confirmation and cooperation. The results also indicate that a majority of the participants felt powerlessness and social isolation in the care being provided, indicating feelings of alienation. A significant but weak association was found between the family members' experiences of the professionals' approach and their feelings of alienation.
authors.affiliation: School of Health Care and Social Sciences, Högskolan Dalarna, SE-791 88 Falun, Sweden. mew@du.se
authors.forename: M
authors.initials: M
authors.lastname: Ewertzon
authors.forename: K
authors.initials: K
authors.lastname: Lützén
authors.forename: E
authors.initials: E
authors.lastname: Svensson
authors.forename: B
authors.initials: B
authors.lastname: Andershed
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D003299:Cooperative Behavior; D003430:Cross-Sectional Studies; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D015404:Nursing Methodology Research; D011209:Power, Psychological; D011368:Professional-Family Relations; D011446:Prospective Studies; D011618:Psychotic Disorders / Q000523:psychology / Q000628:therapy; D036301:Qualitative Research; D012657:Self-Help Groups; D012918:Social Alienation / Q000523:psychology*; D012934:Social Isolation / Q000523:psychology; D018709:Statistics, Nonparametric; D013548:Sweden