Driving interest in consolidating resources for the creation of a global rare disease patient registry.
Rubinstein
Yaffa R
YR
Groft
Stephen C
SC
D004493:Education; D014943:Global Health; D006801:Humans; D008507:Medically Underserved Area; D009316:National Institutes of Health (U.S.); D035583:Rare Diseases / Q000453:epidemiology*; D012042:Registries; D012657:Self-Help Groups / Q000706:statistics & numerical data*; D014481:United States