Importance of support groups for intersex (disorders of sex development) patients, families and the medical profession.
Taboo still surrounds intersex/disorders of sex development, in spite of more openness in society regarding sex. Peer support is valuable in providing information and emotional support to those affected. Support groups also work with clinicians to promote better care, to assist with research studies and to increase clinical awareness and expertise by helping to stage symposia. They also foster greater public understanding via media involvement and training videos; and play an advocacy role, providing one voice to channel the concerns of a scattered population with these rare conditions.
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Adrenal Hyperplasia Network, Lichfield, UK. webmaster@ahn.org.uk
Simmonds
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D001364:Awareness; D003226:Congresses as Topic; D003299:Cooperative Behavior; D012734:Disorders of Sex Development / Q000523:psychology*; D005190:Family; D006801:Humans; D010820:Physicians; D011364:Professional Practice; D012657:Self-Help Groups