title: Perceived discrimination and stigma toward children affected by HIV/AIDS and their HIV-positive caregivers in central Haiti.
abstract: In many settings worldwide, HIV-positive individuals have experienced a significant level of stigma and discrimination. This discrimination may also impact other family members affected by the disease, including children. The aim of our study was to identify factors associated with stigma and/or discrimination among HIV-affected youth and their HIV-positive caregivers in central Haiti. Recruitment of HIV-positive patients with children aged 10-17 years was conducted in 2006-2007. Data on HIV-related stigma and/or discrimination were based on interviews with 451 youth and 292 caregivers. Thirty-two percent of caregivers reported that children were discriminated against because of HIV/AIDS. Commune of residence was associated with discrimination against children affected by HIV/AIDS and HIV-related stigma among HIV-positive caregivers, suggesting variability across communities. Multivariable regression models showed that lacking social support, being an orphan, and caregiver HIV-related stigma were associated with discrimination in HIV-affected children. Caregiver HIV-related stigma demonstrated a strong association with depressive symptoms. The results could inform strategies for potential interventions to reduce HIV-related stigma and discrimination. These may include increasing social and caregiver support of children affected by HIV, enhancing support of caregivers to reduce burden of depressive symptoms, and promoting reduction of HIV-related stigma and discrimination at the community-level.
authors.affiliation: Department of International Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA. psurkan@jhsph.edu
authors.forename: Pamela J
authors.initials: PJ
authors.lastname: Surkan
authors.forename: Joia S
authors.initials: JS
authors.lastname: Mukherjee
authors.forename: David R
authors.initials: DR
authors.lastname: Williams
authors.forename: Eddy
authors.initials: E
authors.lastname: Eustache
authors.forename: Ermaze
authors.initials: E
authors.lastname: Louis
authors.forename: Thierry
authors.initials: T
authors.lastname: Jean-Paul
authors.forename: Wesler
authors.initials: W
authors.lastname: Lambert
authors.forename: Fiona C
authors.initials: FC
authors.lastname: Scanlan
authors.forename: Catherine M
authors.initials: CM
authors.lastname: Oswald
authors.forename: Mary Smith
authors.initials: MS
authors.lastname: Fawzi
mesh_terms: D000163:Acquired Immunodeficiency Syndrome / Q000523:psychology; D000293:Adolescent; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D002648:Child; D003863:Depression / Q000523:psychology; D004192:Discrimination, Psychological; D005260:Female; D015658:HIV Infections / Q000523:psychology*; D006205:Haiti; D006801:Humans; D008297:Male; D008875:Middle Aged; D010465:Perception; D012934:Social Isolation; D057545:Social Stigma; D012944:Social Support; D055815:Young Adult