title: The relationship between home nursing coverage, sleep, and daytime functioning in parents of ventilator-assisted children.
abstract: This descriptive study examined the relationship between home-care nursing support, sleep, and daytime functioning in familial caregivers of ventilator-assisted children. Thirty-six primary caregivers (27 mothers, 7 fathers, 1 foster mother, and 1 grandmother) of ventilator-assisted children completed measures of home nursing support, sleep, depression, fatigue, and daytime sleepiness. Daytime nursing coverage was not related to caregiver sleep or daytime functioning, but caregivers with less nighttime nursing coverage had significantly shorter sleep onset latency than caregivers with some night nursing (16-48 hours/week). Caregivers with regular night nursing (>48 hours/week) had a total sleep time of almost 1 hour more than caregivers without regular night nursing (<or=48 hours/week). Caregivers with clinically significant symptoms of depression and sleepiness received significantly fewer hours of night nursing per week than caregivers without significant symptoms of depression or sleepiness. Home nursing support, in particular night nursing, is important for the health and well-being of familial caregivers of ventilator-assisted children.
authors.affiliation: University of Pennsylvania School of Medicine, Philadelphia, PA, USA. meltzerl@email.chop.edu
authors.forename: Lisa J
authors.initials: LJ
authors.lastname: Meltzer
authors.forename: Deborah S
authors.initials: DS
authors.lastname: Boroughs
authors.forename: John J
authors.initials: JJ
authors.lastname: Downes
mesh_terms: D000328:Adult; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology*; D002648:Child; D017281:Cost of Illness; D003430:Cross-Sectional Studies; D003863:Depression / Q000209:etiology; D005221:Fatigue / Q000209:etiology; D005260:Female; D006301:Health Services Needs and Demand; D006699:Home Care Services / Q000458:organization & administration*; D006701:Home Nursing / Q000458:organization & administration / Q000523:psychology; D006801:Humans; D008297:Male; D008875:Middle Aged; D009551:Night Care / Q000458:organization & administration; D015404:Nursing Methodology Research; D010290:Parents / Q000523:psychology*; D010414:Pennsylvania; D012121:Respiration, Artificial / Q000451:nursing*; D012892:Sleep Deprivation / Q000175:diagnosis / Q000209:etiology* / Q000523:psychology; D012944:Social Support; D011795:Surveys and Questionnaires