title: [From the first french Telethon to the rare diseases act: the role of AFM].
authors.affiliation: l'AFM et de Généthon, Evry, France. duguet@afm.genethon.fr
authors.forename: L
authors.initials: L
authors.lastname: Tiennot-Herment
mesh_terms: D002648:Child; D003255:Consumer Organizations; D019988:Children with Disabilities / Q000331:legislation & jurisprudence*; D005602:France; D005653:Fund Raising; D006806:Human Rights / Q000331:legislation & jurisprudence*; D006801:Humans; D009468:Neuromuscular Diseases / Q000235:genetics / Q000628:therapy*; D035583:Rare Diseases / Q000235:genetics / Q000628:therapy*; D012106:Research