The case for a global rare-diseases registry.
Forrest
Christopher B
CB
Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA. forrestc@email.chop.edu
Bartek
Ronald J
RJ
Rubinstein
Yaffa
Y
Groft
Stephen C
SC
D003299:Cooperative Behavior; D006801:Humans; D007391:International Cooperation; D035583:Rare Diseases; D012042:Registries