Resilience, childhood disability and the Internet--case report.
We describe a family with a severely disabled child who demonstrates many of the characteristics of resilient families: strong relationships, good communication, and profound love of the disabled child. But this family has a characteristic that is infrequently described in the literature yet common in practice: the mother initiated many medical decisions based on knowledge gathered on the Internet. Parental education on the Internet can now allow families to gain a sense of mastery over their child's disease.
Sutton
Marianne B
MB
mariannebsutton@gmail.com
Windischbauer
Stefanie
S
Sutton
Evelyne Magali St John
EM
Weixler
Dietmar
D
D000293:Adolescent; D003256:Community Participation; D055423:Diet, Ketogenic; D019988:Children with Disabilities / Q000523:psychology*; D004831:Epilepsies, Myoclonic / Q000178:diet therapy / Q000523:psychology* / Q000628:therapy; D005500:Follow-Up Studies; D006801:Humans; D020407:Internet; D008149:Love; D008297:Male; D028361:Mitochondrial Diseases / Q000178:diet therapy / Q000523:psychology* / Q000628:therapy; D010287:Parent-Child Relations; D033282:Parental Consent; D010290:Parents / Q000193:education* / Q000523:psychology; D011788:Quality of Life / Q000523:psychology; D055500:Resilience, Psychological; D012944:Social Support