title: The case for a global rare-diseases registry.
authors.affiliation: Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA. forrestc@email.chop.edu
authors.forename: Christopher B
authors.initials: CB
authors.lastname: Forrest
authors.forename: Ronald J
authors.initials: RJ
authors.lastname: Bartek
authors.forename: Yaffa
authors.initials: Y
authors.lastname: Rubinstein
authors.forename: Stephen C
authors.initials: SC
authors.lastname: Groft
mesh_terms: D003299:Cooperative Behavior; D006801:Humans; D007391:International Cooperation; D035583:Rare Diseases; D012042:Registries