title: Human tissue samples for research. A focus group study in adults and teenagers in Flanders.
abstract: A focus group study in adults and teenagers in Flanders: Attitudes towards research on human stored tissue samples may be dependent on the cultural context. To-day, no data exist on the attitudes and values of the Flemish population towards such research. To query these attitudes, we conducted ten focus groups, composed of adults and of minors on the verge of legal competence. Amongst the focus group participants, we found a trust in the advancement of science, and a willingness to contribute tissue to research. The importance attributed to informed consent depended on the type of tissue donated and the effort needed to contribute. Participants did not see high risk associated with research on stored tissue, but thought there was a need for confidentiality protections. The coding of samples was deemed an appropriate protection. With regard to the return of research results, people expected to receive information that could be relevant to them, but the meaning of what is relevant was different between individuals.
authors.affiliation: Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Leuven, Belgium. Kristine.Hens@med.kuleuven.be
authors.forename: K
authors.initials: K
authors.lastname: Hens
authors.forename: K
authors.initials: K
authors.lastname: Dierickx
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D001294:Attitude to Health; D001530:Belgium; D035843:Biomedical Research / Q000941:ethics; D003219:Confidentiality; D005260:Female; D017144:Focus Groups; D006801:Humans; D007258:Informed Consent; D008297:Male; D008875:Middle Aged; D014015:Tissue Banks / Q000941:ethics; D009927:Tissue and Organ Procurement / Q000941:ethics