title: Responsiveness of the Eating Disorders Quality of Life Scale (EDQLS) in a longitudinal multi-site sample.
abstract: BACKGROUND
  In eating disorders (EDs), treatment outcome measurement has traditionally focused on symptom reduction rather than functioning or quality of life (QoL). The Eating Disorders Quality of Life Scale (EDQLS) was recently developed to allow for measurement of broader outcomes. We examined responsiveness of the EDQLS in a longitudinal multi-site study.
  
  
  METHODS
  The EDQLS and comparator generic QoL scales were collected in person at baseline, and 3 and 6 months from 130 participants (mean age 25.6 years; range 14-60) in 12 treatment programs in four Canadian provinces. Total score differences across the time points and responsiveness were examined using both anchor- and distribution-based methods.
  
  
  RESULTS
  98 (75%) and 85 (65%) responses were received at 3 and 6 months respectively. No statistically significant differences were found between the baseline sample and those lost to follow-up on any measured characteristic. Mean EDQLS total scores increased from 110 (SD = 24) to 124.5 (SD = 29) at 3 months and 129 (SD = 28) at 6 months, and the difference by time was tested using a general linear model (GLM) to account for repeated measurement (p < .001). Responsiveness was good overall (Cohen's d = .61 and .80), and confirmed using anchor methods across 5 levels of self-reported improvement in health status (p < .001). Effect sizes across time were moderate or large for for all age groups. Internal consistency (Chronbach's alpha=.96) held across measurement points and patterns of responsiveness held across subscales. EDQLS responsiveness exceeded that of the Quality of Life Inventory, the Short Form-12 (mental and physical subscales) and was similar to the 16-dimension quality of life scale.
  
  
  CONCLUSIONS
  The EDQLS is responsive to change in geographically diverse and clinically heterogeneous programs over a relatively short time period in adolescents and adults. It shows promise as an outcome measure for both research and clinical practice.
authors.affiliation: Department of Community Health Sciences, Faculty of Medicine, University of Calgary, 1215-39 Ave, SW, Calgary, AB T2T2K6, Canada. ceadair@ucalgary.ca
authors.forename: Carol E
authors.initials: CE
authors.lastname: Adair
authors.forename: Gisele C
authors.initials: GC
authors.lastname: Marcoux
authors.forename: Theanna F
authors.initials: TF
authors.lastname: Bischoff
authors.forename: Brian S
authors.initials: BS
authors.lastname: Cram
authors.forename: Carol J
authors.initials: CJ
authors.lastname: Ewashen
authors.forename: Jorge
authors.initials: J
authors.lastname: Pinzon
authors.forename: Joanne L
authors.initials: JL
authors.lastname: Gusella
authors.forename: Josie
authors.initials: J
authors.lastname: Geller
authors.forename: Yvette
authors.initials: Y
authors.lastname: Scattolon
authors.forename: Patricia
authors.initials: P
authors.lastname: Fergusson
authors.forename: Lisa
authors.initials: L
authors.lastname: Styles
authors.forename: Krista E
authors.initials: KE
authors.lastname: Brown
mesh_terms: D000293:Adolescent; D000328:Adult; D000704:Analysis of Variance; D002170:Canada; D001068:Feeding and Eating Disorders / Q000523:psychology / Q000628:therapy; D005260:Female; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D008875:Middle Aged; D011594:Psychometrics / Q000379:methods* / Q000592:standards; D011788:Quality of Life; D011795:Surveys and Questionnaires; D055815:Young Adult