title: Spouses' experiences of impact on daily life regarding physical limitations in the loved one with heart failure: a phenomenographic analysis.
abstract: BACKGROUND
  Physical limitation is a great burden for patients with heart failure, but little is known about how that affects spouses. Beneficial effects of support on the prognosis for the patient with chronic heart failure may come at a psychological and physical cost to the person providing the support.
  
  
  OBJECTIVE
  The aim of this study was to explore and describe how spouses conceive the physical limitations in patients with heart failure and the impact these limitations have on the daily life of the spouse.
  
  
  METHODS
  A qualitative design with a phenomenographic approach was chosen for the study.
  
  
  RESULTS
  The informants were 15 spouses of heart failure patients. The spouses perceived a variety of aspects pertaining to how they conceive the physical limitations in the loved one with heart failure and the implication this had on their daily life. The referential aspects were: Losing self-containment, Missing communality, Accommodating to the situation and Finding satisfaction in life.
  
  
  CONCLUSIONS
  Awareness must be raised among health care professionals about the profound impact heart failure in loved ones has on the spouses and explore how the spouses' needs can be appropriately met. Since spouses have an important role to play in the management of heart failure, it is of great importance that nurses identify and support spouses to manage daily life activities. Taking care of the good days in order to have a rich life and to help spouses see possibilities is necessary since it is difficult to predict the future.
authors: School of Social and Health Sciences, Halmstad University, Sweden. emma.pihl@lthalland.se
authors: Emma
authors: E
authors: Pihl
authors: Bengt
authors: B
authors: Fridlund
authors: Jan
authors: J
authors: Mårtensson
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology*; D000223:Adaptation, Psychological; D000368:Aged; D001294:Attitude to Health; D002908:Chronic Disease; D017281:Cost of Illness; D005260:Female; D006333:Heart Failure / Q000523:psychology; D006701:Home Nursing / Q000523:psychology; D006801:Humans; D008297:Male; D020380:Needs Assessment; D024802:Nurse's Role; D009730:Nursing Assessment; D015404:Nursing Methodology Research; D010549:Personal Satisfaction; D036301:Qualitative Research; D011788:Quality of Life; D012944:Social Support; D018454:Spouses / Q000523:psychology*; D011795:Surveys and Questionnaires; D013548:Sweden