title: Quality of life after traumatic brain injury: the clinical use of the QOLIBRI, a novel disease-specific instrument.
abstract: OBJECTIVE
  To report the clinical use of the QOLIBRI, a disease-specific measure of health-related quality-of-life (HRQoL) after traumatic brain injury (TBI).
  
  
  METHODS
  The QOLIBRI, with 37 items in six scales (cognition, self, daily life and autonomy, social relationships, emotions and physical problems) was completed by 795 patients in six languages (Finnish, German, Italian, French, English and Dutch). QOLIBRI scores were examined by variables likely to be influenced by rehabilitation interventions and included socio-demographic, functional outcome, health status and mental health variables.
  
  
  RESULTS
  The QOLIBRI was self-completed by 73% of participants and 27% completed it in interview. It was sensitive to areas of life amenable to intervention, such as accommodation, work participation, health status (including mental health) and functional outcome.
  
  
  CONCLUSIONS
  The QOLIBRI provides information about patient's subjective perception of his/her HRQoL which supplements clinical measures and measures of functional outcome. It can be applied across different populations and cultures. It allows the identification of personal needs, the prioritization of therapeutic goals and the evaluation of individual progress. It may also be useful in clinical trials and in longitudinal studies of TBI recovery.
authors: The QOLIBRI Task Force on TBI Quality of Life, Department of Physical Medicine and Rehabilitation, University Hospital, Garches, France. jean-luc.truelle@wanadoo.fr
authors: Jean-Luc
authors: JL
authors: Truelle
authors: Sanna
authors: S
authors: Koskinen
authors: Graeme
authors: G
authors: Hawthorne
authors: Jaana
authors: J
authors: Sarajuuri
authors: Rita
authors: R
authors: Formisano
authors: Klaus
authors: K
authors: Von Wild
authors: Edmund
authors: E
authors: Neugebauer
authors: Lindsay
authors: L
authors: Wilson
authors: Henning
authors: H
authors: Gibbons
authors: Jane
authors: J
authors: Powell
authors: Monika
authors: M
authors: Bullinger
authors: Stefan
authors: S
authors: Höfer
authors: Andrew
authors: A
authors: Maas
authors: George
authors: G
authors: Zitnay
authors: Nicole
authors: N
authors: Von Steinbuechel
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology; D000293:Adolescent; D000328:Adult; D000368:Aged; D001930:Brain Injuries / Q000503:physiopathology / Q000523:psychology* / Q000534:rehabilitation; D004644:Emotions / Q000502:physiology*; D005260:Female; D006305:Health Status Indicators; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D008603:Mental Health; D008875:Middle Aged; D017063:Outcome Assessment, Health Care; D026684:Personal Autonomy; D011788:Quality of Life / Q000523:psychology*; D011795:Surveys and Questionnaires; D055815:Young Adult